Gout and power: the history of five political figures shaped by the disease [0.03%]
痛风与权力：五位政治人物的痛风史
Emmanuel Drouin,Tristan Pascart
Emmanuel Drouin
The Lancet Rheumatology
The Lancet Rheumatology
The path to interception in psoriatic disease: from conceptual clarity to clinical translation [0.03%]
银屑病的拦截之路：从概念明晰到临床转化
Dylan McGagh,Ashley Elliott,Teresa Grohmann et al.
Dylan McGagh et al.
Psoriatic arthritis develops in up to one-third of individuals with psoriasis, typically following a prolonged subclinical phase. Diagnostic delays are common, often exceeding 2 years, and can result in irreversible joint damage. The growin...
Trialblazers: patient-driven redesign of a clinical trial in psoriatic arthritis [0.03%]
以患者为中心的设计：银屑病关节炎临床试验的优化改革项目
Caroline Struthers,Simon Hackett,Louise Hailey et al.
Caroline Struthers et al.
Patient partnership model in rare and complex rheumatological conditions: research and beyond in European Reference Network ReCONNET [0.03%]
罕见和复杂风湿病患者的医患伙伴关系模式：欧洲参考网络ReCONNET的研究及其他进展
Jeanette Andersen,Rosaria Talaric,Diana Marinello et al.
Jeanette Andersen et al.
In rare and complex connective tissue diseases, patient partnership is essential to address diagnostic delays, fragmented care, unmet needs, and the research agenda. European Reference Network (ERN) ReCONNET, the network dedicated to rare a...
Strengthening rheumatology research through meaningful engagement of people with lived experience [0.03%]
通过有意义地参与具有实际经验的人来加强风湿病学研究
Claire Adams,Elsa-Lynn Nassar,Danielle B Rice et al.
Claire Adams et al.
Engaging people with lived experience in research improves research quality, relevance, and translation. Yet, people with lived experience are infrequently engaged in rheumatology research even though they can make important contributions t...
Joanna S C Shim,Jonathan Gower,Paul Swinton;Prehabilitation for Hip & Knee Replacement Surgery Priority Setting Partnership Steering Group
Joanna S C Shim
Strengthening patient and public involvement in digital health innovation: reflective analysis of the development and real-world testing of the MyRA application [0.03%]
加强患者和公众在数字健康创新中的参与：MyRA应用程序的开发和现实世界测试的反思分析
Laura M J Hochstenbach,Joost G E Verbeek,Mark M Bakker et al.
Laura M J Hochstenbach et al.
Background: To ensure that digital health applications reflect real-world needs and preferences, meaningful public and patient involvement is essential throughout the design process. However, existing patient and public i...