Impact-of-COVID-19 on mortality and implications for adolescent and young-adult healthcare [0.03%]
新冠肺炎对死亡率的影响及对青少年和年轻人医疗保健的启示
Yoshiyasu Takefuji
Yoshiyasu Takefuji
This paper investigates the effect of COVID-19 on mortality in the child and adolescent population of five age groups. The CDC dataset was used for calculating the number of deaths by adolescent age group from 2015 to 2020. Results showed t...
Sickle cell disease and adolescents' perspectives on self-care management resources [0.03%]
镰形红细胞性疾病及青少年对该病自我管理资源的看法
Dora L Clayton-Jones,Jill B Hamilton,Kristin Haglund et al.
Dora L Clayton-Jones et al.
Background: Adolescents with sickle cell disease (SCD) face unique challenges, especially during the critical health care transition from pediatric to adult care. The purpose of this study was to gather the perspectives o...
Freeman Center for intellectual and developmental disabilities: Patient-centered interdisciplinary care [0.03%]
福曼智力和发育障碍中心：以患者为中心的跨学科护理
Joshua Smith,Brittany N Hand,Emily Johnson et al.
Joshua Smith et al.
Objectives: Adults with intellectual or developmental disabilities (IDD) face substantial barriers to accessing high-quality, patient-centered care. This paper describes the development and evolution of the Freeman Center...
Best practices to support inflammatory bowel disease patients in higher education and the workplace: A clinician's guide [0.03%]
炎症性肠病患者的最佳支持方法：高校和职场内患者指导手册
Sydney Reed,Sneha Dave,Amy Bugwadia
Sydney Reed
The rising prevalence of inflammatory bowel diseases (IBD), including Crohn's disease and ulcerative colitis, among adolescents and young adults illuminates the growing need for psychosocial and structural support for these patients as they...
Perceptions of caregivers and adolescents/young adults with cystic fibrosis regarding health care transition readiness during the COVID-19 pandemic: A qualitative study [0.03%]
照顾者和囊性纤维化青少年/年轻成人关于新型冠状病毒肺炎大流行期间医疗保健过渡准备情况的感知：一项定性研究
Tyra C Girdwood,Jennifer L Goralski,Maria E Ferris et al.
Tyra C Girdwood et al.
Purpose: Medical advances have increased the life expectancy of adolescents and young adults (AYA) with cystic fibrosis (CF) and importance of high-quality health care transitions (HCT) from pediatric-to-adult focused hea...
What it looks like to 'mind the gaps' in a Midwest survivorship clinic for childhood cancer survivors [0.03%]
美国中西部儿童癌症幸存者门诊护理的现状
Stijn Hentzen,Taylor Adams,Kyla Alsman et al.
Stijn Hentzen et al.
Background: As cancer prevalence increases and treatment improves, the population of childhood cancer survivors (CCS) will see remarkable growth. This population requires guideline-based survivorship care into adulthood; ...
Ellen Fremion,Rachel Madey,Elizabeth Harper et al.
Ellen Fremion et al.
Cara C Young,Susan J Calloway,Nani Kim
Cara C Young
Objective: To explore transition practices, mental health promotion, and psychological health among college students with a mental health disorder. Partic...
Initial observations of medically complex young adults transitioning to adult care: Revealing data regarding mental health, nutrition, and transition preparedness [0.03%]
医学情况复杂的年轻人过渡到成人期医疗保健的初步观察结果：有关心理健康、营养和转诊准备的数据披露
Emily Hooker,Madeline Eckenrode,Betsy Hopson et al.
Emily Hooker et al.
Background: Approximately one million adolescents with medical complexity transition into adult healthcare each year. Pediatric and adult providers alike have identified several barriers to transition, including insuffici...
Evaluating the transition of adolescents and young adults with palliative care needs from pediatric to adult care [0.03%]
评估需要姑息治疗的青少年和年轻人从儿科护理过渡到成人护理的情况
Emma W Healy,Natasha Z Piracha
Emma W Healy
Background: The transition from pediatric to adult healthcare poses significant challenges for adolescents and young adults (AYA), especially those with chronic conditions, yet most children receive inadequate transition ...