Participant feedback on a health care transition conference for youth with medical complexity [0.03%]
关于儿童医学复杂性大会的参与者反馈意见
Betsy Hopson,Jessica Brouillette,James Shi et al.
Betsy Hopson et al.
Introduction: Each year in the United States, an estimated 1.2 million youth with chronic conditions or functional limitations reach adulthood and must transition from pediatric to adult health care, a process often fragm...
Development and clinical implementation of a care guideline to support self-management and responsibility transition in adolescents and young adults with biliary atresia [0.03%]
胆汁淤积青少年及年轻人的自我管理与责任过渡支持指南的制定和临床应用
Katsuhiro Hiratsuka,Hiroko Watayo,Nobue Nakamura
Katsuhiro Hiratsuka
Objective: This study developed, refined, and implemented a care guideline for adolescents and young adults (AYAs) with biliary atresia surviving with their native livers and their parents, based on a responsibility trans...
Evaluating transitional care practices for adolescents with chronic conditions in two Dutch university hospitals: A mixed-methods study [0.03%]
荷兰两家大学医院慢性病青少年过渡护理实践的评估：一种混合方法的研究
Jobert Sturm,Myrthe Braunstahl,Heidi van Heijningen-Tousain et al.
Jobert Sturm et al.
Background: The transition from paediatric to adult healthcare represents a critical period for young people with chronic conditions. Although structured transitional care is recommended both nationally and internationall...
Self-management for youth and young adults with childhood-onset chronic conditions: A scoping review of health care transition planning literature [0.03%]
儿童期慢性病青少年和青年人的自我管理：卫生保健过渡计划文献综述式回顾
Jennifer Emilie Mannino,Cara C Young,Monique M Ridosh et al.
Jennifer Emilie Mannino et al.
Objective: To determine the extent to which self-management has been investigated and reported in literature focused on the transition from pediatric to adult healthcare for youth and young adults with childhood-onset chr...
Transition and clinical outcomes among AYA with sickle cell disease [0.03%]
过渡期成人医疗保健对镰刀型红血球疾病患者的影响及其临床结果研究
Chiamaka Nwachukwu,Melody Benton,Maissaa Janbain et al.
Chiamaka Nwachukwu et al.
Background: Transition clinics in sickle cell disease (SCD) were developed to address the gap in care and poor outcomes that frequently occur in adolescents and young adults (AYA) with SCD. Our retrospective study evaluat...
Adulthood as a social construct: Critical discourse analysis of transition preparation consultations for youth with chronic conditions [0.03%]
以社会建构视角探讨成长成年：针对慢性病患者的过渡准备咨询中的批判性话语分析
Maxime Morsa,Clémentine Boudroit,Agnes Dumas et al.
Maxime Morsa et al.
Background: Little is known about how interventions designed to empower youth with chronic conditions operate in natural clinical contexts during the transition from pediatric to adult care. Such interventions may contrib...
An e-health transition intervention for youth with brain-based disabilities: Pilot and feasibility results from a Randomized Controlled Trial [0.03%]
一种针对脑部功能障碍青少年的电子健康过渡干预方法：来自随机对照试验试点和可行性结果的研究
Jan Willem Gorter,Ronen Rozenblum,Adrienne H Kovacs et al.
Jan Willem Gorter et al.
Background: Youth with brain-based disabilities (BBD) need tailored support when preparing for adult healthcare. We originally designed a full randomized controlled trial (RCT) to test whether the MyREADY Transition™ BBD...
Luke Coffman,Ashley McCool,Tanika Middleton et al.
Luke Coffman et al.
Background: Most health care transition (HCT) interventions target the outpatient setting. However, hospitalization may serve as an additional touchpoint to identify patients who require transition services. ...
A home base for young adults: evidence that a primary care-embedded multidisciplinary rheumatology transition clinic improved care utilization and engagement [0.03%]
青年成人患者的常规护理基地：一种嵌入综合医疗环境的风湿科转诊门诊改善了患者的就诊利用和参与程度——一项证据分析
Hannah R Concannon,Brian Halstater,Sara Mazzarelli et al.
Hannah R Concannon et al.
Objective: To determine care outcomes and utilization patterns for rheumatology patients seen in a multidisciplinary Young Adult Rheumatology Clinic (YARC) with embedded primary care, compared to patients directly transfe...
The impact of a patient navigator on readiness assessment scores in youth transitioning to adult health care in Alberta [0.03%]
一名患者联络员对阿尔伯塔省青年从儿科向成人医护过渡的准备情况评分的影响研究
Megan Patton,Cassandra Chisholm,Zoya Punjwani et al.
Megan Patton et al.
Background: At ages 16-21, youth with chronic medical conditions transition from pediatric to adult specialty care and often feel unprepared. Transition readiness assessments, including the validated Transition Readiness ...