Adolescent transition preparation around the COVID-19 pandemic: A cross-sectional study [0.03%]
新冠肺炎疫情期间青少年过渡准备情况的一项横断面研究
Sarah P Cohen,Andrew H Tran,Robin Alexander et al.
Sarah P Cohen et al.
Objective: To compare preparation for transition in adolescents in the United States prior to and during the COVID-19 pandemic. Study design: ...
Anisha Maheshwari,Anna Maria Coronata,Laura Kirkpatrick et al.
Anisha Maheshwari et al.
Background: Healthcare transition (HCT) is the process of moving a patient from pediatric, parent-supervised care to an independent, adult-centered model. This study assesses current HCT activities and explores the educat...
What skills do adolescents and young adults desire as they prepare for adult health care? [0.03%]
青少年和年轻成人希望获得哪些技能以应对成人期的医疗保健？
Megan Patton,Daniella San Martin-Feeney,Brooke Allemang et al.
Megan Patton et al.
Background: The transition from pediatric to adult care is a period associated with adverse health outcomes (e.g., health care dropout, health deterioration and poor adherence to management) for adolescents and young adul...
Developing a transition workshop for adolescents with sickle cell disease [0.03%]
针对镰状细胞病青少年的过渡工作坊的研究与开发
James Bradley,Zelyn Lee,Melina Cheong
James Bradley
Background: The transfer from paediatric to adult care presents a significant challenge for adolescents and young adults (AYA) with sickle cell disease (SCD). Disease self-management skills have been recognized as importa...
Katheryne Madrazo-Aguirre,Jean-Antoine Ribeil,Amy E Sobota
Katheryne Madrazo-Aguirre
Background: Transition in sickle cell disease (SCD) is associated with an alarming increase in acute care utilization, cost, and risk of early mortality. Effective transition preparation is crucial to address these issues...
Medical trauma in young adults with inflammatory bowel disease: The role of trauma-informed care [0.03%]
炎症性肠病青壮年患者的医疗创伤与心理知情护理的作用
Amy K Bugwadia,Sydney Reed,Mara Shapiro et al.
Amy K Bugwadia et al.
Medical trauma is a profound concern for those with chronic conditions like inflammatory bowel disease (IBD), especially young adults. This trauma, arising from both the disease itself and necessary medical interventions, manifests as an ac...
Letting go/ moving on: A scoping review of relational effects on transition to adult care [0.03%]
放手/继续前进：成人护理过渡期关系效果综述研究
Susan Shanske,Janis Arnold,Judy Bond et al.
Susan Shanske et al.
Objective: The objective of this scoping review was to assess the extent of the literature on how relational components in pediatric care contribute to the transition process and transfer outcomes. ...
Psychosocial needs and outcomes of adults with spina bifida: A scoping review, 1974-2023 [0.03%]
1974-2023年脊柱裂成人患者的心理社会需求和预后：系统综述
Jennifer Emilie Mannino,Heather Reens,Kathryn Smith et al.
Jennifer Emilie Mannino et al.
Limited evidence exists that serves to guide the field of practice and research pertaining to the long-term issues and needs of adults with spina bifida. Understanding the lived experience of adults with spina bifida has lagged behind consi...
Sexual and reproductive health considerations in the care of young adults with inflammatory bowel disease: A multidisciplinary conversation [0.03%]
炎症性肠病青年患者的生殖和性健康多学科讨论注意事项
Sydney Reed,Amy K Bugwadia,Sneha Dave et al.
Sydney Reed et al.
The effects of inflammatory bowel disease (IBD) and the medications used to treat it on sexual and reproductive health can be significant, impacting the quality of life of patients across gender identities. This article presents insights fr...
Exploring adolescent and parent perspectives on facilitating health self-management in adolescents with autism spectrum disorder [0.03%]
探索青少年自闭症谱系障碍患者健康自我管理的促进因素：青少年和父母的观点
Jamie L Rock,Heather A Becker
Jamie L Rock
Background: As many as 95% of individuals across the lifespan with autism spectrum disorder (ASD) have at least one comorbidity. While research focused only on the health of autistic adolescents is limited, we do know tha...