A statewide initiative to improve healthcare transition from pediatric to adult care for individuals with neurodevelopmental disabilities: Lessons learned from engaging stakeholders [0.03%]
改善神经发育障碍患者从儿科到成人护理的医疗保健过渡的全州倡议:与利益相关者参与中学到的经验教训
Susan Shanske,Lindsay MacAuley,Jamara Possemato et al.
Susan Shanske et al.
Background: Transition from pediatric to adult healthcare is challenging for patients with Neurodevelopmental Disabilities (NDD). Patients, families, and providers endure systemic barriers. Our objective was convening sta...
"Hurt and Misunderstood": Emotional reactions to pain dismissal in emerging adults with chronic pain [0.03%]
“痛苦和误解”:慢性疼痛的年轻成年人对病痛轻视的情感反应
Elizabeth Fenelon,Kayla McCracken,Keely Bieniak-Fortier et al.
Elizabeth Fenelon et al.
Background: Twelve percent of emerging adults (EAs) experience chronic pain which is associated with psychological distress and isolation. At least 40 % of EAs with chronic pain experience pain dismissal which poses a sig...
Caregiver-child discrepancy in healthcare transition readiness and its associations [0.03%]
照顾者与儿童在医疗保健过渡准备方面的差异及其关联性分析
Yunzhen Huang,Eugene Maung,Stephen R Hooper et al.
Yunzhen Huang et al.
Purpose: To explore caregiver-child discrepancy in healthcare transition (HCT) readiness and its association with demographic variables, anxiety, and health services utilization in children and adolescents with chronic he...
Peer-support needs and experiences of young adults with chronic conditions: A mixed methods study [0.03%]
慢性病青年患者的同伴支持需求和体验:一种混合研究方法
Katherine Melton,Brynn Telenko,Peyton Miles et al.
Katherine Melton et al.
Introduction: Little is known about how young adults with chronic conditions view peer support and virtual peer-support programming. The purpose of this study is to (1) describe the psychosocial and peer support needs of ...
Mobile asthma apps for emerging adults transitioning to college: A scoping review [0.03%]
针对过渡到大学的年轻成人的哮喘移动应用程序:一项范围审查
V Ann Andreoni,Margaret C Delaney,Susan McNamee et al.
V Ann Andreoni et al.
Background: Limited data exists to direct evidence-based asthma self-care for emerging adults as they transition from pediatric to adult health care. This transition often occurs in the college setting, apart from usual p...
Reflections on youth partnership in a randomized controlled trial of an intervention to optimize transition from pediatric to adult care in inflammatory bowel disease [0.03%]
优化炎症性肠病从儿科到成人护理过渡的干预措施随机对照试验中的青年伙伴关系反思
Brooke Allemang,Ashleigh Miatello,Pranshu Maini et al.
Brooke Allemang et al.
Background: Patient engagement allows for developing health interventions and research studies that align with the needs of people living with chronic diseases. Actively involving people with lived experience as partners ...
Youth feedback through emotional mapping in the Transition to Adulthood through Coaching and Empowerment study [0.03%]
青年情感地图反馈:教练及赋权下的过渡至成年研究
Tina J Liu,Karen Beattie,Katherine Prowse et al.
Tina J Liu et al.
Background: Youth with inflammatory bowel disease (IBD) and juvenile idiopathic arthritis (JIA) face challenges transitioning to adult care due to physiological and psychosocial impacts of their disease. Current transitio...
Development and design of a Blueprint for structured transitional care in adolescents and young adults in the academic hospital setting [0.03%]
学术医疗环境中青少年和青年人结构化过渡护理的蓝图开发与设计
Vivi Buijs,Martha A C van Gaalen,Irene K Schokker-van Linschoten et al.
Vivi Buijs et al.
Background and purpose: A generic, structured transitional care pathway dedicated to patients in the academic setting is currently lacking. This study aimed to identify the key factors influencing a successful transition ...
Diane V Murrell,Cassandra J Enzler,Lauren Bretz et al.
Diane V Murrell et al.
Background: This study sought to examine how adolescents and young adults with special health care needs (AYA) prepare for managing medical insurance (private and public) as an adult and the role of insurance in locating ...
Transitioning spine care from the pediatric to adult center: Challenges and future directions [0.03%]
儿童脊柱护理向成人中心过渡:挑战与未来方向
Jesse Shen,Eric Klineberg,Burt Yaszay et al.
Jesse Shen et al.
Study design: Anonymous, survey-based prospective study. Objectives: The objective of this study was to evaluate the current practice p...