Health status and health care utilization profiles of adolescents with disabilities [0.03%]
残疾青少年的健康状况及卫生服务利用率特征分析研究论文
Shauna Kingsnorth,Yani Hamdani,Clare Cheng et al.
Shauna Kingsnorth et al.
Background: Adolescents with physical disabilities of childhood often require a transition from pediatric to adult systems as part of life-long, comprehensive health care once they reach 18 years of age. The process of tr...
Cecily L Betz,Maria E Díaz-González de Ferris
Cecily L Betz
Roundtable on Young Adults with IBD: A multi-stakeholder perspective and patient-driven analysis of the current transitional challenges and gaps in research [0.03%]
针对炎症性肠病青年患者的圆桌会议：多学科利益相关者视角及以患者为中心的过渡期挑战与研究空白分析
Sneha Dave,Sydney Reed,Kajal Patel et al.
Sneha Dave et al.
The "Roundtable on Young Adults with IBD" is a year-long learning community consisting of monthly discussions between providers, patients, and healthcare partners. The group aims to enhance outcomes for the young adult IBD patient populatio...
Riding the wave: A grounded theory of transplant transition in adolescents and youth adults [0.03%]
顺势而为：青少年和青年人器官移植术后过渡的扎根理论研究
Angie Lim,Lenora Marcellus
Angie Lim
Objectives: The health care transition from pediatric to adult-focused health care for adolescent and young adult (AYA) organ transplant recipients is a critical yet understudied period. Unique challenges include supporti...
Perspectives on health care transition among U.S. parents of internationally adopted children living with HIV: A qualitative study [0.03%]
美国国际收养的HIV阳性儿童父母对其医疗保健过渡的观点：定性研究观点
Faith Glover,Rosemary Olivero,Cynthia Fair
Faith Glover
Objective: To analyze perspectives on health care transitions among parents who have internationally adopted children living with HIV (IACH)The transition of youth with living with HIV from pediatric to adult care is asso...
Describing healthcare concerns of adolescents and adults with cerebral palsy [0.03%]
描述脑瘫青少年和成年人的医疗问题
Christina M Winger,Caitlin Cassidy,Jessica Starowicz et al.
Christina M Winger et al.
Aim: To identify healthcare concerns of adolescents and adults with cerebral palsy (CP) followed in a multidisciplinary rehabilitation program and identify patient factors associated with the number of concerns raised. ...
Parent-youth interactions: Transitioning to toileting self-management in spina bifida patients [0.03%]
脊柱裂患者的如厕自理：亲子互动中的过渡期
Tae Kawahara,Akemi Yamazaki
Tae Kawahara
Purpose: Spina bifida (SB) involves neurogenic bladder and bowel deficits. While parents manage the bladder and bowel disorders of their youth in the early years, the youth themselves must eventually take responsibility f...
Matthew C Spence,Theresa Serra,Elissa Gross
Matthew C Spence
Background: Health care proxy (HCP) completion rates by older adults are relatively low; however, not much is known about proxy completion rates by younger adults. ...
Asthma patients' perspectives on telehealth in disease management: A focus group study [0.03%]
哮喘患者在疾病管理中对远程医疗的看法：一种焦点小组研究的方法
Yu Seon Sarah Chae,Noah Tregobov,Austin McMillan et al.
Yu Seon Sarah Chae et al.
Objectives: While the effectiveness of telehealth (TH) to improve health outcomes is well established, the utility of ehealth care among adult asthma patients, particularly in patients with limited access to specialty lun...
Pediatric to adult primary care transition for medically complex youth: A tale of learning from challenges experienced implementing a pilot project during COVID-19 [0.03%]
COVID-19大流行下实施医患过渡照护试点项目的经验与教训——复杂疾病的青少年患者从儿科转为成人初诊的体会
Reem Hasan,Reyna Lindert,Danielle Sullivan et al.
Reem Hasan et al.
Purpose: The aim of our article is to describe our learning based on challenges encountered implementing two related pediatric to adult primary care transition pilots for medically complex adolescents and young adults as ...