Evaluating the implementation of self-management skill readiness assessment for adolescents and young adults with spina bifida [0.03%]
评估脊柱裂青少年和年轻人自我管理技能准备情况的实施效果
Megan Gallagher,Rhonda G Cady
Megan Gallagher
Background: Spina bifida (SB) is a complex condition affecting brain, bowel, bladder, cognitive, motor, and sensory functions. Evidence shows that adolescents and young adults (AYAs) with SB who master self-management of ...
Community health worker support to adolescents and young adults with sickle cell disease: A multi-method analysis on transition-related support [0.03%]
基于多方法分析的社区卫生工作者支持：镰状细胞病青少年和青年人过渡相关支持分析
Jayanne Forrest,Claudio Galea,Caren Steinway et al.
Jayanne Forrest et al.
Background: Transitioning to adult care is challenging for adolescent and young adults (AYA) with sickle cell disease (SCD), often leading to increased morbidity and mortality. Community health workers (CHWs) may offer pa...
No patient left behind: Developing an interdisciplinary transition clinic for young adult patients with congenital heart disease [0.03%]
不放弃任何一位患者——为先天性心脏病青年患者建立多学科综合过渡期诊疗门诊
Khadija Shah,Samantha J Klaver,Sara R Ford et al.
Khadija Shah et al.
Background: Advances in pediatric cardiology care have improved survival rates among children with congenital heart disease (CHD), resulting in a growing number of adults with CHD (ACHD). Many of these individuals encount...
Parental experiences transitioning neurological impaired young adults to adult services [0.03%]
神经功能受损的成年子女过渡到成人服务项目的父母经历
Hilary Noonan,Rajamanikandan Savarimalai,Pauline O&#x;Reilly
Hilary Noonan
Background: Neonatal and paediatric care has been advancing. However, most young adults will need to transition from paediatric to adult healthcare services, which is more challenging and complex, especially for young adu...
Using transition design to explore transition from adolescence to adulthood [0.03%]
运用转型设计探索从青少年到成年的转型期
Juliet T Jarrell,Olivia M Stransky,Jacquelin Rankine et al.
Juliet T Jarrell et al.
Background: Most existing research concerning the transition from adolescence to adulthood is narrowly focused on the healthcare setting; few studies have investigated this process holistically while including the viewpoi...
Ableism, ageism, and other biases in healthcare: The impact on young adult patients [0.03%]
医疗保健中的残疾偏见、年龄偏见及其他偏见：对年轻成人患者的影响
Jemma-Tiffany Rosewater,Sneha Dave,Meg Didier et al.
Jemma-Tiffany Rosewater et al.
Objectives: Young adult patients, particularly those with chronic and rare conditions, face unique challenges related to bias and discrimination when navigating the healthcare system. Making up a minority of individuals w...
Virtual transition education of rural adolescents with congenital heart disease: A pilot study [0.03%]
先天性心脏病农村青少年过渡期虚拟教育试点研究
R N Alyssa Chappell,R N Jody Gingrich,Jesse Batara et al.
R N Alyssa Chappell et al.
Purpose: Adolescents and young adults (AYA) living in rural communities have lower access to tertiary pediatric care than those in urban settings. However, all AYA with congenital heart disease (CHD) would benefit from tr...
Noriko Ozawa,Taiga Shibayama,Noriko Hiraga et al.
Noriko Ozawa et al.
Background: The transition from pediatric to adult-oriented healthcare is a major challenge, and adequate health literacy is essential for achieving a smooth transition. However, knowledge is scant regarding adolescents' ...
Tanisha Belton,Lane Carbaugh,Evelyn Stevens et al.
Tanisha Belton et al.
Background: Research has illuminated the challenges of recruiting and retaining adolescents and young adults (AYA) in research studies due to environmental, community, and personal factors. The Community Health Workers an...
Beth H Garland,Demonica L Jones,Cassandra J Enzler et al.
Beth H Garland et al.
Improving self-management skills for adolescents and emerging adults (AEA) with chronic health conditions is critical for successful transition to adult-based care. Peer-mentoring has been effective in improving the self-management skills o...