A Privacy Nihilist Perspective on Clinical Data Sharing: Open Clinical Data Sharing is Dead, Long Live the Walled Garden [0.03%]
临床数据共享的隐私虚无主义观点:开放式的临床数据共享已死,围墙花园万岁
Justin Starren,Luke V Rasmussen,Daniel H Schneider et al.
Justin Starren et al.
Clinical data sharing, combined with deep learning, and soon quantum computing, has the potential to radically accelerate research, improve health care, and lower costs. Unfortunately, those tools also make it much easier to use the data in...
Geographic Information Systems as Data Sharing Infrastructure for Clinical Data Warehouses [0.03%]
临床数据仓库中的地理信息系统数据共享基础设施
Daniel R Harris
Daniel R Harris
Introduction: The sharing of patient location data is heavily regulated by laws that protect patient privacy and by institutional review boards that are designed to protect the rights and wellbeing of human subjects. Pati...
Zhan Wang,Mahanaz Syed,Shorabuddin Syed et al.
Zhan Wang et al.
Introduction: A clinical data warehouse (CDW) is a powerful resource that supports clinical decision-making and secondary data use by integrating and presenting heterogeneous data sources. Despite considerable effort with...
Automating Data Entry from Electronic Health Record to Electronic Data Capture Using a Trusted Cloud-Based Application in Multisite Cancer Clinical Trials [0.03%]
基于云的多站点癌症临床试验电子病历至电子数据采集自动化应用研究
Keith Goodman,Chris Cook,Dani Weatherbee et al.
Keith Goodman et al.
Introduction: For more than two decades, researchers have sought to develop and to improve technologies to seamlessly move data from electronic health record (EHR) systems to study forms in electronic data capture (EDC) s...
Making Clinical Data Acquisition Standards Harmonization (CDASH) Electronic Case Report Forms Available on the REDCap Shared Data Instrument Library [0.03%]
临床数据采集标准统一(CDASH)电子病例报告表在REDCap共享数据仪器库中的应用
Alex C Cheng,Rhonda Facile,John Owen et al.
Alex C Cheng et al.
Introduction: A guiding principle behind the development and deployment of the REDCap data management platform has always included attention to workflow design that allows easy implementation of best practices for clinica...