Published Erratum
Ethics & human research. 2024 Jan-Feb;46(1):13. DOI:10.1002/eahr.500200 2024
Moving to the Middle Ground: Redefining Genomic Utility to Expand Understanding of Familial Benefit [0.03%]
向中间地带移动：重新定义基因组效用以扩大对家庭利益的理解
Kyle B Brothers,Greg M Cooper,Katelyn C McNamara et al.
Kyle B Brothers et al.
Translational research has tended to ignore the question of whether receiving a genomic diagnosis provides utility in community care contexts outside of doctors' offices and hospitals. However, empirical research with parents has highlighte...
Participant Misrepresentation in Online Focus Groups: Red Flags and Proactive Measures [0.03%]
在线焦点小组中的参与者不实表现：预警信号和预防措施
Lesley Andrew,Emily Gizzarelli,Mohamed Estai et al.
Lesley Andrew et al.
Covid-19 public health measures prompted a significant increase in online research. This approach has several benefits over face-to-face data-collection methods, including lower cost and wider geographical reach of participants. Yet when th...
Institutional Review Boards' Assessment of Local Context: A Mixed Methods Study [0.03%]
机构审查委员会对当地环境的评估：一项混合研究方法的研究
Timothy C Guetterman,Adrianne Haggins,Sacha Montas et al.
Timothy C Guetterman et al.
The nature of the review of local context by institutional review boards (IRBs) is vague. Requirements for single IRB review of multicenter trials create a need to better understand interpretation and implementation of local-context review ...
The Ethics of Using News Stories concerning Minors as Empirical Material in Health Research: Reflections on a Swedish Case [0.03%]
在健康研究中使用涉及未成年人的新闻故事作为经验材料的伦理问题：对一个瑞典案例的反思
Sigrid Stjernswärd,Carola Tilgmann,Stinne Glasdam
Sigrid Stjernswärd
In 2021, we were designing a research study in Sweden in which we planned to use newspaper articles focusing on children and adolescents under the age of eighteen during the Covid-19 pandemic as empirical material. As we developed this stud...
Positive and Negative Social Consequences of Participating in a Sexual-Network Study [0.03%]
参与性网络研究的正负社会后果
Morgan Spahnie,Amiah Matthews,Dale Kiss et al.
Morgan Spahnie et al.
Assessment of risks and benefits of study participation is standard practice preceding the initiation of human subjects research. Although tracking adverse events during research participation is routine, collecting information from partici...
Published Erratum
Ethics & human research. 2024 Jan-Feb;46(1):13. DOI:10.1002/eahr.500193 2024
Mark A Rothstein
Mark A Rothstein
Chatbots have become increasingly common in diverse settings as a substitute for human conversation. They are being developed and tested for obtaining informed consent for research. An initial study indicated that chatbots saved time and we...
Exclusion of Women from Phase I Trials: Perspectives from Investigators and Research Oversight Officials [0.03%]
从I期试验排除女性受试者：研究者和监管官员的视角
Margaret Waltz,Anne Drapkin Lyerly,Jill A Fisher
Margaret Waltz
Over the past 30 years, progress has been made in increasing women's representation in clinical research. However, women continue to be underrepresented in phase I clinical trials-those trials that test the safety and tolerability of invest...
Clinical Trial
Ethics & human research. 2023 Nov-Dec;45(6):19-30. DOI:10.1002/eahr.500170 2023
Ari Ne&#x;eman,Kenneth A Richman,Allison M McCarthy et al.
Ari Ne&#x;eman et al.
Autism research frequently seeks to evaluate interventions or inform their development. Unfortunately, researchers often assume that autism intervention should reduce autistic traits, effectively setting as a goal of treatment that autistic...