New Legal Measures Restricting Gender-Affirming Care: Implications for Research Ethics [0.03%]
限制性别肯定护理的新法律措施对研究伦理的含义
Robert Klitzman
Robert Klitzman
Increasingly, new legal measures are restricting the use of gender-affirming care, raising challenges not only for the medical care of transgender/gender-nonbinary individuals, but also for medical research and research ethics. These restri...
Fiona Russo,Keri Finlay,Isabella Sherburn et al.
Fiona Russo et al.
The need for community involvement in human translational research has gained international recognition, with a growing consensus on its critical role in ensuring ethical and impactful health outcomes. In Australia, several bodies are begin...
Our Theater of Anonymity [0.03%]
我们的无名时代剧场
Sara Meeder,Megan Doerr
Sara Meeder
Ethics review boards are increasingly asked to review big health data research proposals using a regulatory framework written prior to the current era of machine learning and artificial intelligence. Traditional consideration of individual ...
Reconsidering Open-Ended Consent for Biospecimen and Health Record Research in the United States and Europe [0.03%]
美国和欧洲生物标本和健康记录研究的开放式知情同意的再思考
Mark A Rothstein,Prabha Rajasekaran,Edward S Dove
Mark A Rothstein
Translational and other modern forms of biomedical research often use stored biospecimens and the health records of individuals whose biospecimens will be used in research. As part of the enrollment process for biobank-based research, indiv...
Engaging Sub-Saharan African Migrants in Social and Health Studies in Australia: Research and Ethical Challenges [0.03%]
涉及澳大利亚东道社区的社会和健康研究的伦理挑战：以撒哈拉以南非洲移民为例
Andre M N Renzaho,Michael Polonsky,Julie Green
Andre M N Renzaho
The study summarizes and discusses challenges in engaging Sub-Saharan African migrants in Australia in social and health studies using data from 15 discrete projects co-led by the three researchers who authored this article. The projects in...
Acceptability and Feasibility of Using Educational Incentives for Research Participation to Advance Antiracism [0.03%]
利用教育激励促进研究参与以推进反种族主义的可行性与可接受性
Barbara Green-Ajufo,Deepalika Chakravarty,Andres Maiorana et al.
Barbara Green-Ajufo et al.
Nominal cash and gift card incentives provided to research participants have immediate financial benefits but make no lasting improvements to participants' lives or social inequities they might experience. Our study examined the acceptabili...
Revisiting the Obligation to Share Aggregate Results with Research Participants in the Era of Open Science [0.03%]
开放科学时代背景下重新审视与研究参与者分享汇总结果的义务
Katherine E MacDuffie,Benjamin S Wilfond,Stephanie A Kraft
Katherine E MacDuffie
Open science initiatives, intended to democratize access to research products, have made steady progress in shifting the global science culture toward practices like preregistration and data sharing. However, current open science efforts ha...
Expectations, Tensions, and Brokerage: A Discourse Analysis of Community Engagement with Health Research in South Africa [0.03%]
期望，紧张和中介：南非社区参与健康研究的 discourse 分析
Sonja Klingberg,Catherine E Draper
Sonja Klingberg
Research is increasingly claimed to be done in collaboration with communities, but community members may have entirely different expectations of engagement and research participation than what typically follows the logic of academia. In Sou...
Candace D Speight,Opeolu M Adeoye,S Iris Davis et al.
Candace D Speight et al.
Lengthy consent forms are poorly suited for clinical trials in emergency contexts; however, innovations in consent processes are challenging to implement. A previously developed, context-sensitive consent form and information sheet were app...
Christine N Coughlin,Nancy M P King,Emily McEwan
Christine N Coughlin
The creation and study of brain organoids may hold significant promise for understanding brain functions, disorders, and diseases. This research may also raise novel considerations and ethical concerns, but it has significant public and pro...