Troubling Hope: Religious Faith and False Hope in Clinical Research Participants [0.03%]
困扰的希望——临床试验受试者中的宗教信仰与虚假希望
Andrea Thornton
Andrea Thornton
Much of the discussion of hope in oncology research ethics literature raises concern that hope is problematic because it indicates irrationality or misunderstanding, which makes potential research participants vulnerable to exploitation. If...
Broadening Core Research Ethics Principles: Insights from Research Conducted with Black Communities [0.03%]
扩大核心研究伦理原则的适用范围：基于黑人社区的研究见解
Johanne Jean-Pierre,Tya Collins,Khandys Agnant et al.
Johanne Jean-Pierre et al.
Drawing from a 2023 symposium panel that focused on conducting health equity research with Black communities, we propose to expand our interpretation of core research ethics principles. In light of a surge of research conducted in Black dia...
Natural Language Processing in Clinical Research Recruitment: A Scoping Review Enriched with Stakeholder Insights [0.03%]
基于利益相关者视角的自然语言处理在临床研究招募中的作用：系统综述
Lara Bernasconi,Georg Avakyan,Frédérique Hovaguimian et al.
Lara Bernasconi et al.
We conducted a scoping review to characterize natural language processing (NLP) applications in clinical trials recruitment and conducted semistructured interviews to obtain stakeholders' perspectives on these technologies, with a focus on ...
Research Participant Bill of Rights: Clarifying the Role of Research Physicians [0.03%]
关于研究对象的权利法案：澄清研究人员的职责
Mark A Rothstein
Mark A Rothstein
Physicians engaged in clinical research have dual roles as members of the research team and as physicians. Although various medical ethics codes and associated ethics opinions state that physicians have substantially similar obligations to ...
New Legal Measures Restricting Gender-Affirming Care: Implications for Research Ethics [0.03%]
限制性别肯定护理的新法律措施对研究伦理的含义
Robert Klitzman
Robert Klitzman
Increasingly, new legal measures are restricting the use of gender-affirming care, raising challenges not only for the medical care of transgender/gender-nonbinary individuals, but also for medical research and research ethics. These restri...
Fiona Russo,Keri Finlay,Isabella Sherburn et al.
Fiona Russo et al.
The need for community involvement in human translational research has gained international recognition, with a growing consensus on its critical role in ensuring ethical and impactful health outcomes. In Australia, several bodies are begin...
Our Theater of Anonymity [0.03%]
我们的无名时代剧场
Sara Meeder,Megan Doerr
Sara Meeder
Ethics review boards are increasingly asked to review big health data research proposals using a regulatory framework written prior to the current era of machine learning and artificial intelligence. Traditional consideration of individual ...
Reconsidering Open-Ended Consent for Biospecimen and Health Record Research in the United States and Europe [0.03%]
美国和欧洲生物标本和健康记录研究的开放式知情同意的再思考
Mark A Rothstein,Prabha Rajasekaran,Edward S Dove
Mark A Rothstein
Translational and other modern forms of biomedical research often use stored biospecimens and the health records of individuals whose biospecimens will be used in research. As part of the enrollment process for biobank-based research, indiv...
Engaging Sub-Saharan African Migrants in Social and Health Studies in Australia: Research and Ethical Challenges [0.03%]
涉及澳大利亚东道社区的社会和健康研究的伦理挑战：以撒哈拉以南非洲移民为例
Andre M N Renzaho,Michael Polonsky,Julie Green
Andre M N Renzaho
The study summarizes and discusses challenges in engaging Sub-Saharan African migrants in Australia in social and health studies using data from 15 discrete projects co-led by the three researchers who authored this article. The projects in...
Acceptability and Feasibility of Using Educational Incentives for Research Participation to Advance Antiracism [0.03%]
利用教育激励促进研究参与以推进反种族主义的可行性与可接受性
Barbara Green-Ajufo,Deepalika Chakravarty,Andres Maiorana et al.
Barbara Green-Ajufo et al.
Nominal cash and gift card incentives provided to research participants have immediate financial benefits but make no lasting improvements to participants' lives or social inequities they might experience. Our study examined the acceptabili...