Person-Oriented Research Ethics to Address the Needs of Participants on the Autism Spectrum [0.03%]
面向参与者的伦理研究以满足自闭症谱系参与者的需求
M Ariel Cascio,Jonathan A Weiss,Eric Racine
M Ariel Cascio
Research ethics scholarship often attends to vulnerability. People with autism may be vulnerable in research, but are also vulnerable to unjust exclusion from participation. Addressing the needs of participants with autism can facilitate in...
Published Erratum
Ethics & human research. 2020 Jul;42(4):16. DOI:10.1002/eahr.500057 2020
The Pathway Forward: Insights on Factors that Facilitate Research with Pregnant Women [0.03%]
展望未来:关于促进孕产妇研究因素的见解
Anna C Mastroianni,Robert Franceschini,Sarah L Wicks et al.
Anna C Mastroianni et al.
The near-routine exclusion of pregnant women from clinical research has resulted in evidence gaps that endanger the health of pregnant women and their future offspring. Although existing literature documents numerous obstacles along the cli...
Advantages of Using Lotteries to Select Participants for High-Demand Covid-19 Treatment Trials [0.03%]
关于高需求新冠治疗试验受试者选拔的彩票制度的优点
Alexander A Iyer,Saskia Hendriks,Annette Rid
Alexander A Iyer
As hospitals have experienced a surge of Covid-19 patients, investigators of Covid-19 treatment trials face a difficult problem: when an institution has more eligible and interested patients than trial slots, who should be enrolled? Definin...
Pregnant Women in Trials of Covid-19: A Critical Time to Consider Ethical Frameworks of Inclusion in Clinical Trials [0.03%]
新冠肺炎试验中的孕妇受试者:思考临床试验包容性伦理框架的关键时刻
Ruth Farrell,Marsha Michie,Rachel Pope
Ruth Farrell
Ethical issues abound during this unprecedented international public health crisis of Covid-19. While the trade-off between societal and individual interests that occurs at the intersection of public health ethics and clinical ethics affect...
Why Challenge Trials of SARS-CoV-2 Vaccines Could Be Ethical Despite Risk of Severe Adverse Events [0.03%]
为何新冠病毒疫苗挑战试验可能具有伦理性尽管存在发生严重不良事件的风险
Nir Eyal
Nir Eyal
Human challenge trials to test the efficacy of vaccine candidates against SARS-CoV-2, the novel coronavirus behind Covid-19, could save considerable time and many lives. But they may initially seem unethical because they expose healthy volu...
Deborah R Barnbaum
Deborah R Barnbaum
IRB Policies for Obtaining Informed Consent from Non-English-Speaking People [0.03%]
获取非英语人群知情同意的伦理审查委员会政策
Gianna McMillan
Gianna McMillan
United States regulations for the protection of human research subjects prescribe parameters for documentation of valid informed consent, which include the stipulation that the process be in a "language understandable to the subject." While...
Adolescent and Parent Perceptions about Participation in Biomedical Sexual Health Trials [0.03%]
青少年和家长对参与生物医学性健康试验的看法
Sara E Landers,Jenny K R Francis,Marilyn C Morris et al.
Sara E Landers et al.
Given the burden of HIV and other sexually transmitted infections among adolescents who are legal minors, it is critical that they be included in biomedical sexual health trials to ensure that new prevention and treatment interventions are ...
Genomics and Infectious Diseases: Expert Perspectives on Public Health Considerations regarding Actionability and Privacy [0.03%]
基因组学和传染病:关于行动性和隐私性的公共卫生行动及专家视角
Alexis Walker,Angie Boyce,Priya Duggal et al.
Alexis Walker et al.
There is growing evidence that human genetics plays a significant role in shaping human responses to infectious diseases. For instance, individuals' genetic susceptibility or resistance to infectious disease is likely to affect disease tran...