When Is a Change Significant? The Update Problem of Apps in Medical and Behavioral Research [0.03%]
变革的意义何时显现？医疗和行为研究中应用程序更新的问题
Carmel Shachar,Sara Gerke,Walker Morrell et al.
Carmel Shachar et al.
Digital applications (apps) are commonly used across the research ecosystem. While apps are frequently updated in the course of clinical and behavioral research, there is limited guidance as to when an app update should trigger action relat...
Influence of Dispositional Optimism on Ethically Salient Research Perspectives: A Pilot Study [0.03%]
dispositional optimism对伦理明显研究视角的影响：一项初步研究
Jane Paik Kim,Sangeeta Mondal,Tenzin Tsungmey et al.
Jane Paik Kim et al.
Research participants should be drawn as fairly as possible from the potential volunteer population. Underlying personality traits are underexplored as factors influencing research decision-making. Dispositional optimism, known to affect co...
Nothing about Us without Us: Inclusion and IRB Review of Mental Health Research Protocols [0.03%]
没有我们 不为我们：心理健康研究方案中的包容性和IRB审查
Ian Tully
Ian Tully
Research on mental health and illness presents a variety of unique ethical challenges. This article argues that institutional review boards (IRBs) can improve their reviews of such research by including the perspectives of individuals with ...
Kemesha Gabbidon,Tiffany Chenneville,Wendy Rote
Kemesha Gabbidon
Over the last few years, the use of dyadic research methods has expanded considerably. One area that has benefited from this type of research is the study of the family unit, particularly parent-adolescent dyads. Dyadic research allows inve...
Evaluating the Ability to Consent to Research: A Twenty-Year Track Record [0.03%]
二十年来研究同意能力的评估效力：二十年的经验教训
Mikaela Matera-Vatnick,Katherine W Todman,Paul G Wakim et al.
Mikaela Matera-Vatnick et al.
Occasionally, the ability of prospective research participants to consent may be uncertain. Yet standardized capacity-assessment tools may not suffice to determine the ability to consent to a particular research protocol. This study consist...
Getting the Most out of Consent: Patient-Centered Consent for an Acute Stroke Trial [0.03%]
最大化利用知情同意表：急性卒中试验中的以患者为中心的知情同意表
Neal W Dickert,Kathleen Metz,S Iris Deeds et al.
Neal W Dickert et al.
Informed consent for clinical trials in acute stroke is characterized by challenges related to urgency, cognitive impairment, and geographical separation. Context-appropriate approaches are needed for this setting. We conducted a mixed-meth...
Multicenter Study
Ethics & human research. 2022 Mar;44(2):33-40. DOI:10.1002/eahr.500122 2022
Institutional Review Board Use of Outside Experts: What Do We Know? [0.03%]
关于机构审查委员会使用外部专家的情况：我们了解多少？
Kimberley Serpico,Vasiliki Rahimzadeh,Emily E Anderson et al.
Kimberley Serpico et al.
Institutional review boards (IRBs) are permitted by regulation to seek assistance from outside experts when reviewing research applications that are beyond the scope of expertise represented in their membership. There is insufficient unders...
Therapeutic Misconception about Research Procedures: Does a Simple Information Chart Improve Understanding? [0.03%]
对研究程序的治疗误解——简易信息图表能改善知情同意理解吗？
Gavin Campbell,Margie D Dixon,Minisha Lohani et al.
Gavin Campbell et al.
In phase I trials, some biospecimens are used both for research and patient care and some for research only. Some research participants have therapeutic misconception, assuming all biospecimens are for patient care. This study's aim was to ...
Research Documents for Populations with Limited English Proficiency: Translation Approaches Matter [0.03%]
有限英语 proficiency人群的研究文件：翻译方法很重要
Sonia Colina,Miriam Rodríguez-Guerra,Nicole Marrone et al.
Sonia Colina et al.
To avoid excluding individuals with limited English proficiency from participating in research, the consent form and other documents should be presented to them in their primary language and in a format that is understandable. However, evid...
Biobank Participants' Attitudes toward Requiring Understanding for Biobank Consent [0.03%]
生物库受试者对生物库知情同意要求理解的态度
T J Kasperbauer,Colin Halverson,Abigail Garcia et al.
T J Kasperbauer et al.
Biobank participants often do not understand the information they are provided during the informed consent process. Ethicists and other stakeholders have disagreed, however, on the appropriate response to these failures in understanding. Th...