Evaluation of the construct validity of the Michigan Fatigability Index (MIFI) short forms: a cross-sectional survey study [0.03%]
密歇根疲乏指数(MIFI)简表构建效度的评价：横断面调查研究
Anna Kratz,Noelle Carlozzi,Susan Murphy et al.
Anna Kratz et al.
Background: The Michigan Fatigability Index (MIFI) is a patient reported outcome (PRO) measure that was developed in people with multiple sclerosis (MS) or fibromyalgia (FM). The MIFI consists of three items banks and cor...
Correlation of parent-reported physical health-related quality-of-life with quantitatively measured physical function of former critically ill children [0.03%]
重症儿童出院后的身体健康相关生活质量与其定量测定的物理功能的相关性研究
Nazlı Umman Serin,Jan Gunst,Fabian Güiza et al.
Nazlı Umman Serin et al.
Burden and disutility of sleep disturbance and early morning OFF symptoms in people with advancing Parkinson's disease: a vignette-based approach using the EQ-5D-5L [0.03%]
基于EQ-5D-5L的简图方法评估帕金森病进展患者的睡眠障碍和清晨运动功能受损症状的疾病负担及不利因素
Josefa Domingos,Pablo Arija,Irene A Malaty et al.
Josefa Domingos et al.
From participants to partners: a strategy for establishing a national consumer fellow to lead the co-design of maternity patient-reported experience measures (PREMs) and patient-reported outcome measures (PROMs) [0.03%]
从参与者到合作伙伴：建立国家消费者研究员领导的产妇患者报告体验测量（PREMs）和患者报告结果测量（PROMs）协同设计策略
Karen Schlage,Lauren C Spark,Emily J Callander et al.
Karen Schlage et al.
A mixed methods study on patients' and healthcare professionals' understanding of the graphical presentation of patient-reported outcome data at an inpatient unit for psychosomatic medicine [0.03%]
心理生理医学住院部患者和医务人员对图形化展示的患者报告结果数据的理解——定性和定量相结合的方法研究
Anna Margarete Maria Thurner,Jonas Egeter,Franziska Gross et al.
Anna Margarete Maria Thurner et al.
Associations between ischaemic stroke subtypes and physical functioning in the first year post-stroke: a patient-reported outcome study [0.03%]
缺血性卒中亚型与卒中后一年内患者身体功能恢复状况的关联性研究
Tim Hagleitner,Dennis Freuer,Michael Ertl et al.
Tim Hagleitner et al.
Background: Ischaemic stroke etiology, as defined by the Trial of Org 10172 in Acute Stroke Treatment (TOAST) classification, has been associated with differences in survival and functional outcomes when assessed using th...
Missing data considerations for patient reported outcome measures in randomized controlled trials [0.03%]
随机对照试验中患者报告结果测量的缺失数据问题
Fan Wang,Shenran Deng,Jing Sun et al.
Fan Wang et al.
Kevin Weinfurt
Kevin Weinfurt
This commentary consists of edited remarks made by the author upon receipt of the 2025 International Society for Quality of Life Research President’s Award. The field of health measurement/quality-of-life research is viewed as a house in w...
Estimating health-state utility values for family-caregivers of patients with Duchenne muscular dystrophy using time trade-off valuation [0.03%]
采用时间交易评估法估算杜氏肌营养不良症患者家属照护者的健康状态效用值
Oktawia Borecka,Samuel Llewellyn,Ione Woollacott et al.
Oktawia Borecka et al.
Objectives: Duchenne muscular dystrophy (DMD) is a rare, progressive neuromuscular disease. Long-term care is primarily provided by unpaid family-caregivers. This time trade-off (TTO) study aimed to generate family-caregi...
Health-related quality of life of older adults residing in social housing: a cross-sectional descriptive study using the EQ-5D-5L [0.03%]
机构养老的老年人生活质量及相关因素研究——采用EQ-5D-5L量表的横断面调查描述性研究
Gina Agarwal,Sahar Popal,Francine Marzanek et al.
Gina Agarwal et al.