Evaluating different scoring algorithms to assess communication ability for individuals living with Angelman syndrome: the Observer-Reported Communication Ability (ORCA) measure [0.03%]
评估天使人综合症患者的交流能力：不同评分算法的评价及交流能力报告措施（ORCA量表）
Bryce B Reeve,Li Lin,Abigail Rader et al.
Bryce B Reeve et al.
Background: Many neurodevelopmental disorders are associated with significantly impaired communication that impacts the individuals and their families' daily activities. The objective of this study is to evaluate the effe...
Assessing the reliability and validity of the Italian EQ-5D-5 L in multiple sclerosis: a cross-sectional study [0.03%]
意大利语EQ-5D-5L在多发性硬化症患者中可靠性和有效性的评估：横断面研究
Giovanni Sellitto,Elisa Simonazzi,Francescaroberta Panuccio et al.
Giovanni Sellitto et al.
Background: Multiple Sclerosis (MS) significantly affects physical, cognitive, and psychosocial functioning, leading to impaired Health-Related Quality of Life (HRQoL). The EQ-5D-5 L is a widely used generic patient-repor...
The hidden cost of patient feedback: analysis of a decade of NHS expenditure on orthopaedic PROMs [0.03%]
英国国家医疗服务体系十年来骨科PROMs支出的分析
Patrick Cook,Mohammad Alhashash,Christopher Wakeling
Patrick Cook
Health-related quality of life (HRQoL) of women with breast cancer undergoing treatment in a tertiary care centre in India [0.03%]
印度三级医疗中心接受治疗的乳腺癌女性患者的生命质量研究
Abhilash Patra,Shona Nag,Shriniwas Subhash Kulkarni et al.
Abhilash Patra et al.
Exploring US patient and caregiver perspectives on burden associated with Friedreich Ataxia [0.03%]
探索美国患者和护理人员对弗里德希共济病负担的观点
Richard Lawson,Shobhana Natarajan,Julia R Correll et al.
Richard Lawson et al.
Background: Friedreich ataxia (FA) is a hereditary degenerative disease with clinical manifestations in multiple organs characterized by progressive gait and limb ataxia. Qualitative interviews were conducted with patient...
Validation of the fear of cancer recurrence inventory-short form in long-term colorectal cancer survivors [0.03%]
结直肠癌幸存者长期随访中癌症复发恐惧量表简版的有效性验证研究
Katrine Ingeman,Tina Birgitte Wisbech Carstensen,Allan Ben Smith et al.
Katrine Ingeman et al.
A move toward patient dissatisfaction? A critical review of the disproportionate focus on patient satisfaction compared to dissatisfaction [0.03%]
走向患者不满？对过分关注患者满意度而非不满的批判性回顾
Henrik Pedersen,Jonas Vaag,Audun Havnen et al.
Henrik Pedersen et al.
Identifying aspects of palliative and end-of-life care that are most important to people with lived experience and can be measured using routine data: a series of patient and public involvement workshops [0.03%]
识别姑息治疗和临终护理的重要方面：一系列患者及公众参与工作坊
Lesley E Williamson,Georgina Macdonald,Joanna M Davies et al.
Lesley E Williamson et al.
Cross-cultural translation and content validity of the Determinants of Physical Activity Questionnaire (DPAQ) in a Dutch stroke rehabilitation population and their peers without stroke [0.03%]
跨文化视角下荷兰卒中康复人群及非卒中同龄人身体活动影响因素调查问卷的信效度研究
Desi C M Stokman-Meiland,Aleid de Rooij,Natalie Taylor et al.
Desi C M Stokman-Meiland et al.