The Road to Hell Winds On: The High Administrative Burden of Maintaining Linked National Health Data [0.03%]
通向地狱的路还在延伸：维持国家健康数据连接性的高行政负担
Julie A Taylor,Christina Pagel,Ferran Espuny Pujol et al.
Julie A Taylor et al.
Introduction: Data linkage studies generate opportunities to answer important health questions, but are also notoriously time consuming, with delays accessing data lasting years. Previously we described our experience of ...
Data resource profile: Transforming Outcomes through Research in Cancer Healthcare in Victoria (TORCH-VIC) [0.03%]
数据资源简介：维多利亚癌症医疗服务研究转化成果（TORCH-VIC）
Fanny Franchini,Karen Trapani,Jennifer Soon et al.
Fanny Franchini et al.
Introduction: The Transforming Outcomes through Research in Cancer Healthcare in Victoria (TORCH-VIC) is a comprehensive population-based cohort that links cancer diagnoses recorded in the Victorian Cancer Registry with a...
E-Research Institutional Cloud Architecture (ERICA): An Orchestration Meta-Framework for Establishing Trusted Research Environments Using Public Cloud Computing [0.03%]
基于公共云计算建立可信研究环境的机构云架构(EIFCIA)的编排元框架
Timothy R Churches,Richard Green,Phi Bang Nguyen et al.
Timothy R Churches et al.
Introduction: The E-Research Institutional Cloud Architecture (ERICA) is a code-driven orchestration framework that automates the configuration and management of Amazon Web Services (AWS) resources to provide trusted rese...
Putting Voluntary, Charity, and Social Enterprise (VCSE) Organisations at the Heart of Research: Creating a Northern Ireland VCSE Research Directory [0.03%]
以自愿、慈善和社区组织为核心开展研究：创建北爱尔兰的自愿、慈善和社会企业（VCSE）研究目录
Eric Spikol,Enya Redican,Orla McBride et al.
Eric Spikol et al.
Introduction: Voluntary, community, and social enterprise (VCSE) organisations provide vital public services, support, and information while promoting and sustaining community cohesion. These organisations should be at th...
Cohort profile: Creation of an e-cohort to Address the Evaluation of Population Secondary Prevention Quality and Outcomes Post-Stroke (ESP-QOPS) in Wales [0.03%]
队列概况：在威尔士建立电子队列以评估卒中后人群二级预防质量及预后（ESP-QOPS）
Daniel King,Elizabeth A Ellins,Hywel T Evans et al.
Daniel King et al.
Purpose: Secondary prevention of stroke requires effective cardiovascular risk factor (RF) management, including blood pressure control, lipid lowering treatment and antithrombotic therapy to reduce the risk of recurrent ...
Outcomes for Early Years' Children in Contact with Social Services in Northern Ireland: A Data Linkage Study Protocol [0.03%]
北爱尔兰与社会服务有接触的幼儿结局：数据关联研究方案
Rachel Leonard,Lisa Bunting
Rachel Leonard
Introduction: Children's social care involvement in the early years has significant implications for child development and family wellbeing. While previous research has highlighted associations between deprivation and chi...
Residential mobility and receipt of measles, mumps and rubella vaccination: analysis of linked primary care electronic health records in a London region [0.03%]
基于伦敦地区初级保健电子健康记录的居民流动性与麻腮风三联疫苗接种之间的关系分析
Nicola Firman,Laura North,Milena Marszalek et al.
Nicola Firman et al.
Background: Residential mobility in early life may disrupt access to health care. We examined associations between residential mobility in the first two years of life and receipt of first measles, mumps and rubella (MMR) ...
Enabling the analysis of patient-level data across jurisdictions for research use: a real-world exploration of a federated likelihood approach [0.03%]
跨辖区启用患者级数据研究使用的分析：联合概率方法的现实世界探索
Megan Harmon,Na Li,Tolulope Sajobi et al.
Megan Harmon et al.
Introduction: The disclosure of health data is governed by strict privacy regulations which significantly restrict the transfer of data across jurisdictions. These limitations restrict the scope of health research, partic...
A Landscape Overview of Integrated Data Systems Funding and Staffing Models Across the U.S [0.03%]
美国综合数据系统资金和人员配置模式概述
Amy Hawn Nelson,Sharon Zanti,Rebecca S Pepe et al.
Amy Hawn Nelson et al.
Introduction: Funding and staffing structures for data sharing and integration vary widely across the U.S., with few recommendations for optimal resource allocation. ...
Data Resource Profile: The Age-It Family Demography Survey (Age-It FDS) [0.03%]
数据资源简介：老龄化及其影响家庭人口调查（Age-It FDS）
Daniele Vignoli,Elisa Brini,Raffaele Guetto et al.
Daniele Vignoli et al.
Introduction: Italy has recently witnessed profound transformations in family dynamics, including delayed union formation, rising cohabitation, increasing relationship instability, and postponed parenthood. These shifts h...