Community Engagement in Precision Medicine Research: Organizational Practices and Their Impacts for Equity [0.03%]
精准医学研究中的社区参与：组织实践及其公平性影响
Janet K Shim,Nicole Foti,Emily Vasquez et al.
Janet K Shim et al.
Background: In the wake of mandates for biomedical research to increase participation by members of historically underrepresented populations, community engagement (CE) has emerged as a key intervention to help achieve th...
How Interactive Visualizations Compare to Ethical Frameworks as Stand-Alone Ethics Learning Tools for Health Researchers and Professionals [0.03%]
交互式可视化和道德框架作为独立的伦理学习工具在健康研究人员和专业人员中的比较分析
Joanna Sleigh,Kelly Ormond,Manuel Schneider et al.
Joanna Sleigh et al.
Background: Despite the bourgeoning of digital tools for bioethics research, education, and engagement, little research has empirically investigated the impact of interactive visualizations as a way to translate ethical f...
Randomized Controlled Trial
AJOB empirical bioethics. 2023;14(4):197-207. DOI:10.1080/23294515.2023.2201479 2023
Colin Eversmann,Ayush Shah,Christos Lazaridis et al.
Colin Eversmann et al.
Background: There is lack of consensus in the bioethics literature regarding the use of cardiopulmonary resuscitation (CPR) for organ-preserving purposes. In this study, we assessed the perspectives of clinicians in criti...
A Cross Sectional Survey of Recruitment Practices, Supports, and Perceived Roles for Unaffiliated and Non-scientist Members of IRBs [0.03%]
一项关于伦理审查委员会招募惯例、支持和非附属成员以及非科学家成员的感知角色的横断面调查研究
Stuart G Nicholls,Holly A Taylor,Richard James et al.
Stuart G Nicholls et al.
Background: Institutional Review Boards (IRBs) are federally mandated to include both nonscientific and unaffiliated representatives in their membership. Despite this, there is no guidance or policy on the selection of un...
"It was like you were being literally punished for getting sick": formerly incarcerated people's perspectives on liberty restrictions during COVID-19 [0.03%]
“生病就等于受罚”——新冠肺炎疫情期间美国前犯人的自由限制问题
Minna Song,Camille T Kramer,Carolyn B Sufrin et al.
Minna Song et al.
Background: COVID-19 has greatly impacted the health of incarcerated individuals in the US. The goal of this study was to examine perspectives of recently incarcerated individuals on greater restrictions on liberty to mit...
Ensuring the Scientific Value and Feasibility of Clinical Trials: A Qualitative Interview Study [0.03%]
确保临床试验的科学价值和可行性：一项定性访谈研究
Walker Morrell,Luke Gelinas,Deborah Zarin et al.
Walker Morrell et al.
Background: Ethical and scientific principles require that clinical trials address an important question and have the resources needed to complete the study. However, there are no clear standards for review that would ens...
Offering and Returning Secondary Findings in the Context of Exome Sequencing for Hearing Loss: Clinicians' Views and Experiences [0.03%]
在听力损失外显子测序背景下提供和反馈二级研究发现：临床医生的观点和经验
Lauren Notini,Clara Gaff,Julian Savulescu et al.
Lauren Notini et al.
Background: There is ongoing debate regarding whether and under which circumstances secondary findings (SF) should be offered in the pediatric context. Although studies have examined patient perspectives on receiving SF, ...
A Critical Analysis of White Racial Framing and Comfort with Medical Research [0.03%]
白人种族框架及其对医学研究的舒适度的批判性分析
Paige Nong,Melissa Creary,Jodyn Platt et al.
Paige Nong et al.
Objective: Analyze racial differences in comfort with medical research using an alternative to the traditional approach that treats white people as a raceless norm. ...
A Content Analysis of Self-Reported Financial Relationships in Biomedical Research [0.03%]
生物医学研究中自报的经济利益关系的内容分析
S Scott Graham,Nandini Sharma,Martha S Karnes et al.
S Scott Graham et al.
Introduction: Financial conflicts of interest (fCOI) present well documented risks to the integrity of biomedical research. However, few studies differentiate among fCOI types in their analyses, and those that do tend to ...
Erica K Salter,Jay R Malone,Amanda Berg et al.
Erica K Salter et al.
Objectives: To characterize the prevalence and content of pediatric triage policies. Methods: We surveyed and solicited policies from U...