Views of Genetic Testing for Autism Among Autism Self-Advocates: A Qualitative Study [0.03%]
孤独症谱系成人患者对基因检测的看法：一项质性研究
Robert Klitzman,Ekaterina Bezborodko,Wendy K Chung et al.
Robert Klitzman et al.
Background: Autism self-advocates' views regarding genetic tests for autism are important, but critical questions about their perspectives arise. Methods:...
The Gap in Attitudes Toward Withholding and Withdrawing Life-Sustaining Treatment Between Japanese Physicians and Citizens [0.03%]
日本医师与民众对拒绝和撤回生命维持治疗态度差距的研究
Yoshiyuki Takimoto,Tadanori Nabeshima
Yoshiyuki Takimoto
Background: According to some medical ethicists and professional guidelines, there is no ethical difference between withholding and withdrawing life-sustaining treatment. However, medical professionals do not always agree...
Public Perspectives on Investigative Genetic Genealogy: Findings from a National Focus Group Study [0.03%]
公众对调查性遗传家谱学的看法——一项全国焦点小组研究的结果
Jacklyn Dahlquist,Jill O Robinson,Amira Daoud et al.
Jacklyn Dahlquist et al.
Background: Investigative genetic genealogy (IGG) is a technique that involves uploading genotypes developed from perpetrator DNA left at a crime scene, or DNA from unidentified remains, to public genetic genealogy databa...
Ariadne A Nichol,Meghan Halley,Carole Federico et al.
Ariadne A Nichol et al.
Background: Machine learning (ML) is utilized increasingly in health care, and can pose harms to patients, clinicians, health systems, and the public. In response, regulators have proposed an approach that would shift mor...
Patient Perceptions on the Advancement of Noninvasive Prenatal Testing for Sickle Cell Disease among Black Women in the United States [0.03%]
美国黑人妇女对非侵入性产前检测在镰状细胞疾病中应用进步的患者看法
Shameka P Thomas,Faith E Fletcher,Rachele Willard et al.
Shameka P Thomas et al.
Background: Noninvasive prenatal testing (NIPT) designed to screen for fetal genetic conditions, is increasingly being implemented as a part of routine prenatal care screening in the United States (US). However, these adv...
Parents and Provider Perspectives on the Return of Genomic Findings for Cleft Families in Africa [0.03%]
非洲唇裂家庭中基因组发现反馈的家长和医疗服务人员的观点
Abimbola M Oladayo,Sydney Prochaska,Tamara Busch et al.
Abimbola M Oladayo et al.
Background: Inadequate knowledge among health care providers (HCPs) and parents of affected children limits the understanding and utility of secondary genetic findings (SFs) in under-represented populations in genomics re...
Ramya M Rajagopalan,Julie Cakici,Cinnamon S Bloss
Ramya M Rajagopalan
How Do Molecular Systems Engineering Scientists Frame the Ethics of Their Research? [0.03%]
分子系统工程科学家如何界定其研究的伦理？
Renan Gonçalves Leonel da Silva,Alessandro Blasimme,Effy Vayena et al.
Renan Gonçalves Leonel da Silva et al.
Background: There are intense discussions about the ethical and societal implications of biomedical engineering, but little data to suggest how scientists think about the ethics of their work. The aim of this study is to ...
The Need to Consider Context: A Systematic Review of Factors Involved in the Consent Process for Genetic Tests from the Perspective of Patients [0.03%]
考虑背景的需要：从患者的角度系统地回顾遗传测试同意过程中涉及的因素
Frédéric Coulombe,Anne-Marie Laberge
Frédéric Coulombe
Background: Informed consent for genetic tests is a well-established practice. It should be based on good quality information and in keeping with the patient's values. Existing informed consent assessment tools assess knowledge and values. ...
Structural Equation Modeling Analysis on Associations of Moral Distress and Dimensions of Organizational Culture in Healthcare: A Cross-Sectional Study of Healthcare Professionals [0.03%]
道德困境和组织文化维度之间关系的结构方程模型分析：一项针对医疗卫生专业人员的横断面研究
Tessy A Thomas,Shelley Kumar,F Daniel Davis et al.
Tessy A Thomas et al.
Objective: Moral distress is a complex phenomenon experienced by healthcare professionals. This study examined the relationships between key dimensions of Organizational Culture in Healthcare (OCHC)-perceived psychologica...