How Do Molecular Systems Engineering Scientists Frame the Ethics of Their Research? [0.03%]
分子系统工程科学家如何界定其研究的伦理？
Renan Gonçalves Leonel da Silva,Alessandro Blasimme,Effy Vayena et al.
Renan Gonçalves Leonel da Silva et al.
Background: There are intense discussions about the ethical and societal implications of biomedical engineering, but little data to suggest how scientists think about the ethics of their work. The aim of this study is to ...
The Need to Consider Context: A Systematic Review of Factors Involved in the Consent Process for Genetic Tests from the Perspective of Patients [0.03%]
考虑背景的需要：从患者的角度系统地回顾遗传测试同意过程中涉及的因素
Frédéric Coulombe,Anne-Marie Laberge
Frédéric Coulombe
Background: Informed consent for genetic tests is a well-established practice. It should be based on good quality information and in keeping with the patient's values. Existing informed consent assessment tools assess knowledge and values. ...
Structural Equation Modeling Analysis on Associations of Moral Distress and Dimensions of Organizational Culture in Healthcare: A Cross-Sectional Study of Healthcare Professionals [0.03%]
道德困境和组织文化维度之间关系的结构方程模型分析：一项针对医疗卫生专业人员的横断面研究
Tessy A Thomas,Shelley Kumar,F Daniel Davis et al.
Tessy A Thomas et al.
Objective: Moral distress is a complex phenomenon experienced by healthcare professionals. This study examined the relationships between key dimensions of Organizational Culture in Healthcare (OCHC)-perceived psychologica...
Morally Problematic Situations Encountered by Adults Living With Rare Diseases [0.03%]
罕见病成人患者面临道德困境的情形研究
Ariane Quintal,Élissa Hotte,Annie-Danielle Grenier et al.
Ariane Quintal et al.
Background: Rare diseases are generally poorly understood from scientific and medical standpoints due, to their complexity and low prevalence. As a result, individuals living with rare diseases struggle to obtain timely d...
Clinician Perspectives on Opioid Treatment Agreements: A Qualitative Analysis of Focus Groups [0.03%]
阿片类药物治疗协议的临床医生观点：焦点小组的定性分析
Nathan Richards,Martin Fried,Larisa Svirsky et al.
Nathan Richards et al.
Background: Patients with chronic pain face significant barriers in finding clinicians to manage long-term opioid therapy (LTOT). For patients on LTOT, it is increasingly common to have them sign opioid treatment agreemen...
Interrogating the Value of Return of Results for Diverse Populations: Perspectives from Precision Medicine Researchers [0.03%]
精准医疗研究人员关于面向多样性人群的成果汇报价值的见解
Caitlin E McMahon,Nicole Foti,Melanie Jeske et al.
Caitlin E McMahon et al.
Background: Over the last decade, the return of results (ROR) in precision medicine research (PMR) has become increasingly routine. Calls for individual rights to research results have extended the "duty to report" from c...
Informed Consent among Clinical Trial Participants with Different Cancer Diagnoses [0.03%]
不同癌症诊断的临床试验参与者之间的知情同意书
Connie M Ulrich,Sarah J Ratcliffe,Camille J Hochheimer et al.
Connie M Ulrich et al.
Importance: Informed consent is essential to ethical, rigorous research and is important to recruitment and retention in cancer trials. Objective: ...
Should HIV Vaccines Be Made Available at No or Subsidized Cost? A Qualitative Inquiry of HIV Vaccine Trial Stakeholders in Tanzania [0.03%]
坦桑尼亚HIV疫苗受试者的定性研究：HIV疫苗应免费或补贴提供吗？
Godwin Pancras,Mangi Ezekiel,Erasto Mbugi et al.
Godwin Pancras et al.
Background: The world has come closer than ever to discovering a viable HIV vaccine. However, it remains less certain whether HIV vaccines should be made available to participants and communities in which trials are run n...
Multi-Level Ethical Considerations of Artificial Intelligence Health Monitoring for People Living with Parkinson's Disease [0.03%]
针对帕金森病患者的人工智能健康监测的多层级伦理考量
Anita Ho,Itai Bavli,Ravneet Mahal et al.
Anita Ho et al.
Artificial intelligence (AI) has garnered tremendous attention in health care, and many hope that AI can enhance our health system's ability to care for people with chronic and degenerative conditions, including Parkinson's Disease (PD). Th...
Toward Consent in Molecular HIV Surveillance?: Perspectives of Critical Stakeholders [0.03%]
迈向分子HIV监测的知情同意？关键利益攸关方的观点
Stephen Molldrem,Anthony K J Smith,Vishnu Subrahmanyam
Stephen Molldrem
Background: The emergence of molecular HIV surveillance (MHS) and cluster detection and response (CDR) programs as key features of the United States (US) HIV strategy since 2018 has caused major controversies. HIV surveil...