Jason Adam Wasserman,Amelia N Najor,Natalie Liogas et al.
Jason Adam Wasserman et al.
Background: This study assesses how pediatric assent is conceptualized and justified within the therapeutic context. Pediatric ethicists generally agree that children should participate in medical care decisions in develo...
Ethical Issues in Implementation Science: A Qualitative Interview Study of Participating Clinicians [0.03%]
实施科学中的伦理问题——参与医师的定性访谈研究
Justin T Clapp,Naomi Zucker,Olivia K Hernandez et al.
Justin T Clapp et al.
Background: Implementation science presents ethical issues not well addressed by traditional research ethics frameworks. There is little empirical work examining how clinicians whose work is affected by implementation stu...
"Down Syndrome is Not a Curse": parent Perspectives on the Medicalization of Down Syndrome [0.03%]
唐氏综合症不是诅咒——唐氏综合症医学化的父母观点
Kirsten A Riggan,Marsha Michie,Megan Allyse
Kirsten A Riggan
Background: Potential clinical interventions to mitigate or eliminate symptoms of Down syndrome (DS) continue to be an active area of pre-clinical and clinical research. However, views of members of the DS community have ...
Correction [0.03%]
改正方针
Published Erratum
AJOB empirical bioethics. 2024 Oct-Dec;15(4):347. DOI:10.1080/23294515.2024.2384342 2024
To Counsel or Not to Counsel: Physician Attitudes and Experiences with Do-It-Yourself (DIY) Fecal Microbiota Transplant (FMT) [0.03%]
劝还是不劝？医师对于 DIY 式粪菌移植的态度和经验
Susannah F Colt,Rebekah J Choi,Anna Wexler
Susannah F Colt
Background: In the early 2010s, a phenomenon known as do-it-yourself (DIY) fecal microbiota transplant (FMT) emerged as lay individuals began self-administering FMTs at home. Although prior research indicates that many in...
"Ethical Responsibility Very Often Gets Drowned Out": A Qualitative Interview Study of Genome Scientists' and ELSI Scholars' Perspectives on the Role and Relevance of ELSI Expertise [0.03%]
“伦理责任常常被淹沒”：基因组科学家和生命伦理专家关于生命伦理学研究视角的定性研究报告
Daphne O Martschenko,Anna Granucci,Mildred K Cho
Daphne O Martschenko
Background: Genome scientists and Ethical, Legal, and Social Implications of genetics (ELSI) scholars commonly inhabit distinct research cultures - utilizing different research methods, asking different research questions...
Understanding the Gap: A Cross-Sectional Survey of ELSI Scholars' Dissemination Practices and Translation Goals [0.03%]
理解差距：一项关于ELSIA学者传播实践和转化目标的横断面调查研究
Deanne Dunbar Dolan,Rachel H Lee,Mildred K Cho et al.
Deanne Dunbar Dolan et al.
Background: Researchers engaged in the study of the ethical, legal, and social implications (ELSI) of genetics and genomics are often publicly funded and intend their work to be in the public interest. These features of U...
Spotlighting Structural Constraints on Decisions About Participation in Genomic and Precision Medicine [0.03%]
聚焦于基因组和精准医学参与决策的结构性约束条件分析
Deanne Dunbar Dolan,Mildred K Cho,Sandra Soo-Jin Lee
Deanne Dunbar Dolan
Advance Medical Decision-Making Differs Across First- and Third-Person Perspectives [0.03%]
第一人称和第三人称视角下的预先医疗决策存在差异
James Toomey,Jonathan Lewis,Ivar R Hannikainen et al.
James Toomey et al.
Background: Advance healthcare decision-making presumes that a prior treatment preference expressed with sufficient mental capacity ("T1 preference") should trump a contrary preference expressed after significant cognitiv...
Procedural Dimensions of Religious Exemptions to Covid-19 Vaccine Mandates: Promoting Clarity, Fairness, and Transparency in Applications [0.03%]
新冠疫苗强制接种中的宗教豁免的程序维度：促进申请的明确性、公平性和透明度
Hajung Lee
Hajung Lee
This study examines the procedural ethical considerations surrounding religious exemptions to Covid vaccine mandates, specifically focusing on immigrant healthcare personnel (HCP) and HCPs of color. It emphasizes communication issues with a...