Spotlighting Structural Constraints on Decisions About Participation in Genomic and Precision Medicine [0.03%]
聚焦于基因组和精准医学参与决策的结构性约束条件分析
Deanne Dunbar Dolan,Mildred K Cho,Sandra Soo-Jin Lee
Deanne Dunbar Dolan
Advance Medical Decision-Making Differs Across First- and Third-Person Perspectives [0.03%]
第一人称和第三人称视角下的预先医疗决策存在差异
James Toomey,Jonathan Lewis,Ivar R Hannikainen et al.
James Toomey et al.
Background: Advance healthcare decision-making presumes that a prior treatment preference expressed with sufficient mental capacity ("T1 preference") should trump a contrary preference expressed after significant cognitiv...
Procedural Dimensions of Religious Exemptions to Covid-19 Vaccine Mandates: Promoting Clarity, Fairness, and Transparency in Applications [0.03%]
新冠疫苗强制接种中的宗教豁免的程序维度：促进申请的明确性、公平性和透明度
Hajung Lee
Hajung Lee
This study examines the procedural ethical considerations surrounding religious exemptions to Covid vaccine mandates, specifically focusing on immigrant healthcare personnel (HCP) and HCPs of color. It emphasizes communication issues with a...
Views of Genetic Testing for Autism Among Autism Self-Advocates: A Qualitative Study [0.03%]
孤独症谱系成人患者对基因检测的看法：一项质性研究
Robert Klitzman,Ekaterina Bezborodko,Wendy K Chung et al.
Robert Klitzman et al.
Background: Autism self-advocates' views regarding genetic tests for autism are important, but critical questions about their perspectives arise. Methods:...
The Gap in Attitudes Toward Withholding and Withdrawing Life-Sustaining Treatment Between Japanese Physicians and Citizens [0.03%]
日本医师与民众对拒绝和撤回生命维持治疗态度差距的研究
Yoshiyuki Takimoto,Tadanori Nabeshima
Yoshiyuki Takimoto
Background: According to some medical ethicists and professional guidelines, there is no ethical difference between withholding and withdrawing life-sustaining treatment. However, medical professionals do not always agree...
Public Perspectives on Investigative Genetic Genealogy: Findings from a National Focus Group Study [0.03%]
公众对调查性遗传家谱学的看法——一项全国焦点小组研究的结果
Jacklyn Dahlquist,Jill O Robinson,Amira Daoud et al.
Jacklyn Dahlquist et al.
Background: Investigative genetic genealogy (IGG) is a technique that involves uploading genotypes developed from perpetrator DNA left at a crime scene, or DNA from unidentified remains, to public genetic genealogy databa...
Ariadne A Nichol,Meghan Halley,Carole Federico et al.
Ariadne A Nichol et al.
Background: Machine learning (ML) is utilized increasingly in health care, and can pose harms to patients, clinicians, health systems, and the public. In response, regulators have proposed an approach that would shift mor...
Patient Perceptions on the Advancement of Noninvasive Prenatal Testing for Sickle Cell Disease among Black Women in the United States [0.03%]
美国黑人妇女对非侵入性产前检测在镰状细胞疾病中应用进步的患者看法
Shameka P Thomas,Faith E Fletcher,Rachele Willard et al.
Shameka P Thomas et al.
Background: Noninvasive prenatal testing (NIPT) designed to screen for fetal genetic conditions, is increasingly being implemented as a part of routine prenatal care screening in the United States (US). However, these adv...
Parents and Provider Perspectives on the Return of Genomic Findings for Cleft Families in Africa [0.03%]
非洲唇裂家庭中基因组发现反馈的家长和医疗服务人员的观点
Abimbola M Oladayo,Sydney Prochaska,Tamara Busch et al.
Abimbola M Oladayo et al.
Background: Inadequate knowledge among health care providers (HCPs) and parents of affected children limits the understanding and utility of secondary genetic findings (SFs) in under-represented populations in genomics re...
Ramya M Rajagopalan,Julie Cakici,Cinnamon S Bloss
Ramya M Rajagopalan