'An Unimaginable Challenge': A Cross-Cultural Qualitative Study of Ethics and Decision-Making Around Tracheostomy Ventilation in Patients with Amyotrophic Lateral Sclerosis [0.03%]
《无法想象的挑战》：关于肌萎缩性侧索硬化症患者的气管切开通气的伦理和决策的跨文化定性研究
Reina Ozeki-Hayashi,Dominic J C Wilkinson
Reina Ozeki-Hayashi
Background: The rate of tracheostomy with invasive ventilation (TIV) for patients with Amyotrophic Lateral Sclerosis (ALS) varies widely. Previous studies have shown that doctors' values may affect decision-making. There ...
Is It a Bribe? Research Personnels' Perceptions of the Ethical Aspects of Financial Compensation to Healthy Volunteers in Prevention Trials in Tanzania [0.03%]
这是一种贿赂吗？关于坦桑尼亚预防试验中对健康志愿者的经济补偿的伦理问题，研究人员认为这是什么看法？
Raymond Athanas,Gasto Frumence,Rebecca J DeBoer et al.
Raymond Athanas et al.
Background: Financial compensation may be perceived as a catalyst to increase the recruitment and retention of healthy volunteers in clinical trials but also potentially as a form of undue inducement. The ethical guidelin...
Family Presence in Pediatric Cardiac Procedural Settings: A Qualitative Study of Clinicians, A Key Stakeholder Group [0.03%]
儿科心脏手术中家属在场的影响：针对关键利益相关群体临床医生的质性研究
Zoel A Quiñónez,Kimberly A Pyke-Grimm,Shreya K Kamra et al.
Zoel A Quiñónez et al.
Background: With increased emphasis on healthcare transparency, parents are increasingly asking to be present for procedures performed on their children, especially in high-acuity contexts like care of children with conge...
The Emotional Impact of Clinical Ethics Work on Clinical Ethicists: A Qualitative Study [0.03%]
临床伦理工作对临床伦理学家的情感影响的质性研究
Anna D Goff,Marsha M Michie,Marcie A Lambrix et al.
Anna D Goff et al.
Background: The experiences of clinical ethicists have recently begun to garner some attention, but very little is known about the emotional impact of clinical ethics work on clinical ethicists. The purpose of our study w...
Whether to Offer Interventions at the End of Life: What Physicians Consider and How Clinical Ethicists Can Help [0.03%]
是否在生命的尽头提供干预措施：医师的考量及临床伦理学家的帮助作用是什么
Joelle Robertson-Preidler,Mikaela Kim,Sophia Fantus et al.
Joelle Robertson-Preidler et al.
Background: Advances in life-prolonging technologies increasingly create dilemmas for physicians who must decide whether to offer various interventions to patients nearing the end of life. Clinical ethicists are often con...
Enhancing Animals is "Still Genetics": Perspectives of Genome Scientists and Policymakers on Animal and Human Enhancement [0.03%]
“增强也是一种基因技术”——基因组科学家和政策制定者视角中的动物与人类增强工程
Rebecca L Walker,Zachary Ferguson,Logan Mitchell et al.
Rebecca L Walker et al.
Background: Nonhuman animals are regularly enhanced genomically with CRISPR and other gene editing tools as scientists aim at better models for biomedical research, more tractable agricultural animals, or animals that are...
Associations Between the Legalization and Implementation of Medical Aid in Dying and Suicide Rates in the United States [0.03%]
美国安乐死合法化与实施对自杀率的影响研究
Olivia P Sutton,Brent M Kious
Olivia P Sutton
Background: Some have hypothesized that changing attitudes toward medical aid in dying (MAID) contribute to increased suicide rates, perhaps by increasing interest in dying or the perceived acceptability of suicide. This ...
Ethics Consultation in U.S. Pediatric Hospitals: Adherence to National Practice Standards [0.03%]
美国儿科医院的伦理咨询：遵守国家标准的行为规范
Helena Arango,Colette Gramszlo,Jaideep Grewal et al.
Helena Arango et al.
Background: The American Society for Bioethics and Humanities (ASBH), a professional organization that certifies ethics consultants who pass the qualifying examination, published standards for the conduct of ethics consul...
Monitored and Cared for at Home? Privacy Concerns When Using Smart Home Health Technologies to Care for Older Persons [0.03%]
智能居家健康技术在家用会泄露隐私吗——以老年人护理为例
Yi Jiao Angelina Tian,Vanessa Duong,Eike Buhr et al.
Yi Jiao Angelina Tian et al.
Background: States and families are facing growing challenges provide adequate care for older persons. Smart home health technologies (SHHTs) in the forms of sensor or robotic devices have been discussed as technical solu...
Supporting Stewardship: Funding, Utilization, and Sustainability as Ethical Concerns in Networked Biobanking [0.03%]
论网络化生物库伦理问题中的资金、利用和可持续性问题——倡导受托管理规范立场
R Jean Cadigan,Roselle Ponsaran,Carla Rich et al.
R Jean Cadigan et al.
Background: The literature on the ethics of biobanking often overlooks the practical operations of biobanks. The ethics of stewardship requires that biobank resources are used to conduct beneficial science. Networked biob...