Online public reactions to fMRI communication with patients with disorders of consciousness: Quality of life, end-of-life decision making, and concerns with misdiagnosis [0.03%]
功能性磁共振通讯与意识障碍患者：生活质量问题、生命末期决策及误诊的担忧在线公共反应分析
Jennifer A Chandler,Jeffrey A Sun,Eric Racine
Jennifer A Chandler
Background: Recently, the news media have reported on the discovery of covert awareness and the establishment of limited communication using a functional magnetic resonance imaging (fMRI) neuroimaging technique with sever...
Morals or markets? Regulating assisted reproductive technologies as morality or economic policies in the states [0.03%]
道德与市场？在美国各州通过道德或经济政策调节辅助生殖技术
Erin Heidt-Forsythe
Erin Heidt-Forsythe
Background: The availability of assisted reproductive technologies (ARTs) in the medical marketplace complicates our understanding of reproductive public policy in the United States. Political debates over ARTs often are ...
Decision making in pediatric oncology: Views of parents and physicians in two European countries [0.03%]
欧洲两国家长和医生对儿科肿瘤治疗决策的观点
Domnita O Badarau,Katharina Ruhe,Thomas Kühne et al.
Domnita O Badarau et al.
Background: Decision making is a highly complex task when providing care for seriously ill children. Physicians, parents, and children face many challenges when identifying and selecting from available treatment options. ...
Tenzin Wangmo,Eva De Clercq,Katharina M Ruhe et al.
Tenzin Wangmo et al.
Background: This article describes the overall attitudes of children, their parents, and attending physicians toward including or excluding pediatric patients in medical communication and health care decision-making proce...
When are primary care physicians untruthful with patients? A qualitative study [0.03%]
初级保健医师何时会对患者说谎？一项定性研究
Stephanie R Morain,Lisa I Iezzoni,Michelle M Mello et al.
Stephanie R Morain et al.
Background: Notwithstanding near-universal agreement on the theoretical importance of truthfulness, empirical research has documented gaps between ethical norms and physician behaviors. Although prior research has explore...
How are PCORI-funded researchers engaging patients in research and what are the ethical implications? [0.03%]
PCORI资助的研究人员如何在研究中吸引患者及其伦理含义是什么？
Lauren E Ellis,Nancy E Kass
Lauren E Ellis
Background: Despite growing interest in patient engagement in research, there are few empirical investigations of the nature of engagement and its effects. This information is important, not only to inform practical decis...
Problematic protocols: An overview of medical research protocols not approved by the LUMC medical ethics review committee [0.03%]
问题多多的协议：鹿特丹大学医学中心伦理委员会未批准的研究方案回顾
Derek Gideon Tersmette,Dirk Peter Engberts
Derek Gideon Tersmette
Background: The Committee for Medical Ethics (CME) of Leiden University Medical Center (LUMC) was established as the first medical ethics reviewing committee (MREC) in the Netherlands. In the period 2000-2010 the CME rece...
Growing an ethics consultation service: A longitudinal study examining two decades of practice [0.03%]
一项历时研究：二十年的伦理咨询实践回顾
Christine Gorka,Jana M Craig,Bethany J Spielman
Christine Gorka
Background: Little is known about what factors may contribute to the growth of a consultation service or how a practice may change or evolve across time. ...
Healthy individuals' perspectives on clinical research protocols and influences on enrollment decisions [0.03%]
健康受试者对临床试验方案的看法及其影响入组决定的因素
Laura Weiss Roberts,Jane Paik Kim
Laura Weiss Roberts
Background: Understanding the perspectives of healthy individuals is important ethically and for the advancement of science. We assessed perceptions of risk associated with research procedures, comparing views of healthy ...
When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing [0.03%]
当界限模糊时：临床全基因组测序结果类别的患者视角
Leila Jamal,Jill O Robinson,Kurt D Christensen et al.
Leila Jamal et al.
Background: Clinical genome and exome sequencing (CGES) is being used in an expanding range of clinical settings. Most approaches to offering patients choices about learning CGES results classify results according to expe...
Randomized Controlled Trial
AJOB empirical bioethics. 2017 Apr-Jun;8(2):82-88. DOI:10.1080/23294515.2017.1287786 2017