Growing an ethics consultation service: A longitudinal study examining two decades of practice [0.03%]
一项历时研究：二十年的伦理咨询实践回顾
Christine Gorka,Jana M Craig,Bethany J Spielman
Christine Gorka
Background: Little is known about what factors may contribute to the growth of a consultation service or how a practice may change or evolve across time. ...
Healthy individuals' perspectives on clinical research protocols and influences on enrollment decisions [0.03%]
健康受试者对临床试验方案的看法及其影响入组决定的因素
Laura Weiss Roberts,Jane Paik Kim
Laura Weiss Roberts
Background: Understanding the perspectives of healthy individuals is important ethically and for the advancement of science. We assessed perceptions of risk associated with research procedures, comparing views of healthy ...
When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing [0.03%]
当界限模糊时：临床全基因组测序结果类别的患者视角
Leila Jamal,Jill O Robinson,Kurt D Christensen et al.
Leila Jamal et al.
Background: Clinical genome and exome sequencing (CGES) is being used in an expanding range of clinical settings. Most approaches to offering patients choices about learning CGES results classify results according to expe...
Randomized Controlled Trial
AJOB empirical bioethics. 2017 Apr-Jun;8(2):82-88. DOI:10.1080/23294515.2017.1287786 2017
Does experience matter? Implications for community consultation for research in emergency settings [0.03%]
有经验重要吗？紧急情况下开展研究的社区咨询的影响
Victoria M Scicluna,Mohammed K Ali,Rebecca D Pentz et al.
Victoria M Scicluna et al.
Background: Community consultation (CC) is required for research in emergency settings using an exception from informed consent (EFIC) in the United States, but uncertainty persists regarding best CC practices. There is o...
Eugene I Kane rd,Joseph J Gallo
Eugene I Kane rd
Background: Questions have been raised by researchers and ethics committees about whether human research subjects comprehend study participation when signing a research consent form. ...
Qualitative study of participants' perceptions and preferences regarding research dissemination [0.03%]
关于研究传播的研究参与者感知和偏好的定性研究报告
Rachel S Purvis,Traci H Abraham,Christopher R Long et al.
Rachel S Purvis et al.
Background: The study identifies the experiences, preferences, and perceptions of research participants regarding dissemination of research findings at the participant level and community level. ...
Adolescent oncofertility discussions: Recommendations from a systematic literature review [0.03%]
青春期肿瘤生育力讨论：系统文献回顾的建议
Dorit Barlevy,Bernice S Elger,Tenzin Wangmo et al.
Dorit Barlevy et al.
Background: Increasing cancer incidence and survivorship rates have made late-term effects, such as effects on fertility, a salient issue for adolescent cancer patients. While various barriers make it difficult for health...
Primary care physicians' views about gatekeeping in clinical research recruitment: A qualitative study [0.03%]
门控在临床研究招募中的作用：一项定性研究
Marilys Guillemin,Rosalind McDougall,Dominique Martin et al.
Marilys Guillemin et al.
Background: Clinical research is increasingly being undertaken in primary care settings. This development offers both benefits and challenges. The ethical challenges of occupying the roles of both clinician and researcher...
The interactions of Canadian ethics consultants with health care managers and governing boards during times of crisis [0.03%]
加拿大伦理顾问在危机期间与医疗管理人员和管理委员会的互动
Chris Kaposy,Victor Maddalena,Fern Brunger et al.
Chris Kaposy et al.
Background: Health care organizations can be very complex, and are often the setting for crisis situations. In recent years, Canadian health care organizations have faced large-scale systemic medical errors, a nation-wide...
Do Patients Want their Families or their Doctors to Make Treatment Decisions in the Event of Incapacity, and Why? [0.03%]
患者希望在丧失行为能力时由家属还是医生决定治疗方案及其原因是什么？
David Wendler,Robert Wesley,Mark Pavlick et al.
David Wendler et al.
Background: Current practice relies on patient-designated and next-of-kin surrogates, in consultation with clinicians, to make treatment decisions for patients who lose the ability to make their own decisions. Yet, there ...