A paradigm for understanding trust and mistrust in medical research: The Community VOICES study [0.03%]
社区VOICE研究中的信任与不信任理解范式
M Smirnoff,I Wilets,D F Ragin et al.
M Smirnoff et al.
Background: To promote justice in research practice and rectify health disparities, greater diversity in research participation is needed. Lack of trust in medical research is one of the most significant obstacles to rese...
Would you be willing to zap your child's brain? Public perspectives on parental responsibilities and the ethics of enhancing children with transcranial direct current stimulation [0.03%]
您愿意电击您的孩子的大脑吗？关于使用经颅直流电流刺激技术增强儿童体能的伦理及父母责任的公众观点
Katy Wagner,Hannah Maslen,Justin Oakley et al.
Katy Wagner et al.
Background: Transcranial direct current stimulation (tDCS) is an experimental brain stimulation technology that may one day be used to enhance the cognitive capacities of children. Discussion about the ethical issues that...
"God is the giver and taker of life": Muslim beliefs and attitudes regarding assisted suicide and euthanasia [0.03%]
“上帝赐予和终止生命”——穆斯林关于辅助自杀和安乐死的信仰及态度
Chaïma Ahaddour,Stef Van den Branden,Bert Broeckaert
Chaïma Ahaddour
In the context of the Belgian debates on end-of-life care, the views of Muslims remain understudied. The aim of this article is twofold. First, we seek to document the relation between contemporary normative Muslim ideas on assisted suicide...
Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories [0.03%]
美国基因组测序实验室二级发现报告实践的差异性分析
Sara L Ackerman,Barbara A Koenig
Sara L Ackerman
Background: Increasingly used for clinical purposes, genome and exome sequencing can generate clinically relevant information that is not directly related to the reason for testing (incidental or secondary findings). Deba...
Ethical and regulatory challenges of research using pervasive sensing and other emerging technologies: IRB perspectives [0.03%]
关于使用持续感应和其他新兴技术开展研究的伦理及监管挑战：机构审查委员会的观点
Camille Nebeker,John Harlow,Rebeca Espinoza Giacinto et al.
Camille Nebeker et al.
Vast quantities of personal health information and private identifiable information are being created through mobile apps, wearable sensors, and social networks. While new strategies and tools for obtaining health data have expanded researc...
Epistemic injustice in dementia and autism patient organizations: An empirical analysis [0.03%]
痴呆症和自闭症患者组织中的认识不公：一项实证分析
Karin Jongsma,Elisabeth Spaeth,Silke Schicktanz
Karin Jongsma
Patient organizations (POs) represent patient collectives in health care policy. The inclusion of people with a 'neuro-psychiatric' condition poses a particular challenge for the organizational processes and political representation of such...
Views of clinical trial participants on the readability and their understanding of informed consent documents [0.03%]
临床试验受试者对其知情同意书的可读性和理解度的看法
Rita Somers,Cornelius Van Staden,Francois Steffens
Rita Somers
Background: One of the ethical imperatives for a valid consent process in clinical medication trials is that the process be guided by and recorded in an informed consent document (ICD). Concerns have been expressed, howev...
"Will they be good enough parents?": Ethical dilemmas, views, and decisions among assisted reproductive technology (ART) providers [0.03%]
他们会是好父母吗？：辅助生殖技术提供者面临的伦理困境、观点及决定
Robert Klitzman
Robert Klitzman
Background: Many adults may make less-than-ideal parents, but important ethical questions arise concerning whether assisted reproductive technology (ART) providers should thus ever refuse treatment to certain patients, an...
Counseling parents at risk of delivery of an extremely premature infant: Differing strategies [0.03%]
向极早产儿父母提供咨询：不同的策略
Marlyse F Haward,Annie Janvier,John M Lorenz et al.
Marlyse F Haward et al.
Background: It is not known how neonatologists address the affective and cognitive loads on parents deciding whether to resuscitate infants born extremely preterm. This study explores expert neonatologists' views on these...
Same behavior, different provider: American medical students' attitudes toward reporting risky behaviors committed by doctors, nurses, and classmates [0.03%]
同样的行为，不同的处理方式：美国医学生对举报医生、护士和同学从事高风险行为的态度研究
Sahil Aggarwal,Aaron Kheriaty
Sahil Aggarwal
The bioethics literature lacks findings about medical students' attitudes toward reporting risky behaviors that can cause error or reduce the perceived quality of health care. A survey was administered to 159 medical students to assess thei...