An empirical assessment of the short-term impacts of a reading of Deborah Zoe Laufer's drama Informed Consent on attitudes and intentions to participate in genetic research [0.03%]
黛博拉·佐伊·劳弗的戏剧《知情同意》对参与遗传研究的态度和意图的短期影响的实证评估
Erin Rothwell,Jeffrey R Botkin,Sydney Cheek-O&#x;Donnell et al.
Erin Rothwell et al.
Objective: This study assessed the short-term impact of the play "Informed Consent" by Deborah Zoe Laufer (a fictionalized look at the controversy over specimens collected from the Havasupai Tribe for diabetes research in...
Brian J Piper,Drew A Lambert,Ryan C Keefe et al.
Brian J Piper et al.
Background: Textbooks are a formative resource for health care providers during their education and are also an enduring reference for pathophysiology and treatment. Unlike the primary literature and clinical guidelines, ...
Children's perspectives on the benefits and burdens of research participation [0.03%]
儿童参与研究的利益与负担的观点
Claudia Barned,Jennifer Dobson,Alain Stintzi et al.
Claudia Barned et al.
Background: Participation in research is associated with benefits and burdens for individual research participants. Children living with a chronic illness are considered particularly vulnerable as they are already burdene...
A paradigm for understanding trust and mistrust in medical research: The Community VOICES study [0.03%]
社区VOICE研究中的信任与不信任理解范式
M Smirnoff,I Wilets,D F Ragin et al.
M Smirnoff et al.
Background: To promote justice in research practice and rectify health disparities, greater diversity in research participation is needed. Lack of trust in medical research is one of the most significant obstacles to rese...
Would you be willing to zap your child's brain? Public perspectives on parental responsibilities and the ethics of enhancing children with transcranial direct current stimulation [0.03%]
您愿意电击您的孩子的大脑吗？关于使用经颅直流电流刺激技术增强儿童体能的伦理及父母责任的公众观点
Katy Wagner,Hannah Maslen,Justin Oakley et al.
Katy Wagner et al.
Background: Transcranial direct current stimulation (tDCS) is an experimental brain stimulation technology that may one day be used to enhance the cognitive capacities of children. Discussion about the ethical issues that...
"God is the giver and taker of life": Muslim beliefs and attitudes regarding assisted suicide and euthanasia [0.03%]
“上帝赐予和终止生命”——穆斯林关于辅助自杀和安乐死的信仰及态度
Chaïma Ahaddour,Stef Van den Branden,Bert Broeckaert
Chaïma Ahaddour
In the context of the Belgian debates on end-of-life care, the views of Muslims remain understudied. The aim of this article is twofold. First, we seek to document the relation between contemporary normative Muslim ideas on assisted suicide...
Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories [0.03%]
美国基因组测序实验室二级发现报告实践的差异性分析
Sara L Ackerman,Barbara A Koenig
Sara L Ackerman
Background: Increasingly used for clinical purposes, genome and exome sequencing can generate clinically relevant information that is not directly related to the reason for testing (incidental or secondary findings). Deba...
Ethical and regulatory challenges of research using pervasive sensing and other emerging technologies: IRB perspectives [0.03%]
关于使用持续感应和其他新兴技术开展研究的伦理及监管挑战：机构审查委员会的观点
Camille Nebeker,John Harlow,Rebeca Espinoza Giacinto et al.
Camille Nebeker et al.
Vast quantities of personal health information and private identifiable information are being created through mobile apps, wearable sensors, and social networks. While new strategies and tools for obtaining health data have expanded researc...
Epistemic injustice in dementia and autism patient organizations: An empirical analysis [0.03%]
痴呆症和自闭症患者组织中的认识不公：一项实证分析
Karin Jongsma,Elisabeth Spaeth,Silke Schicktanz
Karin Jongsma
Patient organizations (POs) represent patient collectives in health care policy. The inclusion of people with a 'neuro-psychiatric' condition poses a particular challenge for the organizational processes and political representation of such...
Views of clinical trial participants on the readability and their understanding of informed consent documents [0.03%]
临床试验受试者对其知情同意书的可读性和理解度的看法
Rita Somers,Cornelius Van Staden,Francois Steffens
Rita Somers
Background: One of the ethical imperatives for a valid consent process in clinical medication trials is that the process be guided by and recorded in an informed consent document (ICD). Concerns have been expressed, howev...