Assessing Patient Perspectives on Receiving Bad News: A Survey of 1337 Patients With Life-Changing Diagnoses [0.03%]
对生命改变性诊断的患者进行调查以评估其对于坏消息的态度（1337例）
Reza D Mirza,Melody Ren,Arnav Agarwal et al.
Reza D Mirza et al.
Background: Guidelines for breaking bad news are largely directed at and validated in oncology patients, based on expert opinion, and neglect those with other diagnoses. We sought to determine whether existing guidelines ...
Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences [0.03%]
应否向生物样本库中的癌症患者及其家属提供研究结果？一种关于患者和家庭成员偏好的混合方法研究
Deborah R Gordon,Carmen Radecki Breitkopf,Marguerite Robinson et al.
Deborah R Gordon et al.
Background: Genomic analysis may reveal both primary and secondary findings with direct relevance to the health of probands' biological relatives. Researchers question their obligations to return findings not only to part...
Data and tissue research without patient consent: A qualitative study of the views of research ethics committees in New Zealand [0.03%]
新西兰不经患者同意进行的数据和组织研究：对研究伦理委员会观点的定性研究
Angela Ballantyne,Andrew Moore
Angela Ballantyne
Purpose: Secondary use of clinical tissue and data is an increasingly important platform for health research. Many jurisdictions allow research ethics committees (RECs) or institutional review boards (IRBs) the flexibilit...
Observational Study
AJOB empirical bioethics. 2018 Jul-Sep;9(3):143-153. DOI:10.1080/23294515.2018.1518938 2018
"I want us to be a normal family": Toward an understanding of the functions of anonymity among U.S. oocyte donors and recipients [0.03%]
"我想我们成为普通的家庭吧":论美国卵子捐赠者和受赠者匿名功能理解的问题
Inmaculada de Melo-Martín,Lisa R Rubin,Ina N Cholst
Inmaculada de Melo-Martín
Background: Anonymity remains the more common practice in gamete donations, but legislation prohibiting anonymity with a goal of protecting donor-conceived children's right to know their genetic origins is becoming more c...
Comparison of philosophical concerns between professionals and the public regarding two psychiatric treatments [0.03%]
精神卫生从业人员与普通民众对两种精神病学治疗的哲学态度比较研究
Laura Yenisa Cabrera,Marisa Brandt,Rachel McKenzie et al.
Laura Yenisa Cabrera et al.
Background: Psychiatric interventions are a contested area in medicine, not only because of their history of abuses, but also because their therapeutic goal is to affect emotions, thoughts, beliefs, and behaviors that are...
Ethical understandings of proxy decision making for research involving adults lacking capacity: A systematic review (framework synthesis) of empirical research [0.03%]
有关涉及缺乏行为能力的成人受试者的科研中的代理决策制定的行为理论研究的系统性综述（框架综合法）
Victoria Shepherd,Kerenza Hood,Mark Sheehan et al.
Victoria Shepherd et al.
Background: Research involving adults lacking mental capacity relies on the involvement of a proxy or surrogate, although this raises a number of ethical concerns. Empirical studies have examined attitudes towards proxy d...
Reliance agreements and single IRB review of multisite research: Concerns of IRB members and staff [0.03%]
依靠协议和单一IRB审查的多中心研究：IRB成员与工作人员的担忧
Charles W Lidz,Ekaterina Pivovarova,Paul Appelbaum et al.
Charles W Lidz et al.
The new National Institutes of Health (NIH) Policy on the Use of a Single Institutional Review Board (sIRB) for Multi-Site Research was adopted primarily to simplify and speed the review of complex multisite clinical trials. However, speedi...
Conflicts of interest policies for authors, peer reviewers, and editors of bioethics journals [0.03%]
生物伦理学期刊作者、同行评审人员和编辑的利益冲突政策
Zubin Master,Kelly Werner,Elise Smith et al.
Zubin Master et al.
Background: In biomedical research, there have been numerous scandals highlighting conflicts of interest (COIs) leading to significant bias in judgment and questionable practices. Academic institutions, journals, and fund...
Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey [0.03%]
生物样本库中父母对同意和数据共享的态度：一项多地点实验调查
Armand H Matheny Antommaria,Kyle B Brothers,John A Myers et al.
Armand H Matheny Antommaria et al.
Background: The factors influencing parents' willingness to enroll their children in biobanks are poorly understood. This study sought to assess parents' willingness to enroll their children, and their perceived benefits,...
Randomized Controlled Trial
AJOB empirical bioethics. 2018 Jul-Sep;9(3):128-142. DOI:10.1080/23294515.2018.1505783 2018
Freezing fertility or freezing false hope? A content analysis of social egg freezing in U.S. print media [0.03%]
冻存生育能力还是冻存虚假希望？一项关于美国印刷媒体中卵子冻存的社会内容分析研究
Lisa Campo-Engelstein,Rohia Aziz,Shilpa Darivemula et al.
Lisa Campo-Engelstein et al.
In 2012, the American Society for Reproductive Medicine (ASRM) lifted the experimental label on oocyte preservation, but cautioned against women using it to avoid age-related infertility, known as social egg freezing (SEF). In 2014, Faceboo...