Broadening the Debate About Post-trial Access to Medical Interventions: A Qualitative Study of Participant Experiences at the End of a Trial Investigating a Medical Device to Support Type 1 Diabetes Self-Management [0.03%]
扩大有关试验后获取医疗干预措施的辩论范围：一项定性研究，探讨在支持1型糖尿病自我管理的医疗器械调查试验结束时参与者的经历
J Lawton,M Blackburn,D Rankin et al.
J Lawton et al.
Increasing ethical attention and debate is focusing on whether individuals who take part in clinical trials should be given access to post-trial care. However, the main focus of this debate has been upon drug trials undertaken in low-income...
Randomized Controlled Trial
AJOB empirical bioethics. 2019 Apr-Jun;10(2):100-112. DOI:10.1080/23294515.2019.1592264 2019
Single-Patient Expanded Access Requests: IRB Professionals' Experiences and Perspectives [0.03%]
单个患者扩大使用请求：IRB专业人士的经验和观点
Carolyn Riley Chapman,Jenni A Shearston,Kelly McBride Folkers et al.
Carolyn Riley Chapman et al.
Background: U.S. physicians may treat a patient with an investigational drug outside of a clinical trial by using the expanded access (EA) pathway or the recently created federal right to try (RTT) pathway. The EA pathway...
Impartiality and infectious disease: Prioritizing individuals versus the collective in antibiotic prescription [0.03%]
公正与传染病：抗生素处方中的个人利益与集体利益之间的平衡问题
Bernadine Dao,Thomas Douglas,Alberto Giubilini et al.
Bernadine Dao et al.
Background: Antimicrobial resistance (AMR) is a global public health disaster driven largely by antibiotic use in human health care. Doctors considering whether to prescribe antibiotics face an ethical conflict between up...
Developing clinical ethics support for an Australian Health Service: A survey of clinician's experiences and views [0.03%]
澳大利亚临床伦理支持调查：医务人员的体验和观点
Giuliana Fuscaldo,Melissa Cadwell,Kristin Wallis et al.
Giuliana Fuscaldo et al.
Background: International developments suggest that providing clinical ethics services to help clinicians negotiate ethical issues that arise in clinical practice is beneficial and reflects best practice in promoting high...
Framing the diagnosis and treatment of absolute uterine factor infertility: Insights from in-depth interviews with uterus transplant trial participants [0.03%]
绝对子宫性因素不孕的诊断和治疗框架：来自子宫移植受试者深入访谈的启示
Elliott G Richards,Patricia K Agatisa,Anne C Davis et al.
Elliott G Richards et al.
Background: Despite procedural innovations and increasing numbers of uterus transplant attempts worldwide, the perspectives of uterus transplant (UTx) trial participants are lacking. ...
Lucia D Wocial,Elizabeth Molnar,Mary A Ott
Lucia D Wocial
Background: The American Society for Bioethics and Humanities has recommended regular evaluation of the quality of Health Care Ethics Consultation. This manuscript discusses the impact of ethics consultation on clinicians...
Clara Berridge,Jodi Halpern,Karen Levy
Clara Berridge
Surveillance cameras are increasingly being deployed in nursing homes and assisted living facilities, with insufficient attention to what is ethically fraught about this way of assuaging concerns about abuse and other personnel challenges. ...
Mary Camp,John Sadler
Mary Camp
Purpose: Moral distress occurs when one identifies an ethically appropriate course of action but cannot carry it out. In this conceptualization, medical students may be particularly vulnerable to moral distress, but the l...
A content analysis of the views of genetics professionals on race, ancestry, and genetics [0.03%]
遗传学专业人士关于种族、祖先和遗传的观点内容分析
Sarah C Nelson,Joon-Ho Yu,Jennifer K Wagner et al.
Sarah C Nelson et al.
Over the past decade, the proliferation of genetic studies on human health and disease has reinvigorated debates about the appropriate role of race and ancestry in research and clinical care. Here we report on the responses of genetics prof...
Genes wide open: Data sharing and the social gradient of genomic privacy [0.03%]
基因全开放：数据共享与基因隐私的社会梯度
Tobias Haeusermann,Marta Fadda,Alessandro Blasimme et al.
Tobias Haeusermann et al.
This study reports on 13 semistructured in-depth interviews to qualitatively explore the experiences of individuals who publicly shared their direct-to-consumer genetic testing results on the platform openSNP. In particular, we focused on i...