Return of Value in the New Era of Biomedical Research-One Size Will Not Fit All [0.03%]
新生物医学时代的价值回归——没有万能的公式
Dmitry Khodyakov,Alexandra Mendoza-Graf,Sandra Berry et al.
Dmitry Khodyakov et al.
Background: There is a growing interest in creating large-scale repositories that store genetic, behavioral, and environmental data for future, unspecified uses. The All of Us Research Program is one example of such a repository. Its partic...
Ethical Awareness Scale: Replication Testing, Invariance Analysis, and Implications [0.03%]
伦理意识量表：重复测试、不变性分析及影响
Aimee Milliken,Larry Ludlow,Pamela Grace
Aimee Milliken
Background: Ethical awareness (EA) enables nurses to recognize the ethical implications of all practice actions and is an important component of safe and quality nursing care. Evidence suggests that nurses may sometimes feel underprepared t...
Caroline Horrow,Joel E Pacyna,Carol Cosenza et al.
Caroline Horrow et al.
Disease advocacy organizations (DAOs) have traditionally focused on raising awareness of rare diseases, providing educational resources to patients, and supporting patients and families. Previous research has described how scientists collab...
Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana [0.03%]
探索喀麦隆、坦桑尼亚和加纳儿科基因组研究同意过程中的共同决策作用
Daima Bukini,Jantina deVries,Marsha Treadwell et al.
Daima Bukini et al.
Background: It is customarily perceived that in Africa, decisions around research participation may be based not only on individual reflection but also on discussions with others. Some authors have argued that such decision making is reflec...
Ethical Leadership and Employees' Perceptions About Raising Ethical Concerns to Managers in the Veterans Health Administration [0.03%]
道德领导力与退伍军人卫生管理局员工向管理人员反映伦理问题的感知状况的关系研究
Mary Beth Foglia,Jennifer Hadary Cohen
Mary Beth Foglia
Background: The willingness of employees to proactively give voice to their concerns, including ethical concerns (ethics voice), is critical to improving organizational performance and integrity. In health care, speaking up is vital to ensu...
What Is the Minimal Competency for a Clinical Ethics Consult Simulation? Setting a Standard for Use of the Assessing Clinical Ethics Skills (ACES) Tool [0.03%]
临床伦理咨询模拟的最低要求是什么？建立评估临床伦理技能（ACES工具）使用的标准
Katherine Wasson,William H Adams,Kenneth Berkowitz et al.
Katherine Wasson et al.
Background: The field of clinical ethics is examining ways of determining competency. The Assessing Clinical Ethics Skills (ACES) tool offers a new approach that identifies a range of skills necessary in the conduct of clinical ethics consu...
Cancer Clinical Trial Patient-Participants' Perceptions about Provider Communication and Dropout Intentions [0.03%]
癌症临床试验受试者对医护人员沟通及中途退出倾向的看法
Qiuping Zhou,Sarah J Ratcliffe,Christine Grady et al.
Qiuping Zhou et al.
Objective: To study the relationship between cancer patient/research participants' perceptions of communication with their research nurse and doctor and (1) participants' thoughts of dropping out from their cancer clinical trials (CCTs), (2...
Trust and Expectations of Researchers and Public Health Departments for the Use of HIV Molecular Epidemiology [0.03%]
关于研究人员和公共卫生部门对艾滋病分子流行病学运用的信任及期望
Cynthia E Schairer,Sanjay R Mehta,Staal A Vinterbo et al.
Cynthia E Schairer et al.
Background: Molecular epidemiology (ME) is a technique used to study the dynamics of pathogen transmission through a population. When used to study HIV infections, ME generates powerful information about how HIV is transmitted, including ep...
Brian D Earp,Joshua August Skorburg,Jim A C Everett et al.
Brian D Earp et al.
Background: Recent literature on addiction and judgments about the characteristics of agents has focused on the implications of adopting a "brain disease" versus "moral weakness" model of addiction. Typically, such judgme...
Enhancing Understanding of Moral Distress: The Measure of Moral Distress for Health Care Professionals [0.03%]
提高对道德困境的理解：医务人员道德困境测量工具
Elizabeth G Epstein,Phyllis B Whitehead,Chuleeporn Prompahakul et al.
Elizabeth G Epstein et al.
Background: As ongoing research explores the impact of moral distress on health care professionals (HCPs) and organizations and seeks to develop effective interventions, valid and reliable instruments to measure moral dis...