Thijs Devriendt,Virginia Sanchini,Pascal Borry
Thijs Devriendt
Background. The World Anti-Doping Agency is the international body coordinating anti-doping efforts, with the mandate of harmonizing anti-doping policy worldwide. With novel performance-enhancing compounds continuously entering the market, ...
John M Conley,Anya E R Prince,Arlene M Davis et al.
John M Conley et al.
Background: A growing literature has raised-skeptically-the question of whether cutting-edge scientific research can identify and address broader ethical and policy considerations in real time. In genomics, the question is: Can ELSI contrib...
From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing [0.03%]
从期望至体验——消费者自主性和选择性在个人基因组检测中的作用
Jacqueline Savard,Chriselle Hickerton,Sylvia A Metcalfe et al.
Jacqueline Savard et al.
Background: Personal genomic testing (PGT) offers individuals genetic information about relationships, wellness, sporting ability, and health. PGT is increasingly accessible online, including in emerging markets such as Australia. Little is...
Clinicians' Perspectives on the Duty to Inform Patients About Medical Aid-in-Dying [0.03%]
临床医生对告知患者辅助自杀信息义务的看法
Elizabeth R Brassfield,Mara Buchbinder
Elizabeth R Brassfield
Background: As of 2019, ten jurisdictions in the United States have authorized physicians to prescribe a lethal dose of medication to a terminally ill patient for the purpose of hastening death. Relatively little bioethics scholarship has a...
Javad J Fatollahi,James A Colbert,Priyanka Agarwal et al.
Javad J Fatollahi et al.
Introduction: Institutions have developed professionalism policies to help guide physician social media behavior in light of professionalism lapses that have resulted in serious consequences. Prior research has gathered perspectives on onli...
Breaking a Vital Trust: Posting Photos of Patients on Facebook Among a Sample of Peruvian Medical Students [0.03%]
秘鲁医学生在Facebook上发布患者照片的问题调查报告
Evelin Mota-Anaya,Katherine Almeida-Chafloque,Stephanie Castro-Arechaga et al.
Evelin Mota-Anaya et al.
Background: The doctor-patient relationship may be affected by the indiscriminate use of social media platforms. The aim of this study was to evaluate the content of the photos posted on medical students' Facebook accounts to determine whet...
Operational Characteristics of Institutional Review Boards (IRBs) in the United States [0.03%]
美国机构审查委员会的运作特点
Genevieve L Nesom,Iraklis Petrof,Tyler M Moore
Genevieve L Nesom
Background:Federal Law requires approval from an Institutional Review Board prior to conducting human subjects research to ensure ethical distribution of benefits and harms. Notwithstanding this role and almost no prescriptive requirements ...
Patient's Perspectives of Experimental HCV-Positive to HCV-Negative Renal Transplantation: Report from a Single Site [0.03%]
丙型肝炎病毒阳性供者的肾移植受者体验：单一中心报告
Sarah E Van Pilsum Rasmussen,Shanti Seaman,Diane Brown et al.
Sarah E Van Pilsum Rasmussen et al.
Background: With growing transplant wait times, clinical trials are evaluating the safety and efficacy of transplanting HCV-infected donor (HCV+) organs into HCV-noninfected recipients (HCV D+/R-). Such transplants raise ethical questions a...
Media Coverage of Ethical Issues in Predictive Genetic Testing: A Qualitative Analysis [0.03%]
伦理问题的媒体分析：预测性基因检测案例研究
Bettina Zimmermann,Bernice Elger,David Shaw
Bettina Zimmermann
Background: Predictive genetic testing (PGT) raises many ethical issues and is of increasing interest to the general population. Mass media, especially newspapers, are the public's main source of information on this topic. Methods: We condu...
A Content Analysis of Patient Advocacy Organization Policies Addressing Institutional Conflicts of Interest [0.03%]
患者权益组织政策中关于制度利益冲突的内容分析
John H Brems,Matthew S McCoy
John H Brems
Introduction: Patient advocacy organizations (PAOs) provide patient education, raise public awareness, and influence health policy for a wide range of diseases. These organizations frequently receive financial support form from drug, device...