N de Graeff,Karin R Jongsma,Jeantine E Lunshof et al.
N de Graeff et al.
Background: Gene drive technologies (GDTs) bias the inheritance of a genetic element within a population of non-human organisms, promoting its progressive spread across this population. If successful, GDTs may be used to ...
Should Feedback of Individual Results be Integrated into the Consent Process in African Genomics? Participants' Views from an HIV-TB Genomics Research Project in Botswana [0.03%]
应将个体结果的反馈整合到非洲基因组学的知情同意程序中吗？博茨瓦纳一项艾滋病毒-结核病基因组研究项目的参与者观点
Dimpho Ralefala,Mary Kasule,Ambroise Wonkam et al.
Dimpho Ralefala et al.
BackgroundWhilst informed consent is a key component of considering whether individual genomic research results could or should be fed back to research participants, little is known about the views of African research participants on its ro...
Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States [0.03%]
与美国美洲土著和阿拉斯加原住民关于基因组学伦理的商议：在美国三个部落中使用的一种适应性商议模型
Erika Blacksher,Vanessa Y Hiratsuka,Jessica W Blanchard et al.
Erika Blacksher et al.
Background: This paper describes the design, implementation, and process outcomes from three public deliberations held in three tribal communities. Although increasingly used around the globe to address collective challen...
Absolutely Right and Relatively Good: Consequentialists See Bioethical Disagreement in a Relativist Light [0.03%]
是非好坏有标准：后果主义者从相对主义视角看待生伦理学争议
Hugo Viciana,Ivar R Hannikainen,David Rodríguez-Arias
Hugo Viciana
Background: Contemporary societies are rife with moral disagreement, resulting in recalcitrant disputes on matters of public policy. In the context of ongoing bioethical controversies, are uncompromising attitudes rooted ...
Holly Tabor
Holly Tabor
Bioethics as Object of Study: Dilemmas of Immanence in Research Ethics Review [0.03%]
bio伦理作为研究对象：研究伦理审查的内在困境
Carey DeMichelis
Carey DeMichelis
This paper explores a dilemma that confronts empirical researchers who are interested in taking the field of bioethics itself as an object of study. Drawing inspiration and data from a recent Institutional Review Board (IRB) process, I disc...
Priority Setting of Ventilators in the COVID-19 Pandemic from the Public's Perspective [0.03%]
从公众视角看新冠肺炎疫情期间呼吸机的优先分配问题
Fariba Asghari,Alireza Parsapour,Ehsan Shamsi Gooshki
Fariba Asghari
Background: Ventilator allocation plan for a public health crisis should be developed through recognizing the values of society and engaging the general public. This study was conducted to assess the Iranian citizens' attitude about some pr...
Nurses' Participation in Limited Resuscitation: Gray Areas in End of Life Decision-Making [0.03%]
护士参与有限复苏：生死决策的灰色地带
Felicia Stokes,Rick Zoucha
Felicia Stokes
Historically nurses have lacked significant input in end-of-life decision-making, despite being an integral part of care. Nurses experience negative feelings and moral conflict when forced to aggressively deliver care to patients at the EOL...
The Therapeutic Odyssey: Positioning Genomic Sequencing in the Search for a Child's Best Possible Life [0.03%]
治疗之旅——基因组测序在寻找儿童最佳生活中的定位研究
Janet Elizabeth Childerhose,Carla Rich,Kelly M East et al.
Janet Elizabeth Childerhose et al.
Background: The desire of parents to obtain a genetic diagnosis for their child with intellectual disability and associated symptoms has long been framed as a diagnostic odyssey, an arduous and sometimes perilous journey focused on the goal...
Reframing Recruitment: Evaluating Framing in Authorization for Research Contact Programs [0.03%]
重构招募方式：研究联系计划授权的框架评估
Candace D Speight,Charlie Gregor,Yi-An Ko et al.
Candace D Speight et al.
Background: The changing clinical research recruitment landscape involves practical challenges but introduces opportunities. Researchers can now identify large numbers of eligible patients through electronic health record...