Institutional Review Board Use of Outside Experts: A National Survey [0.03%]
关于机构审查委员会使用外部专家的国家标准调查研究报告
Kimberley Serpico,Vasiliki Rahimzadeh,Luke Gelinas et al.
Kimberley Serpico et al.
Background: Institutional review board (IRB) expertise is necessarily limited by maintaining a manageable board size. IRBs are therefore permitted by regulation to rely on outside experts for review. However, little is kn...
How Do Accredited Organizations Evaluate the Quality and Effectiveness of Their Human Research Protection Programs? [0.03%]
认证机构如何评估其人类受试者保护项目的质量和效果？
Holly Fernandez Lynch,Holly A Taylor
Holly Fernandez Lynch
Background: Meaningfully evaluating the quality of institutional review boards (IRBs) and human research protection programs (HRPPs) is a long-recognized challenge. To be accredited by the Association for the Accreditatio...
Navigating Pandemic Moral Distress at Home and at Work: Frontline Workers' Experiences [0.03%]
一线工作者在疫情大流行下的道德困境：在家和工作的经历
S A Miner,B E Berkman,V Altiery de Jesus et al.
S A Miner et al.
Background: During the COVID-19 pandemic, frontline workers faced a series of challenges balancing family and work responsibilities. These challenges included making decisions about how to reduce COVID-19 exposure to their families while st...
Managing Pandora's Box: Familial Expectations around the Return of (Future) Germline Results [0.03%]
潘多拉的盒子的管理：关于(未来)生殖系结果回溯的家庭期望
Liza-Marie Johnson,Belinda N Mandrell,Chen Li et al.
Liza-Marie Johnson et al.
Background: Pediatric oncology patients are increasingly being offered germline testing to diagnose underlying cancer predispositions. Meanwhile, as understanding of variant pathogenicity evolves, planned reanalysis of ge...
Ethical Challenges Experienced by Healthcare Workers Delivering Clinical Care during Health Emergencies and Disasters: A Rapid Review of Qualitative Studies and Thematic Synthesis [0.03%]
卫生紧急情况和灾难期间医护人员提供临床护理时面临的伦理挑战：定性研究的快速审查与主题综合
Mariana Dittborn,Constanza Micolich,Daniela Rojas et al.
Mariana Dittborn et al.
Background: The COVID-19 pandemic has posed several ethical challenges worldwide. Understanding care providers' experiences during health emergencies is key to develop comprehensive ethical guidelines for emergency and disaster circumstance...
Mara Buchbinder,Eric Juengst,Stuart Rennie et al.
Mara Buchbinder et al.
Background: Bioethical debates about privacy, big data, and public health surveillance have not sufficiently engaged the perspectives of those being surveilled. The data justice framework suggests that big data applicatio...
Quantifying Utilitarian Outcomes to Inform Triage Ethics: Simulated Performance of a Ventilator Triage Protocol under Sars-CoV-2 Pandemic Surge Conditions [0.03%]
量化功利结果以告知分级诊疗伦理：在SARS-CoV-2大流行激增情况下的呼吸机分级治疗方案的模拟性能
Elizabeth Chuang,Julien Grand-Clement,Jen-Ting Chen et al.
Elizabeth Chuang et al.
Background: Equitable protocols to triage life-saving resources must be specified prior to shortages in order to promote transparency, trust and consistency. How well proposed utilitarian protocols perform to maximize liv...
Diversity, Profit, Control: An Empirical Study of Industry Employees' Views on Ethics in Private Sector Genomics [0.03%]
多样性、利润与控制：一项关于私营部门基因组学行业员工伦理观点的实证研究
Alexis Walker
Alexis Walker
Background: Large amounts of capital are currently being invested in genomics companies across the "bench to clinic pipeline" - companies which are now shaping the future of biomedicine globally. Understanding the perspec...
Mining the Data: Exploring Rural Patients' Attitudes about the Use of Their Personal Information in Research [0.03%]
数据挖掘：探索农村患者对其个人信息在研究中使用的态度
Jennifer B McCormick,Margaret Hopkins,Erik B Lehman et al.
Jennifer B McCormick et al.
Background: This study examines rural patients' perceived importance of knowing or being consulted about researchers' access and use of their personal data (identifiable and de-identified health information, and identifia...
Ethical Reasoning During a Pandemic: Results of a Five Country European Study [0.03%]
一项欧洲五国研究的疫情伦理思考结果
S B Johnson,F Lucivero,B M Zimmermann et al.
S B Johnson et al.
Introduction: There has been no work that identifies the hidden or implicit normative assumptions on which participants base their views during the COVID-19 pandemic, and their reasoning and how they reach moral or ethical judgements. Our a...