Nicholas Peoples,Alexandra Alvarez,Shiwei Wang et al.
Nicholas Peoples et al.
Background: Student-run clinics (SRCs) are a unique medical education and healthcare delivery model. On one hand, SRCs have the potential to bridge important care gaps and train future practitioners to address complex hea...
Ethical Considerations for AI-Enabled Voice Analysis: Features of an Emerging Bioethics Literature [0.03%]
人工智能驱动的声音分析的伦理考量：一种新兴生物伦理学文献的特点
Michele D Anzabi,Austin M Stroud,Richard R Sharp
Michele D Anzabi
Background: With the emergence of voice as a digital biomarker for various health conditions over the last decade, healthcare institutions are exploring avenues to leverage this technology to improve patient outcomes and ...
Differences Between Government, Consortium, and Private Database Stewards Impacting the Genomic Data Market: A Survey of U.S. Academic Genetic Researchers [0.03%]
美国学术遗传学家对政府、联盟和私人数据库管理者影响基因数据市场差异的看法调查
Amanda K Greene,J Denard Thomas,Kaitlyn Jaffe et al.
Amanda K Greene et al.
Background: Despite major shifts in U.S. federal government data sharing requirements, their impact, and relation to researcher choice of database, are underexplored. This study surveyed genetic researchers regarding tren...
The Impact of Family Social Identity on Ethical Decision-Making in the NICU [0.03%]
家庭社会身份对NICU伦理决策的影响
Carey DeMichelis,Elizabeth Lanphier,Uchenna Anani
Carey DeMichelis
Background: Little is understood on how intersectionality and social background of patients and families influence ethical and clinical decision-making, particularly in the critical care setting. This study aims to explor...
Information about Clinical Ethics Consultation Services on US Hospital Websites [0.03%]
美国医院网站上的临床伦理咨询信息调查研究
Melina Peshoff,Magdelynne Lowy,Marion Danis et al.
Melina Peshoff et al.
Background: Making clinical ethics consultation (CEC) services available to patients and their family members is a best practice most hospitals in the United States claim to follow. However, patients and families often la...
Primary Care Physician Perspectives on Artificial Intelligence for Dementia Screening: A Qualitative Study [0.03%]
关于人工智能在痴呆症筛查中的作用：基层医生的观点（定性研究）
Hannah G Hanson,Jalayne J Arias,Heather M Wurtz et al.
Hannah G Hanson et al.
Background: Automated approaches to cognitive impairment screening may soon achieve sufficient levels of accuracy for clinical implementation but they present potentially serious ethical challenges. Overcoming such challe...
Scanning the Horizon of Sociogenomics: an Assessment of the Development and Growth of Polygenic Indices for Social and Behavioral Traits [0.03%]
社会基因组学的前景扫描：多基因指标在社会和行为特征的发展和增长评估中应用综述
Courtney Canter,Karen M Meagher,R Jean Cadigan et al.
Courtney Canter et al.
Background: Increasingly, researchers are leveraging social science survey data and genomic samples from millions of biobank participants to develop polygenic indices (PGIs) for social and behavioral traits. ...
Megan M Shen,Justin T Clapp,Holly Fernandez Lynch et al.
Megan M Shen et al.
Background: A number of patient organizations have recently embraced venture philanthropy, a model of patient advocacy that purports to use practices from venture capitalism in pursuit of philanthropic goals. However, a c...
Whose Autonomy Matters? Using Relational Autonomy to Analyze Caregiver Roles in Decision-Making for Cancer Clinical Trials [0.03%]
谁的自主权重要？利用关系自主权分析癌症临床试验中决策者的角色
Eric C Blackstone,Susan R Mazanec,Barbara J Daly et al.
Eric C Blackstone et al.
Background: Participation in a therapeutic clinical trial can be a challenging decision for patients with cancer and their family caregivers. Despite the implications of clinical trials for caregivers, there is little emp...
Alzheimer's Disease Clinical Trial Decision-Making Among Patients with Mild Cognitive Impairment and Their Study Partners [0.03%]
轻度认知障碍患者及其研究伙伴在阿尔茨海默病临床试验决策中的作用
Chelsea G Cox,Adam I Birnbaum,Christian R Salazar et al.
Chelsea G Cox et al.
Background. Prodromal Alzheimer's disease (AD) clinical trials enroll patients with mild cognitive impairment (MCI) and their study partners. This study examined trial enrollment decision-making and risk for misunderstanding trial informati...