The Gender Minority Stress and Resilience Measure: Psychometric Validity of an Adolescent Extension [0.03%]
青少年版本的性别少数压力和复原力测量表的量表特征及Validity
Marco A Hidalgo,Hanno Petras,Diane Chen et al.
Marco A Hidalgo et al.
Objective: Minority stress contributes to several physical and psychological problems in sexual and gender minorities but is largely understudied in transgender/gender-nonconforming (TGNC) individuals, particularly TGNC a...
Kristina R Olson,Charlie Blotner,Daniel Alonso et al.
Kristina R Olson et al.
Objective: An increasing number of children are socially transitioning to live as their identified genders rather than their assigned sexes, yet little empirical work has examined the decision-making process surrounding s...
Enhancing Pain Assessment in Pediatric Sickle Cell Disease by Applying Quality Improvement Science [0.03%]
应用质量改进科学提升儿童镰状细胞病疼痛评估
Soumitri Sil,Alana Goldstein-Leever,Curtis Travers et al.
Soumitri Sil et al.
Objective: Standardized pain assessment and interventions are recommended for youth hospitalized for pain. This quality improvement (QI) project integrated into a pediatric psychology service aimed to increase the standar...
Predicting Health Care Utilization and Charges Using a Risk Score for Poor Adherence in Pediatric Kidney Transplant Recipients [0.03%]
基于儿科肾移植受者的低依从性风险评分预测其医疗保健利用及费用
Kristin Loiselle Rich,Avani C Modi,Constance Mara et al.
Kristin Loiselle Rich et al.
Pediatric kidney transplant recipients must follow a complicated regimen of timely adherence to immunosuppressant medication, routine blood work, and medical follow-up visits. Failure to adhere to the recommended regimen can result in medic...
Iterative development of a web-based intervention for families of young children with type 1 diabetes: DIPPer Academy [0.03%]
基于网络的糖尿病家庭干预项目（DIPPer 智库）的迭代开发
Arwen M Marker,Alexandra D Monzon,Kathy J Goggin et al.
Arwen M Marker et al.
Objective: A new diagnosis of Type 1 diabetes mellitus (T1D) can be stressful for families as they are expected to learn a large amount of information regarding disease management and treatment in a short period of time. ...
The Americleft Psychosocial Outcomes Project: A Multicenter Approach to Advancing Psychosocial Outcomes for Youth With Cleft Lip and Palate [0.03%]
美国先天性唇腭裂患者心理社会结局研究项目：提高唇腭裂青少年心理社会预后的多中心方法
Canice E Crerand,Amy L Conrad,Meredith Albert et al.
Canice E Crerand et al.
Cleft lip and/or palate (CL/P) are among the most common of all birth defects. Habilitation requires multiple surgeries and other therapies throughout childhood and adolescence. While multidisciplinary care is recommended, there is a great ...
Evaluating the Acceptability and Validity of Assessing Pain and Posttraumatic Stress Symptoms in an Adaptable eHealth System for School-Age Children [0.03%]
评估在学校年龄儿童的可适应电子健康系统中评定疼痛和创伤后压力症状的接受性和有效性的可行性研究报告
Nancy Kassam-Adams,Kristen L Kohser,Jeffery McLaughlin et al.
Nancy Kassam-Adams et al.
Objective: To provide initial evaluation of the acceptability of a new eHealth system incorporating personalized self-report assessment of multiple health domains in school age children, and assess convergent validity of ...
Cultural Considerations for Autonomy and Medical Adherence in a Young Palestinian American Muslim Female With Spina Bifida: A Longitudinal Case Study in a Research Context [0.03%]
文化因素在年轻巴勒斯坦美国穆斯林女性脊柱裂自主性和医疗依従性中的考量：研究背景下的纵向案例研究报告
Diana M Ohanian,Colleen Stiles-Shields,Khalid I Afzal et al.
Diana M Ohanian et al.
This case study examines the unique presentation of a young Palestinian-American Muslim female, who is a part of an ongoing longitudinal study examining family and peer relationships, psychological adjustment, and neuropsychological functio...
Using Qualitative Perspectives of Adolescents with Sickle Cell Disease and Caregivers to Develop Healthcare Transition Programming [0.03%]
利用青少年及护理人员对镰状细胞疾病的定性视角来制定医疗保健过渡项目
Jerlym S Porter,Alana D Lopez,Kimberly M Wesley et al.
Jerlym S Porter et al.
Youth with sickle cell disease (SCD) are living longer, requiring transition from pediatric to adult health care. Transition programs have been created to improve transition readiness and help patients take responsibility for their health. ...
Considerations for the cross-cultural adaptation of an advance care planning guide for youth with cancer [0.03%]
关于跨文化适应的儿童癌症患者安缓疗护计划说明书的考量因素
Marina Noronha Ferraz de Arruda-Colli,Ursula Sansom-Daly,Manoel Antônio Dos Santos et al.
Marina Noronha Ferraz de Arruda-Colli et al.
Objective: Adolescent and young adults' (AYAs) involvement in advance care planning and end-of-life discussions may enhance the decision-making process, reduce stress and improve the patient's quality of life. Given the i...