Predicting Health Care Utilization and Charges Using a Risk Score for Poor Adherence in Pediatric Kidney Transplant Recipients [0.03%]
基于儿科肾移植受者的低依从性风险评分预测其医疗保健利用及费用
Kristin Loiselle Rich,Avani C Modi,Constance Mara et al.
Kristin Loiselle Rich et al.
Pediatric kidney transplant recipients must follow a complicated regimen of timely adherence to immunosuppressant medication, routine blood work, and medical follow-up visits. Failure to adhere to the recommended regimen can result in medic...
Iterative development of a web-based intervention for families of young children with type 1 diabetes: DIPPer Academy [0.03%]
基于网络的糖尿病家庭干预项目（DIPPer 智库）的迭代开发
Arwen M Marker,Alexandra D Monzon,Kathy J Goggin et al.
Arwen M Marker et al.
Objective: A new diagnosis of Type 1 diabetes mellitus (T1D) can be stressful for families as they are expected to learn a large amount of information regarding disease management and treatment in a short period of time. ...
The Americleft Psychosocial Outcomes Project: A Multicenter Approach to Advancing Psychosocial Outcomes for Youth With Cleft Lip and Palate [0.03%]
美国先天性唇腭裂患者心理社会结局研究项目：提高唇腭裂青少年心理社会预后的多中心方法
Canice E Crerand,Amy L Conrad,Meredith Albert et al.
Canice E Crerand et al.
Cleft lip and/or palate (CL/P) are among the most common of all birth defects. Habilitation requires multiple surgeries and other therapies throughout childhood and adolescence. While multidisciplinary care is recommended, there is a great ...
Evaluating the Acceptability and Validity of Assessing Pain and Posttraumatic Stress Symptoms in an Adaptable eHealth System for School-Age Children [0.03%]
评估在学校年龄儿童的可适应电子健康系统中评定疼痛和创伤后压力症状的接受性和有效性的可行性研究报告
Nancy Kassam-Adams,Kristen L Kohser,Jeffery McLaughlin et al.
Nancy Kassam-Adams et al.
Objective: To provide initial evaluation of the acceptability of a new eHealth system incorporating personalized self-report assessment of multiple health domains in school age children, and assess convergent validity of ...
Cultural Considerations for Autonomy and Medical Adherence in a Young Palestinian American Muslim Female With Spina Bifida: A Longitudinal Case Study in a Research Context [0.03%]
文化因素在年轻巴勒斯坦美国穆斯林女性脊柱裂自主性和医疗依従性中的考量：研究背景下的纵向案例研究报告
Diana M Ohanian,Colleen Stiles-Shields,Khalid I Afzal et al.
Diana M Ohanian et al.
This case study examines the unique presentation of a young Palestinian-American Muslim female, who is a part of an ongoing longitudinal study examining family and peer relationships, psychological adjustment, and neuropsychological functio...
Using Qualitative Perspectives of Adolescents with Sickle Cell Disease and Caregivers to Develop Healthcare Transition Programming [0.03%]
利用青少年及护理人员对镰状细胞疾病的定性视角来制定医疗保健过渡项目
Jerlym S Porter,Alana D Lopez,Kimberly M Wesley et al.
Jerlym S Porter et al.
Youth with sickle cell disease (SCD) are living longer, requiring transition from pediatric to adult health care. Transition programs have been created to improve transition readiness and help patients take responsibility for their health. ...
Considerations for the cross-cultural adaptation of an advance care planning guide for youth with cancer [0.03%]
关于跨文化适应的儿童癌症患者安缓疗护计划说明书的考量因素
Marina Noronha Ferraz de Arruda-Colli,Ursula Sansom-Daly,Manoel Antônio Dos Santos et al.
Marina Noronha Ferraz de Arruda-Colli et al.
Objective: Adolescent and young adults' (AYAs) involvement in advance care planning and end-of-life discussions may enhance the decision-making process, reduce stress and improve the patient's quality of life. Given the i...
Preliminary Feasibility and Acceptability of the Remote Food Photography Method for Assessing Nutrition in Young Children with Type 1 Diabetes [0.03%]
远程食物摄影法在评估年轻1型糖尿病儿童营养状况的可行性及可接受性：一项概念验证研究
Meredith H Rose,Randi Streisand,Laura Aronow et al.
Meredith H Rose et al.
Background: Nutrition is a critical component of diabetes and other chronic diseases for young children. However, nutritional intake is burdensome to measure accurately and easily, making it difficult to evaluate in resea...
A Behavioral Family Intervention for Children with Overweight and Asthma [0.03%]
针对肥胖并患有哮喘儿童的行为家庭干预措施
David A Fedele,David M Janicke,Elizabeth L McQuaid et al.
David A Fedele et al.
Objective: The Childhood Health and Asthma Management Program (CHAMP) is a behavioral family lifestyle intervention for youth with overweight or obesity (OV/OB) and asthma. This pilot randomized controlled trial examined ...
Parental Perceptions of Emotional and Behavioral Difficulties Among Prepubertal Gender-Nonconforming Children [0.03%]
关于学龄前性别不安儿童情感和行为障碍的父母感知状况研究
Diane Chen,Marco A Hidalgo,Robert Garofalo
Diane Chen
The purpose of this study was to better understand parents' perceptions of how, if at all, their transgender and gender-nonconforming (TGNC) children exhibited common childhood emotional and behavioral concerns in relation to gender nonconf...