Understanding barriers to transition from pediatric to adult care among young adults with sickle cell disease to develop a transition mentor program [0.03%]
理解镰状细胞病年轻患者从儿科到成人护理过渡的障碍,以建立一个过渡指导项目
Adrienne S Viola,Kristine Levonyan-Radoloff,Richard Drachtman et al.
Adrienne S Viola et al.
Objective: Patients with sickle cell disease require lifelong comprehensive care, necessitating patient compliance with primary care appointments, specialty clinical visits, medications, transfusions, and regular health m...
The Teen Symposium: Engaging Adolescents and Young Adults with Sickle Cell Disease in Clinical Care and Research [0.03%]
青少年研讨会:让镰状细胞病患者青少年和年轻人参与临床护理与研究
Lori E Crosby,Heather Strong,Alisha Johnson et al.
Lori E Crosby et al.
Objective: In the US, Sickle Cell Disease (SCD) is the most prevalent genetic disorder affecting African American and Hispanic youth. Disparities in care have been reported for this population with adolescents and young a...
Community-Engaged, Multi-Method Needs Assessment to Improve Asthma Care Implementation: The Rhode Island Asthma Integrated Response (RI-AIR) Program [0.03%]
Rhode Island哮喘综合应对(RI-AIR)计划中的社区参与型多方位需求评估研究:改善哮喘治疗的实施效果
Anna J Yeo,Elizabeth L McQuaid,Grace K Cushman et al.
Anna J Yeo et al.
Objective: Asthma disproportionately afflicts U.S. urban children, particularly those of Black and Latino backgrounds, and is highly prevalent in Rhode Island (RI). We collaborated with community partners to conduct a mul...
Coping and Meaning-Making Strategies Described by Parents of Children with Medical Complexity [0.03%]
儿童病情复杂的家长所描述的应对和赋予意义的策略
Julia B Tager,Ansley E Kenney,Paulina S Lim et al.
Julia B Tager et al.
Objective: Parents of children with medical complexity (CMC) experience stressors related to caregiving, navigating the healthcare system, and managing their own well-being. There is a dearth of research examining parenta...
Mindfulness-Based Intervention for Adolescents With Type 1 Diabetes: A Case Series [0.03%]
针对1型糖尿病青少年的情商干预项目:系列案例报告
Francesca Lupini,Hailey Moore,Molly Basch et al.
Francesca Lupini et al.
Objective: Adolescents with type 1 diabetes (T1D) have risk for elevated negative affect, and mindfulness-based interventions (MBI) may be effective interventions. The aim of this case series was to (1) highlight individu...
Acceptance and Commitment Therapy for a Parent of a Child with Pediatric Feeding Disorder: A Case Study [0.03%]
接受补给疗法治疗儿童喂养障碍患儿父母的案例研究
Dana M Bakula,Alexandra Zax,Meredith L Dreyer Gillette
Dana M Bakula
Objective: Pediatric Feeding Disorder (PFD) is a common condition for young children and can cause stress among parents. However, there are no parent psychosocial interventions that have been tested for efficacy in this p...
Lessons learned from mothers: Parenting perspectives for preventing pediatric unintentional injuries related to autism [0.03%]
从母亲身上吸取的教训:预防与自闭症相关的儿童意外伤害的育儿视角
Alecia Mercier,Brianna Paquette,David C Schwebel et al.
Alecia Mercier et al.
Objective: Autistic children have higher unintentional injury risk than typically developing children, but little is known about how parents struggle and succeed in keeping their autistic children safe from injury. Qualit...
Not a Trainee, Not Yet Mid-Career: Navigating being an Early Career Pediatric Psychologist [0.03%]
不是实习医生,也不算是中坚力量:徘徊于职业生涯初期的儿科心理学家
Colleen Stiles-Shields,Emily G Lattie,Kathryn Macapagal et al.
Colleen Stiles-Shields et al.
Objective: The American Psychological Association (APA) defines early career (EC) status as occurring in the 10 years following earning a doctorate. As EC pediatric and behavioral health psychologists (ECPP) who work with...
Navigating Critical Moments: The Importance of Spiritual and Psychosocial Collaboration in Addressing Coping in the Pediatric ICU [0.03%]
关键时期的指引:在儿科ICU中应对精神和社会心理合作的重要性的意义及方法
Madeline Johnson,Rev Ian R Butts,Rachel Ashworth et al.
Madeline Johnson et al.
Objective: To explore, by way of intentional, case-based reflection, the ways in which hospital-based chaplains and pediatric psychologists collaborate as key members of a patient/family's interdisciplinary care team to p...
"Faith, Family, and Friends": Pandemic-Related Coping in Parents of Adolescents With Type 1 Diabetes [0.03%]
“信仰、家庭和朋友”:青少年1型糖尿病患者的父母在疫情期间的应对方式
Marissa N Baudino,Samantha Garcia Perez,Maeve B ODonnell et al.
Marissa N Baudino et al.
Objective: The COVID-19 pandemic presented unique stressors for parents of youth with chronic health conditions including type 1 diabetes (T1D), such as managing youths' diabetes self-management demands without usual rout...