Racial/Ethnicity Disparities in COVID-19 Worry for Caregivers of Adults With Intellectual and Developmental Disabilities [0.03%]
关于智力和发育障碍成年人照顾者的COVID-19担忧的种族/族裔差异
Laiba Asif,Kristen A Staggers,K Jordan Kemere et al.
Laiba Asif et al.
This study investigated the racial/ethnic differences in COVID-19-related worry amongst family caregivers of adults with intellectual and developmental disabilities (IDD) living in Texas using the COVID-Related Thoughts and Behavioral Sympt...
Establishing an Advocacy Activities Scale for Parents of Individuals With Intellectual and Developmental Disabilities [0.03%]
智力和发育障碍者父母倡导行为量表的建立
Chak Li,Meghan M Burke,Julie Lounds Taylor et al.
Chak Li et al.
Advocacy has long been heralded as a way to create change for individuals with intellectual and developmental disabilities (IDD) and their families. However, without an established measure, it is difficult to accurately characterize advocac...
"You Don't Know What You Don't Know": Parent Perspectives on Navigating Disability-Related Information and Resources [0.03%]
“你不知道你不知道的东西”——关于引导与残障相关的信息和资源的家长视角
Emily R Lanchak,Erik W Carter,Elise D McMillan
Emily R Lanchak
We examined the priorities parents hold for their children with disabilities and the pathways through which parents access needed information and resources related to these valued areas. Our sample included 405 parents of children (ages 12 ...
Family Resilience in Families of Children With Autism Spectrum Disorders: Ecological Systems Theory Perspective [0.03%]
生态学视角下孤独症儿童家庭的韧性研究
Ayelet Gur,Yifat Bar Meir,Maayan Edelstein et al.
Ayelet Gur et al.
Drawing on Bronfenbrenner's ecological systems theory (1992), we asked how certain resources contribute to family resilience in families of children with ASD: family quality of life (FQOL; family resources), sense of community and lonelines...
Through the Looking Glass: A Data Lens on Health of People With Intellectual and Developmental Disabilities [0.03%]
透过数据镜片看智力和发育障碍人群的健康状况
Gloria L Krahn,Susan M Havercamp,Alexandra Bonardi
Gloria L Krahn
Population level data on health of people with intellectual and developmental disabilities (IDD) are sorely needed to identify their health status, health disparities, and health needs. Key considerations to inform programs and policies nee...
Preliminary Reliability and Validity of the Self-Determination Inventory: Student Report French Translation [0.03%]
自我决定库存量表：学生报告法文版的初步可靠性和有效性
Karrie A Shogren,Daria Gerasimova,Yves Lachapelle et al.
Karrie A Shogren et al.
There is a strong and growing focus on self-determination in French-speaking countries, and this pilot study reports the technical adequacy of the Self-Determination Inventory: Student Report (SDI:SR) French Translation. Data were collected...
Capturing Staff Perspectives on Quality Interaction With Clients With Intellectual Disability: A Diary Study [0.03%]
关于智障人士照护者与服务对象之间高质量互动的日记研究
Gilles Droogmans,Sara Nijs,Bea Maes
Gilles Droogmans
For people with severe or profound intellectual disability (ID), support staff are important interaction partners. The quality of their interactions, a multidimensional construct, is well documented, but the staff perspective remains undere...
Self-Advocate and Family Member Experiences With Supported Decision Making [0.03%]
支持性决策-making的自我倡导者和家庭成员体验
Evan E Dean,Mayumi Hagiwara,Lashanna Brunson et al.
Evan E Dean et al.
Supported decision making (SDM) is a needed focus of policy and practice to enhance opportunities for people with disabilities to exercise self-determination as they are supported to make decisions about their life. This study used content ...