Advancing Inclusive Research in Intellectual and Developmental Disabilities: Building Community and Supports for Participation [0.03%]
促进智力和发育障碍的包容性研究：建立社区和支持以促进参与
Karrie A Shogren,Brad Linnenkamp,Rebecca Townsend et al.
Karrie A Shogren et al.
People with intellectual and developmental disabilities are often excluded from equitable inclusion in the development and execution of research. Despite increased advocacy for inclusive research over the last decade, the widespread use of ...
My Daughter Said, "Why Are We Here, Mom?" Experiences of Parents Who Left Their Country for Their Children With Special Needs [0.03%]
女儿问我：“我们为什么要在这里？”——关于为了特殊需要的孩子离开祖国的父母们的经历
Ali Kaya,Mehmet Emin Öztürk
Ali Kaya
This study investigated the reasons why parents with children with special needs choose to leave their homeland with their children, the difficulties they encounter in their new countries, the services they receive for their children in new...
Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals [0.03%]
自闭症个体兄弟姐妹的个人和制度倡导行为的相关因素研究
Chak Li,Meghan M Burke,Catherine K Arnold
Chak Li
Extensive research has focused on parent advocacy, but the advocacy efforts of siblings of autistic individuals remain less studied. This study aims to identify the correlates of individual and systemic advocacy among siblings of autistic i...
"It's So Tough!": Barriers to Respite Care for Families of Children With Disabilities [0.03%]
“这真的很难！”关于残疾儿童家庭获得喘息照顾的障碍问题
Erik W Carter,Melody V Escobar,Carlee Hollinger et al.
Erik W Carter et al.
Although respite care can have a profound impact on the well-being of families, most parents of children with disabilities struggle to access these scarce services. The purpose of this qualitative study was to map the breadth of barriers fa...
A Social-Ecological Approach to Inclusive Research With People With Intellectual Disability [0.03%]
社会生态学视角下的智力障碍者包容性研究
Geonhwa Kim,Jennifer A Kurth,Karrie A Shogren et al.
Geonhwa Kim et al.
Inclusive research reflects a societal shift in how disability is understood from deficit-based to a social-ecological model. The purpose of this article is to delineate the barriers to and supports for inclusive research and the outcomes t...
Gender and Sexual Self-Determination in the Lives of LGBTQ+ Adults With IDD [0.03%]
LGBTQ+成人智力障碍者的生活中的性别和性自主权
Oscar E Hughes
Oscar E Hughes
Adults with intellectual and developmental disabilities (IDD) have the right to gender and sexual self-determination, meaning they should have choice and control in how they express their gender and sexuality. In this inclusive research stu...
Respite Support From Adolescence to Adulthood in Families of People With Neurodevelopmental Disorders [0.03%]
神经发育障碍患者从青少年到成年的家庭喘息支持
Maira Tafolla,Hillary Schiltz,Catherine Lord
Maira Tafolla
Respite is a priority for caregivers of people with neurodevelopmental disabilities across the lifespan. The present study aimed to characterize respite availability and frequency of use among 126 caregivers of young people with neurodevelo...
Technology Access, Utility, and Unmet Needs: Results From the Arc's FINDS Survey [0.03%]
技术的获取、适用性及需求缺口：来自Arc的FINDS调查的结果
Emily K Unholz-Bowden,Yue Wu,Alec Nyce et al.
Emily K Unholz-Bowden et al.
Technology can enhance the quality of life of people with intellectual and developmental disabilities (IDD). However, little is known about the extent to which it is accessible to and useful for people with IDD and their caregivers from dif...
Treating Substance Use Disorder in Individuals With Intellectual Disability: A Regional System Capacity Assessment [0.03%]
智力障碍个体物质使用障碍治疗的区域系统能力评估
Lori Ann Eldridge,Jon Agley,Jennifer Piatt et al.
Lori Ann Eldridge et al.
This mixed-methods study assessed substance use disorder (SUD) treatment for individuals with intellectual and developmental disabilities within California's regional center system. The system is the primary organization in California that ...
Acquisition of Digital Literacy Skills in Learners With Developmental Disabilities [0.03%]
发育障碍学习者数字素养技能的培养
Lanqi Wang,Chengan Yuan,Jiawei He et al.
Lanqi Wang et al.
Learners with developmental disabilities often encounter difficulties in performing daily activities that involve digital platforms, operating systems, applications, and other digital tools. Considering the growing importance of digital lit...