How community members in Uganda perceive controlled human infection studies [0.03%]
乌干达社区成员如何看待感染人体研究
Winfred Nazziwa,Stella Neema,Alison Elliot et al.
Winfred Nazziwa et al.
Controlled Human Infection studies are a new and uncommon way of conducting clinical research in low resource settings. Regardless of the supposed importance of human infection studies in advancing clinical research, there is still limited ...
"Should researchers return individual pharmacogenomics results to participants?" A descriptive qualitative study on stakeholder perspectives involved in HIV/AIDS research and treatment in Uganda [0.03%]
“应向研究参与者反馈个体药物基因分型结果吗？”——一项关于乌干达艾滋病研究和治疗相关利益攸关方视角的描述性定性研究
Sylvia Nabukenya,David Kyaddondo,Adelline Twimukye et al.
Sylvia Nabukenya et al.
The return of individual pharmacogenomic research results is increasingly recognized as an ethical obligation, reflecting participants' right to information and researchers' duty of care. However, implementing this in low-resource settings ...
Augmenting research consent: should large language models (LLMs) be used for informed consent to clinical research? [0.03%]
增强研究同意书：是否应该在临床研究中使用大型语言模型（LLM）进行知情同意？
Jemima W Allen,Owen Schaefer,Sebastian Porsdam Mann et al.
Jemima W Allen et al.
The integration of artificial intelligence (AI), particularly large language models (LLMs) like OpenAI's ChatGPT, into clinical research could significantly enhance the informed consent process. This paper critically examines the ethical im...
Pragmatic and ethical challenges in navigating inauthentic participation in remote qualitative research [0.03%]
远程定性研究中规避虚假参与的实用和伦理挑战
Katelin Hoskins,Kelly Sebetka,Arielle Thomas et al.
Katelin Hoskins et al.
Restrictions put in place during the COVID-19 pandemic necessitated a rapid shift towards remote qualitative recruitment and data collection. This shift generated considerable opportunities to conduct qualitative research, but also introduc...
"It just feels morally not right to Sell the data": Ethical and social perspectives on human genomic data sharing in Uganda-A phenomenological qualitative study [0.03%]
“出售数据在道德上是不正确的”——乌干达人基因组数据共享的伦理学和社会学观点——质性现象学研究
Deborah Ekusai-Sebatta,David Kyaddondo,David Kaawa-Mafigiri et al.
Deborah Ekusai-Sebatta et al.
While genomic data sharing enhances transparency and research efficiency, it also raises significant ethical and social challenges. This study explored stakeholders' perspectives on these issues, particularly around privacy, confidentiality...
Mohammad Hosseini,Bert Gordijn,Gregory E Kaebnick et al.
Mohammad Hosseini et al.
Researchers have been using generative artificial intelligence (GenAI) to support writing manuscripts for several years now. However, as GenAI evolves and scientists are using it more frequently, the case for mandatory disclosure of GenAI f...
The responsible conduct of police participatory research: A qualitative study of officers' ethical beliefs [0.03%]
警务参与式研究的伦理规范——关于警察伦理信念的实证研究
Brandon Del Pozo,Lauren Magee,Alina Whiteside et al.
Brandon Del Pozo et al.
The responsible conduct of research must be sensitive to the unique ethical concerns of the police setting, but we have yet to develop an empirical understanding of the ethics of research involving police officers as participants. To develo...
Understanding and processing informed consent during data-intensive health research in sub-Saharan Africa: challenges and opportunities from a multilingual perspective [0.03%]
从多语言视角理解并处理撒哈拉以南非洲数据密集型健康研究中的知情同意：挑战与机遇
Lillian Omutoko,George Rugare Chingarande,Marietjie Botes et al.
Lillian Omutoko et al.
Africa has a colonial past that renders it a linguistic melting pot, where language is not only important for communication but is inextricably related to cultural identity. In Africa, there are over 2000 languages that are still being used...
' It is a complex process, but it's very important to return these results to participants'. Stakeholders' perspectives on the ethical considerations for returning individual pharmacogenomics research results to people living with HIV [0.03%]
“这是一个复杂的过程，但向参与者反馈这些结果是非常重要的。”相关方关于向艾滋病病毒感染者个体回馈药物基因组学研究结果的伦理考虑的见解
Sylvia Nabukenya,David Kyaddondo,Adelline Twimukye et al.
Sylvia Nabukenya et al.
This study aimed to explore stakeholders' perspectives on the ethical considerations for returning individual pharmacogenomics research results to people living with HIV. A qualitative approach to investigation involved five focus group dis...
Stakeholders' experiences of ethical challenges in cluster randomized trials in a limited resource setting: a qualitative analysis [0.03%]
伦理论文 | 单中心集群随机试验中的伦理挑战：定性分析
Tiwonge K Mtande,Carl Lombard,Gonasagrie Nair et al.
Tiwonge K Mtande et al.
Although the use of the cluster randomized trial (CRT) design to evaluate vaccines, public health interventions or health systems is increasing, the ethical issues posed by the design are not adequately addressed, especially in low- and mid...