What Makes Families SHARE: The family communication environments of disseminators and non-disseminators of family cancer history [0.03%]
中国家庭交流环境下的家族癌症病史传播机制研究
Danyel I Smith,Beverly Estrada Balcarcel,Raegan Bishop et al.
Danyel I Smith et al.
Background: Family Cancer History (FCH) provides insight into cancer risk and can guide prevention efforts. Black Americans experience high cancer burden and report several barriers to FCH knowledge due to family communic...
Health Literacy and Awareness of Family Health History in the All of Us Research Program [0.03%]
“全民参与研究计划”中的健康素养与家庭病史意识
Jemar R Bather,Melody S Goodman,Stephanie H Cook et al.
Jemar R Bather et al.
We quantified the association between health literacy and awareness of family health history using a nationwide cross-sectional study of 286,293 All of Us Research Program participants. Awareness of family health history was constructed as ...
Aaron Eli Segal,Xiaobai Li,David Wendler
Aaron Eli Segal
Background: In current practice, individuals rarely share in the profits of research using their biospecimens. Many commentators defend this practice on the grounds that the contributions donors make are not important eno...
Views on a Chatbot for Cancer Family History Collection Among Leaders of Hispanic and Pacific Islander Communities in Utah [0.03%]
犹他州西班牙裔和太平洋岛民社区领袖对用于收集癌症家族史聊天机器人的看法
Melissa Guziak,Daniel Chavez-Yenter,Emma Sears et al.
Melissa Guziak et al.
Introduction Individuals from historically marginalized communities have less access to genetic testing services. Incomplete family history information in electronic health records contributes to under-identification of those eligible for g...
Stephanie Best,Skye McKay,Megan C Roberts et al.
Stephanie Best et al.
The integration of genomics into routine healthcare is transforming clinical practice and public health, yet its implementation remains fragmented and uneven across global contexts. With over 65 international initiatives advancing personali...
Employee perspectives on genetic testing in the workplace: Results from a national survey [0.03%]
我国员工关于工作场所基因检测态度的全国调查结果
J Scott Roberts,Wendy R Uhlmann,Drew Blasco et al.
J Scott Roberts et al.
Introduction: Genetic testing for health-related purposes is now offered in some workplace wellness programs, with notable ethical, legal, and social implications. However, little is known about employee perspectives on w...
Democratizing Education for Sickle Cell Disease Gene Therapy: A Community-Based Model for Creating Patient Education Materials [0.03%]
sickle细胞病基因治疗的教育民主化：一种基于社区的患者教育材料创建模型
Vence L Bonham,Kiana Amini,Ashley J Buscetta et al.
Vence L Bonham et al.
Introduction Deliberative democracy is an inclusionary approach to reaching consensus decision-making through participative and representative engagement. The Democratizing Education for Sickle Cell Disease Gene Therapy Project used a delib...
Achieving the Vision of Genomics to Improve Health for All Requires a Focus on Diversity, Equity and Inclusion [0.03%]
实现基因组学改善所有人的健康的愿景需要关注多样性、公平性和包容性
Muin J Khoury,Colleen M McBride,Martina C Cornel
Muin J Khoury
None. The Author(s). Published by S. Karger AG, Basel.
Exploring Dutch citizens' perspectives, expectations, and decision-making regarding health-related direct-to-consumer genetic testing (DTC-GT) [0.03%]
探索荷兰公民关于健康相关的直接面向消费者的基因检测的视角、期望和决策问题
Danny Bruins,Suzanne M Onstwedder,Martina C Cornel et al.
Danny Bruins et al.
Introduction: Qualitative insights into European citizens' beliefs, expectations, attitudes, and factors relevant for decision-making regarding health-related direct-to-consumer genetic testing (DTC-GT) are scarce. Assess...
Progress and Criteria in Public Health Applications of Gene Therapy and Gene Editing: Beyond the White Paper [0.03%]
基因治疗和基因编辑的公共卫生应用进展与标准：白皮书之外的新思考
Stephen M Modell,Jennifer A Smith,Sharon L R Kardia
Stephen M Modell
Introduction: This Review examines the pace of public health-related gene therapy and gene editing development since the publication of a key British white paper in 2003. ...