Stephanie Best,Skye McKay,Megan C Roberts et al.
Stephanie Best et al.
The integration of genomics into routine healthcare is transforming clinical practice and public health, yet its implementation remains fragmented and uneven across global contexts. With over 65 international initiatives advancing personali...
Employee perspectives on genetic testing in the workplace: Results from a national survey [0.03%]
我国员工关于工作场所基因检测态度的全国调查结果
J Scott Roberts,Wendy R Uhlmann,Drew Blasco et al.
J Scott Roberts et al.
Introduction: Genetic testing for health-related purposes is now offered in some workplace wellness programs, with notable ethical, legal, and social implications. However, little is known about employee perspectives on w...
Democratizing Education for Sickle Cell Disease Gene Therapy: A Community-Based Model for Creating Patient Education Materials [0.03%]
sickle细胞病基因治疗的教育民主化：一种基于社区的患者教育材料创建模型
Vence L Bonham,Kiana Amini,Ashley J Buscetta et al.
Vence L Bonham et al.
Introduction Deliberative democracy is an inclusionary approach to reaching consensus decision-making through participative and representative engagement. The Democratizing Education for Sickle Cell Disease Gene Therapy Project used a delib...
Achieving the Vision of Genomics to Improve Health for All Requires a Focus on Diversity, Equity and Inclusion [0.03%]
实现基因组学改善所有人的健康的愿景需要关注多样性、公平性和包容性
Muin J Khoury,Colleen M McBride,Martina C Cornel
Muin J Khoury
None. The Author(s). Published by S. Karger AG, Basel.
Exploring Dutch citizens' perspectives, expectations, and decision-making regarding health-related direct-to-consumer genetic testing (DTC-GT) [0.03%]
探索荷兰公民关于健康相关的直接面向消费者的基因检测的视角、期望和决策问题
Danny Bruins,Suzanne M Onstwedder,Martina C Cornel et al.
Danny Bruins et al.
Introduction: Qualitative insights into European citizens' beliefs, expectations, attitudes, and factors relevant for decision-making regarding health-related direct-to-consumer genetic testing (DTC-GT) are scarce. Assess...
Progress and Criteria in Public Health Applications of Gene Therapy and Gene Editing: Beyond the White Paper [0.03%]
基因治疗和基因编辑的公共卫生应用进展与标准：白皮书之外的新思考
Stephen M Modell,Jennifer A Smith,Sharon L R Kardia
Stephen M Modell
Introduction: This Review examines the pace of public health-related gene therapy and gene editing development since the publication of a key British white paper in 2003. ...
Evaluating the Applied Knowledge of BRCA Testing Among Spanish-Preferring Latino Americans: The Influence of Acculturation and Literacy [0.03%]
评估说西班牙语的拉丁美洲美国人BRCA检测应用知识的影响：同化和识字率的影响
Yi Liao,Daniel Chavez-Yenter,Kimberly A Kaphingst
Yi Liao
Introduction: This study examines applied knowledge about BRCA testing among Spanish-preferring Latino adults in the United States and identifies factors influencing this knowledge, addressing gaps in understanding geneti...
Towards Patient Involvement and Representation in the Governance of Genomic Data Archives: Deliberative forums with patients in Germany [0.03%]
关于基因组数据档案治理中患者的参与和代表：德国患者协商论坛的研究
Eric Apondo,Katja Mehlis,Andreas Bruns et al.
Eric Apondo et al.
Introduction: Although it is generally agreed that the perspectives of patients should be included in decision-making about genomic data, patients rarely have a significant role in the governance of genomic data archives ...
Workplace genomic testing: What do company websites say about federal privacy and anti-discrimination laws? [0.03%]
职场基因检测：公司网站上都说了些什么——关于联邦隐私与反歧视法的内容？
Betty Cohn,Anya E R Prince,Katherine Callahan et al.
Betty Cohn et al.
Introduction: Employees considering participation in workplace genetic and/or genomic testing (wGT) as part of workplace wellness programs should be aware of legal protections of their personal genetic information. Given ...
Muin J Khoury
Muin J Khoury