Navigating the Planning and Initiation of a First Prospective Clinical Trial Through a Regional Pediatric Oncology Consortium Within the Middle East, Africa, and Asia-A Roadmap [0.03%]
中东、非洲和亚洲儿科肿瘤学联盟中首次前瞻性临床试验的规划与启动指南：路线图
Ruzanna Papyan,Farah Ghamloush,Iman Sidhom et al.
Ruzanna Papyan et al.
Background: Prospective pediatric oncology clinical trials remain scarce across low- and middle-income countries (LMICs). We developed the first multicountry prospective clinical trial within the Pediatric Oncology East a...
A Population-Based Study on Childhood Aplastic Anemia-Incidence, Outcomes, and Health-Related Quality of Life [0.03%]
基于人群的儿童再生障碍性贫血的流行病学、预后和生活质量研究
Lauri-Matti Kulmala,Riitta Niinimäki,Tytti Pokka et al.
Lauri-Matti Kulmala et al.
Background: Childhood aplastic anemia (AA) is a rare disease, and both the disease itself and its treatment cause significant morbidity. We aimed to determine the contemporary incidence of childhood AA in Finland, to comp...
Evaluating the Readability of Patient-Facing Online Educational Materials for Pediatric Leukemia and Lymphoma [0.03%]
评估儿科白血病和淋巴瘤面向患者在线教育材料的可读性
Chloe Strege,Simone Intriago Tito,Courtney Popp et al.
Chloe Strege et al.
Background: Together, leukemia and lymphoma account for 38.7% of newly diagnosed pediatric cancer cases in the United States each year. Many caregivers utilize online resources to inform medical health decisions. Understa...
Fabiën N Belle,Tomáš Sláma,Eva Haegler-Laube et al.
Fabiën N Belle et al.
Background: Misperception of body weight can negatively impact the weight management efforts of childhood cancer survivors (CCSs). Both being overweight or underweight are associated with chronic health conditions commonl...
Comment on: Implementing Health-Related Quality of Life Assessment in Pediatric Oncology: A Feasibility Study. The Clinical Impact and Implementation of a Child-Friendly Assessment Tool in Pediatric Oncology [0.03%]
对“实施儿童肿瘤学相关生活质量评估：一项可行性研究”的评论：在儿童肿瘤学中实施一种适合儿童使用的评估工具的临床影响和应用
Ariane Levesque,Jaabili Kuruvella,Maxime Caru et al.
Ariane Levesque et al.
Mapping Childhood Cancer Care Services in Oceania: Methodological Lessons From the SIOP Global Mapping Programme [0.03%]
大洋洲儿童癌症护理服务地图绘制方法学：SIOP全球制图项目的经验教训
Trisha Soosay Raj,Christy Noble,Amy Gray et al.
Trisha Soosay Raj et al.
The International Paediatric Oncology Society Global Mapping Programme aims to collect data on global paediatric oncology services by continent, with Africa and Latin America completed. This study reports on the methodology and lessons lear...
Psychosocial Distress, Social Support, and Sexual Health Among Adult Survivors of Childhood Cancer in India: Findings From the Childhood Cancer Survivorship Program [0.03%]
印度儿童癌症幸存者中的心理社会压力、社会支持和性健康：来自儿童癌症幸存者项目的结果发现
Shubham Sahni,Archana Sasi,Rahul Kumar et al.
Shubham Sahni et al.
Background: Advances in pediatric oncology have created a growing cohort of adult survivors of childhood cancer, but data on long-term psychological outcomes from low- and middle-income countries (LMICs) remain limited. W...
Dramatic Response to Trametinib in an Infant With Life-Threatening Pulmonary Langerhans Cell Histiocytosis [0.03%]
特拉美替尼治疗危及生命的婴儿肺郎格罕细胞组织细胞增生症的疗效
Francesco Pezzoli,Irene Trambusti,Francesco Pegoraro et al.
Francesco Pezzoli et al.
Feasibility and Impact of a Multidisciplinary Lifestyle Intervention Among Overweight and Obese Childhood Cancer Survivors in a Low- and Middle-Income Setting [0.03%]
低收入和中等收入国家超重和肥胖的儿童癌症幸存者的多学科生活方式干预的可行性和影响
Gauri Kapoor,Navneet Singh,Sandeep Jain et al.
Gauri Kapoor et al.
Background: Childhood cancer survivors (CCS) are at increased risk of obesity and related cardiometabolic complications. Evidence for multidisciplinary (MD) lifestyle interventions in CCS, particularly from low- and middl...
Sustained Therapeutic Efficacy of Intravenous Plasminogen Concentrate in Pediatric Patients With Type 1 Plasminogen Deficiency: An Analysis of Dosing Parameters and Clinical Outcomes [0.03%]
静脉用纤溶酶原浓缩物治疗1型纤溶酶原缺乏症患儿的长期疗效：剂量参数和临床结果分析
Charles Nakar,Karen Thibaudeau,Mary Mathias et al.
Charles Nakar et al.
Background: Type 1 plasminogen deficiency (PLGD-1) is an ultra-rare autosomal recessive disorder caused by variants in the PLG gene and affects approximately 1.6 individuals per million. The condition is characterized by ...