Reliability of the quality of life-aged care consumers (QOL-ACC) and EQ-5D-5L among older people using aged care services at home [0.03%]
居家养老的老年人生活质量（QOL-ACC）和EQ-5D-5L的可靠性和效度
Jyoti Khadka,Rachel Milte,Claire Hutchinson et al.
Jyoti Khadka et al.
Purpose: The Quality of Life-Aged Care Consumers (QOL-ACC), a valid preference-based instrument, has been rolled out in Australia as part of the National Quality Indicator (QI) program since April 2023 to monitor and benc...
The Patient Activation Measure-13 (PAM-13) in an oncology patient population: psychometric properties and dimensionality evaluation [0.03%]
肿瘤学患者人群中的患者激活措施-13（PAM-13）：心理测量属性和维度评估
Inka Roesel,Daniela Froehlich,Stefanie Joos et al.
Inka Roesel et al.
Background: Accurate assessment and enhancement of health-related skills among oncology patients are pivotal for optimizing cancer care. The Patient Activation Measure (PAM-13), a questionnaire designed to reflect an indi...
A scoping review to create a framework for the steps in developing condition-specific preference-based instruments de novo or from an existing non-preference-based instrument: use of item response theory or Rasch analysis [0.03%]
一项范围性综述：构建一套框架来规范基于特定疾病偏好的量表的开发步骤——全新或从现有的非偏好化量表中创建：使用项目响应理论或Rasch分析
Teresa C O Tsui,Sofia C Torres,Joanna M Bielecki et al.
Teresa C O Tsui et al.
Background: There is no widely accepted framework to guide the development of condition-specific preference-based instruments (CSPBIs) that includes both de novo and from existing non-preference-based instruments. The pur...
Adapting the EQ-5D-3L for adults with mild to moderate learning disabilities [0.03%]
EQ-5D-3L测量成人轻至中度学习障碍者生活质量的改良版本
John L O&#x;Dwyer,Louise D Bryant,Claire Hulme et al.
John L O&#x;Dwyer et al.
Background: Approximately 1.5 million adults in the UK have a learning disability. The difference between age at death for this group and the general population is 26 years for females and 22 years for males. The NHS Long...
Construction and preliminary validation of a tool to measure the needs of adolescents and young adults (AYA) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs: QUEEC-AYAs [0.03%]
一种评估癌症青少年及年轻成人患者需求的测量工具——QUEEC-Ayas问卷的构建与初步验证
S Justafré,P Marino,R Touzani et al.
S Justafré et al.
Context: In France, 2300 adolescents and young adults (AYAs, 15-25 years old) are diagnosed with cancer each year. As soon as the disease is diagnosed, a number of physical, psychological and social needs may arise. The a...
An assessment of the psychometric properties of the Coping Strategies Questionnaire - Sickle Cell Disease (CSQ-SCD) among adults in the United States [0.03%]
在美国成人中评估应对策略问卷-镰状细胞病(CSQ-SCD)的心理测量属性
Monika Salkar,Meagen Rosenthal,Kaustuv Bhattacharya et al.
Monika Salkar et al.
Background: Previous studies have reported conflicting factor structures of the Coping Strategies Questionnaire - Sickle Cell Disease (CSQ-SCD). This study examined the psychometric properties of the CSQ-SCD among adults ...
Assessing health-related quality of life of Chinese population using CQ-11D [0.03%]
应用CQ-11D评估中国人群的健康相关生命质量
Jie Pan,Qianxi Han,Pingda Zhou et al.
Jie Pan et al.
Purpose: This study aimed to assess the health-related quality of life (HRQoL) of the Chinese population by using the Chinese medicine quality of life-11 dimensions (CQ-11D) questionnaire and to identify factors associate...
Health state utility estimates for value assessments of novel treatments in Huntington's disease: a systematic literature review [0.03%]
系统综述：用于评估亨廷顿病新疗法的效用估计值
Ruta Sawant,Kyle Paret,Jennifer Petrillo et al.
Ruta Sawant et al.
Background: Huntington's disease (HD) is a progressive neurodegenerative disease with a devastating impact on patients and their families. Quantifying how treatments affect patient outcomes is critical for informing reimb...
Longitudinal course and predictors of health-related quality of life, mental health, and fatigue, in non-hospitalized individuals with or without post COVID-19 syndrome [0.03%]
新型冠状病毒肺炎患者的健康相关生活质量、心理健康和疲劳的纵向研究及其预测因素——来自非住院患者的证据
Inge Kirchberger,Christine Meisinger,Tobias D Warm et al.
Inge Kirchberger et al.
Background: Long-term information on health-related quality of life (HRQOL) and mental health of non-hospitalized individuals with "post COVID-19 syndrome" (PCS) is scarce. Thus, the objectives of the present study were t...
Patient-reported outcome measures for primary hyperparathyroidism: a systematic review of measurement properties [0.03%]
原发性甲状旁腺功能亢进症患者报告结果测量指标的系统评价：测量属性
George Liang,Manraj N Kaur,Carrie G Wade et al.
George Liang et al.
Background: The quality of patient-reported outcome measures (PROMs) used to assess the outcomes of primary hyperparathyroidism (PHPT), a common endocrine disorder that can negatively affect patients' health-related quali...