Patient-reported outcomes and measures for vaginal relaxation syndrome management: a systematic review [0.03%]
用于管理阴道松弛综合征的患者报告结果和测量指标：系统评价
Hongqin Chen,Jian Meng,Qiao Li et al.
Hongqin Chen et al.
Background: The heterogeneity of patient-reported outcomes (PROs) and patient-reported outcome measures (PROMs) in published clinical studies on vaginal relaxation syndrome (VRS) hinders cross-study comparisons and integr...
Health-related quality of life in COVID-19 patients: a systematic review and meta-analysis of EQ-5D studies [0.03%]
COVID-19患者的生活质量：EQ-5D研究的系统评价和meta分析
Kidu Gidey,Yirga Legesse Niriayo,Solomon Weldegebreal Asgedom et al.
Kidu Gidey et al.
Background: COVID-19 has affected millions globally, with a significant proportion experiencing long-COVID and impaired health-related quality of life (HRQoL). This systematic review and meta-analysis aimed to synthesize ...
Psychometric evaluation of the PROMIS® physical function short form 12a for use by adults with myalgic encephalomyelitis/chronic fatigue syndrome [0.03%]
成人肌痛性脑脊髓炎/慢性疲劳综合征患者使用PROMIS身体功能短期评估量表12a的度量评价
Manshu Yang,San Keller,Parisa Rafiee et al.
Manshu Yang et al.
Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating, long-term illness that significantly impairs physical functioning. Despite its impact, the use of modern generic instruments to as...
Quality of life among individuals with profound intellectual and multiple disabilities: crossed perspectives of institutional caregivers and parents [0.03%]
机构照料者和父母视角下的重度智力多重残障个体的生活质量比较研究
Karine Baumstarck,Ilyes Hamouda,Nicolas Iline et al.
Karine Baumstarck et al.
Background: People with profound intellectual and multiple disabilities (PIMD) experience severe limitations in autonomy and communication due to early brain injury. Assessing their quality of life (QoL) is challenging bu...
Health-related quality of life in patients with paediatric inflammatory bowel disease: IMPACT-III validation in Germany [0.03%]
德国儿童炎症性肠病患者的生活质量研究：IMPACT-III验证研究
Aletta Boerkoel,Maresa Buchholz,Luisa Tischler et al.
Aletta Boerkoel et al.
Background: Health related quality of life (HRQoL) in paediatric patients with inflammatory bowel disease (IBD) is typically measured using the patient reported outcome measure IMPACT-III. This measure has not yet been va...
Health-related quality of life in patients with paediatric inflammatory bowel disease: IMPACT-III validation in Germany [0.03%]
德国儿童炎症性肠病患者的生命质量：IMPACT-III验证研究
Aletta Boerkoel,Maresa Buchholz,Luisa Tischler et al.
Aletta Boerkoel et al.
Background: Health related quality of life (HRQoL) in paediatric patients with inflammatory bowel disease (IBD) is typically measured using the patient reported outcome measure IMPACT-III. This measure has not yet been va...
Understanding health-related quality of life of informal carers in amyotrophic lateral sclerosis: a scoping review and conceptual framework [0.03%]
肌萎缩侧索硬化症非正式照料者健康相关生活质量的理解：系统综述和概念框架
Rosie Bamber,Jill Carlton,Christopher McDermott et al.
Rosie Bamber et al.
Background: Amyotrophic Lateral Sclerosis (ALS) is a rapidly progressive, life-limiting neurodegenerative disease. Informal carers provide extensive support, significantly impacting their health-related quality of life (H...
Development of a PROM set for patients with Guillain-Barré syndrome (GBS) and chronic inflammatory demyelinating polyneuropathy (CIDP): study protocol [0.03%]
Guillain-Barre综合征（GBS）和慢性炎症性脱髓鞘多发性神经病（CIDP）患者PROM量表的开发：研究方案
Farah Pelouto,Juanita A Haagsma,Bart C Jacobs et al.
Farah Pelouto et al.
Background: Guillain–Barré syndrome (GBS) and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) are rare immune-mediated disorders of the peripheral nervous system. They cause significant physical and mental symp...
Rooting patient-reported outcomes in clinical care: a scoping review on benefits, challenges, and opportunities for patients and clinicians [0.03%]
基于临床护理的患者报告结果研究：患者和医生面临的机遇、挑战及益处的系统综述
Ipek Ozer Stillman,Brandon Boyle,Karen Lencoski et al.
Ipek Ozer Stillman et al.
Background: The patient voice in healthcare continues to grow, through the expanded use of patient-reported outcomes (PRO) and enhanced by the growing use of digital health technologies. Despite these positive signs, wide...
Internet of health things and machine learning for continuous quality of life monitoring [0.03%]
面向持续生活质量监测的健康物联网和机器学习
Pedro Almir M Oliveira,Rossana M C Andrade,Pedro A Santos Neto et al.
Pedro Almir M Oliveira et al.
Background: Continuous Quality of Life (QoL) monitoring enables many benefits, such as early healthcare interventions. This work uses Internet of Health Things (IoHT) data and Machine Learning to infer physical and psycho...