Cataloging health state utility estimates for Duchenne muscular dystrophy and related conditions [0.03%]
杜氏肌营养不良和相关疾病的健康状态效用评估分类系统
Lauren A Do,Lauren E Sedita,Alexa C Klimchak et al.
Lauren A Do et al.
Background: Duchenne muscular dystrophy (DMD) is a genetic disease resulting in progressive muscle weakness, loss of ambulation, and cardiorespiratory complications. Direct estimation of health-related quality of life for...
Development of a novel patient reported outcome measure for health-related quality of life in amyotrophic lateral sclerosis (PROQuALS): study protocol [0.03%]
开发一种新的患者报告结局测量方法以评估肌萎缩侧索硬化症的健康相关生活质量（PROQuALS）：研究方案
Jill Carlton,Philip Powell,Donna Rowen et al.
Jill Carlton et al.
Background: Patient reported outcome measures (PROMs) can be used to assess the impact of health conditions upon an individual's health-related quality of life (HRQoL). Whilst PROMs have been used to quantify the HRQoL im...
Association between sensory processing sensitivity and quality of life among cancer patients: a mediation and moderation of resilience and social determinants [0.03%]
癌症患者的感官处理敏感度与生活质量之间的关系：韧性及社会决定因素的中介和调节作用
Qinghuan Yang,Jiao Yang,Xudong Xiang et al.
Qinghuan Yang et al.
Background: Individuals with sensory processing sensitivity (SPS) tend to be overreactive in response to negative environmental stimuli. More is known about the positive relationship between SPS and quality of life (QoL);...
Active social engagement and health among older adults: assessing differences by cancer survivorship status [0.03%]
积极的社会交往与老年人健康状况：按癌症幸存者身份进行差异分析
Jennifer L Moss,Veronica Bernacchi,Erin Kitt-Lewis
Jennifer L Moss
Introduction: The number of older adults who are cancer survivors is rapidly growing. Evidence is needed to inform interventions to support successful aging among older adults (including older adult cancer survivors). Act...
Validation and psychometric evaluation of the Short Warwick-Edinburgh Mental Well-Being Scale (SWEMWBS) among Czech adolescents using Item Response Theory [0.03%]
捷克青少年短期爱丁堡心理健康量表（SWEM-WBS）的有效性及项目反应理论计量学评价
Radka Hanzlová,Aleš Kudrnáč
Radka Hanzlová
Background: The topic of adolescent mental health is currently a subject of much debate due to the increasing prevalence of mental health problems among this age group. Therefore, it is crucial to have high-quality and va...
Jan Henrik Terheyden,Lisa Gittel,Julie Jungblut et al.
Jan Henrik Terheyden et al.
Background: The use of patient-reported outcome measures (PROMs) in clinical research increases and use of heterogeneous instruments reflects how well diverse traits are captured by a medical specialty. In order to reflec...
Converting PROMIS®-29 v2.0 profile data to SF-36 physical and mental component summary scores in patients with cardiovascular disorders [0.03%]
将PROMIS ®-29 V2.0概要数据转换为SF-36身心总结量表评分：心血管疾病患者的验证研究
Gregor Liegl,Felix H Fischer,Carl N Martin et al.
Gregor Liegl et al.
Background: Health-related quality of life (HRQL) has become an important outcome parameter in cardiology. The MOS 36-ltem Short-Form Health Survey (SF-36) and the PROMIS-29 are two widely used generic measures providing ...
A scoping review of the use of minimally important difference of EQ-5D utility index and EQ-VAS scores in health technology assessment [0.03%]
基于最小重要差异的EQ-5D效用指数和EQ-VAS评分在卫生技术评估中的应用——系统综述式梳理分析研究
Caroline Shaw,Louise Longworth,Bryan Bennett et al.
Caroline Shaw et al.
Objectives: Estimates of minimally important differences (MID) can assist interpretation of data collected using patient-reported outcomes (PRO), but variability exists in the emphasis placed on MIDs in health technology ...
Patient-reported outcomes and daily activity assessed with a digital wearable device in patients with paroxysmal nocturnal hemoglobinuria treated with ravulizumab: REVEAL, a prospective, observational study [0.03%]
在补体介导的疾病阵发性夜间血红蛋白尿患者中使用拉珠单抗治疗期间由患者报告的结果和日常活动（使用可穿戴数字设备评估）：一项前瞻性观察研究（REVEAL）
Elizabeth A Griffiths,Jae S Min,Wei-Nchih Lee et al.
Elizabeth A Griffiths et al.
Background: Paroxysmal nocturnal hemoglobinuria (PNH) is a rare, chronic blood disorder. Symptoms such as fatigue can have a substantial impact on patients' physical activity levels, sleep, quality of life, and work produ...
Observational Study
Health and quality of life outcomes. 2024 Aug 9;22(1):62. DOI:10.1186/s12955-024-02279-2 2024
Solving the puzzle of quality of life in cancer: integrating causal inference and machine learning for data-driven insights [0.03%]
破解癌症生活质量之谜：整合因果推理和机器学习以获得数据驱动的见解
Hakan Şat Bozcuk,Mustafa Serkan Alemdar
Hakan Şat Bozcuk
Background: Understanding the determinants of global quality of life in cancer patients is crucial for improving their overall well-being. While correlations between various factors and quality of life have been establish...