Implicit ethical choices in ultra-rare therapy development: researchers' perspectives on patient selection and communication, therapy value, and accessibility [0.03%]
超罕见疗法开发中的伦理选择:研究人员关于患者选择和交流、治疗价值和可及性的观点
Mariia V Maksimova,Rosan L Lechner,Felicia V Y L Lee-Kong et al.
Mariia V Maksimova et al.
Background: The development of new highly technological and highly personalized therapies for ultra-rare diseases is one of the fast-advancing areas in biomedicine. Yet such an approach is experimental, resource-intensive...
A nationwide survey of Japanese public perceptions of the necessity of antemortem informed consent for Rapid Autopsy Programs (RAP): comparison with other methods of postmortem human tissue utilization [0.03%]
日本快速尸检项目(RAP)尸体解剖前知情同意的全国公众调查:与死后人体组织利用其他方式对比研究
Yuki Fujiwara,Go Okui,Masanori Oikawa et al.
Yuki Fujiwara et al.
Background: Rapid Autopsy Programs (RAP) are essential research infrastructures for precision medicine, providing high-quality biospecimens. While international standards emphasize the importance of antemortem informed co...
From designer babies to edited food: comparing public attitudes toward CRISPR technology and gene editing in Japan and the United States [0.03%]
从设计婴儿到编辑食物:比较日本和美国公众对CRISPR技术及基因编辑的态度
Momoyo Matsuyama,Tilman Hartwig,Hiromi M Yokoyama et al.
Momoyo Matsuyama et al.
The last human touch: why AI doesn't belong in life's defining moments [0.03%]
最后一抹人性的痕迹:为什么在人生的决定性时刻不应出现人工智能
Stephen R Milford
Stephen R Milford
Determinants of willingness to share personal genomic data: a systematic review focused on health literacy [0.03%]
个人基因组数据分享意愿的影响因素:以健康素养为重点的系统评价研究
Marleen Schmeiss,Renate Schramek
Marleen Schmeiss
Background: Genomic medicine increasingly depends on patients' willingness to share genomic and medical data. While data sharing supports advances in personalised care, it also raises ethical and social concerns related t...
Moral character development in nursing students: a qualitative content analysis in Iran [0.03%]
伊朗护理专业学生职业道德培养的质性内容分析研究
Pooneh Yousefi,Hoda Ahmari Tehran,Ensieh Madani et al.
Pooneh Yousefi et al.
Background: Nursing is a moral profession requiring virtues such as compassion and integrity to deliver ethical care amid complex challenges like moral distress. Despite known influences on moral development, nursing stud...
Simona Curiello,Enrica Iannuzzi,Claudio Nigro
Simona Curiello
Management discussion of laws and regulations on human genetic resources in China: a scoping review [0.03%]
我国人类遗传资源法律、法规与管理办法的讨论性综述研究
Qiuyu Sun,Yibo Liu,Jian Huang et al.
Qiuyu Sun et al.
Validity and reliability of the Oxford Utilitarianism Scale among obstetricians and gynecologists [0.03%]
妇科医师的牛津功利主义量表的有效性和可靠性
Ayşe Figen Türkçapar,Uğur Doğan,Nüket Örnek Büken
Ayşe Figen Türkçapar