The relation between sleep and pain sensitization in pediatric sickle cell disease [0.03%]
儿童镰状细胞病的睡眠与疼痛敏感化之间的关系
Parker A Kell,Matthew C Morris,Zachary C Wilde et al.
Parker A Kell et al.
Objective: Sickle cell disease (SCD) is an inherited blood disorder characterized by acute pain crises and heightened chronic pain prevalence. Approximately 30%-40% of pediatric patients with SCD have chronic pain, contri...
The impact of juvenile idiopathic arthritis on psychosocial outcomes: a systematic review and meta-analysis [0.03%]
青少年特发性关节炎对心理社会结果的影响：系统评价和 Meta 分析
Bethany Richmond,Louise Sharpe,Jack Boyse et al.
Bethany Richmond et al.
Objective: In addition to the physical challenges of juvenile idiopathic arthritis (JIA), youth with JIA also experience a range of psychosocial sequalae, which requires further attention. This meta-analysis aimed to comp...
Capturing caregivers' and families' experiences in a Complex Care Program: development of the Complex Care Program-Family Impact Questionnaire (CCP-FIQ) [0.03%]
复杂护理计划家庭影响问卷（CCP-FIQ）的制定：对护工及家属的体验进行考察
Astrīda Sēja Kaugars,Nicole Bungert,K Jane Lee et al.
Astrīda Sēja Kaugars et al.
Objective: Complex Care Programs (CCPs) provide care coordination and medical services to children with medical complexity (CMC), but no current tools measure the broad impact of these programs on caregivers and families....
Associations between actigraphic and self-reported sleep and mental health in adolescents and young adults with cystic fibrosis [0.03%]
青少年和年轻成人囊性纤维化患者中活动记录仪测定与自述的睡眠及心理健康之间的关系
Jordana McMurray,Kimberley Widger,Anne L Stephenson et al.
Jordana McMurray et al.
Objective: To compare sleep and mental health outcomes in adolescents and young adults (AYA) with cystic fibrosis (CF) and healthy controls and to explore associations between sleep and mental health in CF. ...
Costs of implementing a caregiver mental health program in a pediatric academic medical center: a budget impact analysis [0.03%]
儿科学术医学中心实施护理人员心理健康计划的成本分析：预算影响分析
Naomi E Joffe,Lauren Szulczewski,Margaret Y Brock et al.
Naomi E Joffe et al.
Objective: Relatively few published guidelines on models of care to address the mental health needs of caregivers of patients with chronic illnesses exist. The purpose of this article is to conduct a budget impact analysi...
Navigating the complex landscape of childhood dementia: caregiver psychological well-being, grief, and health system challenges [0.03%]
儿童痴呆的复杂景观：照顾者的心理福祉、悲伤和卫生系统挑战
Suzanne M Nevin,Lauren Kelada,Kristina L Elvidge et al.
Suzanne M Nevin et al.
Objective: This study used the Supportive Care Needs Framework (SCNF) to examine the psychological well-being of caregivers of children with dementia and their experiences navigating health and disability systems, includi...
Informant reports of psychopathology in children with chronic physical illness over time: role of parent psychological distress [0.03%]
慢性躯体疾病儿童的精神病理学报告：父母心理痛苦的作用
Reese Parks,Mark A Ferro
Reese Parks
Objective: This study examined parent-child agreement on psychopathology among children with chronic physical illness over 24 months and investigated whether parent psychological distress moderated associations between in...
A scoping review of caregiver burden in caregivers of children with multiple conditions [0.03%]
多病共存儿童照护者负担的系统评价
Johanna R Michlig,Astrīda S Kaugars
Johanna R Michlig
Objective: Increasing numbers of caregivers in the United States face challenges caring for children with special health care needs. Research has identified unique challenges for caregivers, including limited resources an...
"Beyond the bubble"-a mixed-methods evaluation of an online psychosocial pilot program for caregivers of children with life-threatening food allergies [0.03%]
“冲出气泡之外”——一项针对食物过敏儿童照料者的在线心理社会试点项目的混合方法评估
Eszter Bertalan,Zsolt Horváth,Nikolett Beáta Vadon et al.
Eszter Bertalan et al.
Objective: Parents of children with immunoglobulin E (IgE)-mediated food allergies (FA) at risk of anaphylaxis may experience an increased psychosocial burden. Thus, integrating psychosocial support for parents into FA ma...