Assessment of Posttraumatic Stress Disorder in Adults With Severe or Moderate Intellectual Disability Using the Diagnostic Interview Trauma and Stressors-Severe Intellectual Disability [0.03%]
应用诊断访谈创伤和压力测量重度智力残疾成年人的创伤后应激障碍病情评估表(TSID)检测严重或中度智障成人中的创伤后应激障碍状况
Annemieke Hoogstad,Samantha Bouwmeester,Liesbeth Mevissen et al.
Annemieke Hoogstad et al.
Introduction: Until recently, no diagnostic instrument was available to classify posttraumatic stress disorder (PTSD) in individuals with severe or moderate intellectual disability (SID). This study investigates the Diagn...
What Matters Most? Developing a Core Patient Reported Outcome Set for Individuals With Genetic Intellectual Disabilities: An International Delphi Study [0.03%]
什么是最重要的？开发遗传性智力残疾个体核心患者报告结果集：一项国际德尔菲研究
Nadia Y van Silfhout,Maud M van Muilekom,Leonie A Menke et al.
Nadia Y van Silfhout et al.
Background: Improving care and research for individuals with genetic intellectual disabilities (GID) requires the identification and measurement of relevant patient reported outcomes (PROs). PROs represent the patient per...
COVID-19 Vaccination and Health Outcomes Among Adults With an Intellectual Disability in British Columbia, Canada [0.03%]
加拿大不列颠哥伦比亚省智力残疾成年人的新冠疫苗接种及健康结局
Xibiao Ye,Shengjie Zhang,Marie Paul Nisingizwe et al.
Xibiao Ye et al.
Introduction: Early studies demonstrated a higher risk for SARS-CoV-2 virus infection and severe COVID-19 outcomes such as hospitalisation, intensive care unit admission and death among people with an intellectual disabil...
Long-Term Effects of a Web-Based Exercise Programme for People With Intellectual Disabilities [0.03%]
网络锻炼对智力障碍人群的长期影响
Sanna Fjellström,Nicole Stuffler,Erik P Andersson et al.
Sanna Fjellström et al.
Background: Physical activity is essential for preventing noncommunicable diseases and improving health parameters. However, individuals with intellectual disabilities often struggle to meet recommended activity levels. S...
Clinical Diagnostics After Failed Hearing Screening in People With Intellectual Disabilities Do Not Often Take Place [0.03%]
智力障碍人群的听力筛查失败后很少进行临床诊断
Anna Wiegand,Philipp Mathmann,Susanne Wasmuth et al.
Anna Wiegand et al.
Background: Individuals with intellectual disabilities are at higher risk of undiagnosed or inadequately treated hearing loss. This situation requires easily accessible hearing screening, diagnostics and intervention prog...
From Concerns to Care: Understanding Parental Priorities and Access to Early Intervention for Infants With Fragile X Syndrome [0.03%]
从担心到关爱——脆性X综合征婴幼儿的早期干预需求及其父母的关注重点和就医行为调查研究报告摘要
Samantha Scott,Katherine C Okoniewski,Anne Edwards et al.
Samantha Scott et al.
Background: This study examined the experiences of infants diagnosed with fragile X syndrome (FXS) in the newborn period and their caregivers during the infant's first year of life. The primary objective was to understand...
Heart and Respiration Rate Variability Analysis to Estimate the Apnoea-Hypopnoea Index in People With Intellectual Disabilities [0.03%]
用于估计智力障碍人群呼吸暂停低通气指数的心率和呼吸频率变异分析
Naomi van den Broek,Fokke van Meulen,Marco Ross et al.
Naomi van den Broek et al.
Background: Obstructive sleep apnoea (OSA) is highly prevalent in people with intellectual disabilities, and when left untreated, negatively influences daily activities and social interactions. Polysomnography (PSG) remai...
Prevalence and Modifiable Risk Factors of Dementia in People With Down Syndrome: Cross-Sectional Study of Japan in Collaboration With the Intellectual Diversity for Goodness Research Consortium (INDIGO-2019) [0.03%]
唐氏综合征患者痴呆的患病率及可改变的风险因素：与良好研究联盟（INDIGO-2019）合作开展的日本人群横断面研究
Shintaro Takenoshita,Seishi Terada,Tomokazu Inoue et al.
Shintaro Takenoshita et al.
Background: People with Down syndrome (DS) have a strong genetic predisposition to Alzheimer's disease (AD). However, the clinical burden and associated risk factors in diverse, non-Western populations remain less underst...
Continued Involvement: A Scoping Review on Family Members' Needs and Experiences Collaborating With Support Staff for Relatives With Intellectual Disabilities Living Outside the Family Home [0.03%]
家庭成员与支持人员合作为居住在家以外的智力障碍亲属提供支援的需要和经历的定位审查：延续参与
Frances R Vereijken,Noud Frielink,Andrew Jahoda et al.
Frances R Vereijken et al.
Background: Family members' involvement in the care for their relative often continues after their relative has moved out of the family home. However, little is known about the needs of family members when collaborating s...
Resting Energy Expenditure in Adults With Williams Syndrome: Comparative Accuracy of Predictive Equations [0.03%]
威廉姆斯综合征成人受试者静息能量消耗的预测公式准确度比较研究
Danielle B Renzi,Jamie Garry,Jane Hubbard et al.
Danielle B Renzi et al.
Background: Williams syndrome (WS) is a rare neurodevelopmental disorder caused by a microdeletion on chromosome 7q. Previous research indicates that adults with WS are prone to having overweight and obesity and also have...