Cognitive training in children with hypoplastic left heart syndrome: A pilot randomized trial [0.03%]
左心发育不全综合征儿童认知训练试点随机试验
Lori C Jordan,Rachel E Siciliano,David A Cole et al.
Lori C Jordan et al.
Neurodevelopmental disabilities are common sequelae of congenital heart disease, particularly cognitive impairments that impede academic achievement. Cognitive training has been shown to be effective in improving working memory in other pat...
ECG Findings Are Poor Predictors for Adverse Events and Cardiac Death in Barth Syndrome [0.03%]
巴尔特定症患者心电图异常不能预测不良事件及心脏死亡风险
Alexander Hutchinson,Carolyn L Taylor,Shahryar M Chowdhury et al.
Alexander Hutchinson et al.
Background: Patients with Barth syndrome (BTHS) can present with cardiomyopathy. BTHS subjects are at risk for cardiac adverse outcomes throughout life, including malignant arrhythmias and death. Electrocardiogram (ECG) p...
Nurse-guided Mobile Health Care Program to Reduce Emotional Distress Experienced by Parents of Infants Prenatally Diagnosed with Critical Congenital Heart Disease: A Pilot Study [0.03%]
由护士指导的移动健康照护程序以减少患有严重先天性心脏病的婴儿父母的精神痛苦：初步研究
Anne Chevalier McKechnie,Kristin M Elgersma,Matthew B Ambrose et al.
Anne Chevalier McKechnie et al.
Background: Following prenatal diagnosis of critical congenital heart disease (CCHD), parents encounter emotional distress while facing caregiving challenges. Supportive psycho-educational interventions using mobile healt...
Major Adverse Dystrophinopathy Events (MADE) Score as Marker of Cumulative Morbidity and Risk for Mortality in Boys with Duchenne Muscular Dystrophy [0.03%]
Duchenne肌营养不良男孩累积发病率和死亡率风险标志：重大不良抗肌萎缩蛋白病事件（MADE）评分
Beth D Kaufman,Ariadna Garcia,Zihuai He et al.
Beth D Kaufman et al.
Background: Overlapping symptoms from cardiomyopathy, respiratory insufficiency, and skeletal myopathy confound assessment of heart failure in Duchenne Muscular Dystrophy. We developed an ordinal scale of multiorgan clini...
The future is now! A supplemental webinar series to the First International Pediatric Cardio-Oncology Meeting [0.03%]
未来已来！第一屆國際兒童心臟腫瘤學會議網絡研討會系列補充会议웹inar系列
Thomas D Ryan
Thomas D Ryan
Planning for the First International Pediatric Cardio-Oncology Meeting has been underway since early 2019, with the original date in October 2020 delayed due to the COVID-19 pandemic. But patients continue to need care, research carries on,...
Pediatric cardiology national education series: A remote education response to COVID-19 [0.03%]
儿科心脏病全国教育系列：对COVID-19的远程教育回应
Julia K Weld,Lowell H Frank,Rupali Gandhi
Julia K Weld
Objective: Medical education experienced widespread disruption during the first peak of the COVID-19 pandemic. In response, members of the Society of Pediatric Cardiology Training Program Directors (SPCTPD) created a seri...
Impact of the COVID pandemic on quality measures in a pediatric echocardiography lab [0.03%]
新冠疫情对小儿超声心动图实验室质量指标的影响
Anna-Claire Marrone,Gemma Morrow,Michael S Kelleman et al.
Anna-Claire Marrone et al.
Background: The COVID pandemic necessitated an altered approach to transthoracic echocardiography, especially in COVID cases. Whether this has effected echocardiography lab quality is unknown. ...
A comparison of Kawasaki Disease and multisystem inflammatory syndrome in children [0.03%]
儿童川崎病与多系统炎症综合征的比较
Philip A Wessels,Michael A Bingler
Philip A Wessels
Background: Due to the COVID-19 pandemic a novel disease has emerged, multisystem inflammatory syndrome in children (MIS-C). It presents post virally after a COVID-19 infection, and its clinical presentation and symptoms ...
Analysis of buccal mucosa as a prognostic tool in children with arrhythmogenic cardiomyopathy [0.03%]
口腔黏膜作为儿童心律失常性心肌病预后工具的分析研究
Carlos Bueno-Beti,Ella Field,Adalena Tsatsopoulou et al.
Carlos Bueno-Beti et al.
Background: The diagnosis of arrhythmogenic cardiomyopathy (ACM) is challenging especially in children at risk of adverse events. Analysis of cardiac myocyte junctional protein distribution may have diagnostic and prognos...
First case reported of COVID-19 infection in an adult patient with Ellis-van Creveld Syndrome [0.03%]
埃利斯-范科尔本综合征成人患者首例新冠肺炎感染病例报告
Isabelle Piazza,Paolo Ferrero
Isabelle Piazza
Ellis-van Creveld syndrome (EVC) is a rare autosomal recessive disorder, the features of the syndrome are: chondral and ectodermal dysplasia characterized by short ribs, polydactyly, growth retardation resulting in dwarfism, teeth and crani...