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Research in developmental disabilities. 2025 Jun 10:164:105059. doi: 10.1016/j.ridd.2025.105059 Q12.92024

A moderated mediation model for predicting acceptance of a sibling with autism or Down Syndrome

自闭症或唐氏综合征手足接纳度的中介效应模型分析 翻译改进

Raaya Alon  1

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  • 1 Michlalah Jerusalem College, Baruch Duvdevani 36, Jerusalem 9116002, Israel. Electronic address: raaya.alon@gmail.com.
  • DOI: 10.1016/j.ridd.2025.105059 PMID: 40499452

    摘要 中英对照阅读

    Within the family system, the sibling subsystem holds particular importance, especially when there is a family member with a disability. Typically-developing siblings increasingly assume caregiving responsibilities for a brother/sister with a disability, particularly during the life stage of emerging adulthood. A critical factor influencing sibling relations is the acceptance of the sibling with a disability. Guided by the salutogenic approach, which emphasizes factors that promote health and effective coping, this study explored a moderated mediation model to examine the relationships between sense of coherence and emotions (active negative, passive negative, and positive emotions) toward siblings with autism or Down Syndrome, and how these relate to sibling acceptance. The sample included 520 emerging adult siblings (aged 18-27) of individuals with autism or Down Syndrome, who completed four self-report questionnaires. Disability type significantly moderated the indirect effect of the mediation relationship between sense of coherence and acceptance via active negative and positive emotions, but not via passive negative emotions. Specifically, the mediation effect via active negative emotions was significantly stronger for siblings of individuals with autism compared to those with Down Syndrome (b = 0.105), and the mediation effect via positive emotions was significant for siblings of individuals with autism but not for siblings of individuals with Down Syndrome (b = 0.137). The results highlight the role of sense of coherence in fostering sibling acceptance, mediated by emotions, and emphasize the need for community-based programs that enable siblings to process their feelings toward their siblings with autism or Down Syndrome, in order to promote acceptance.

    Keywords: Disabilities; Emerging adulthood; Emotions; Salutogenic approach; Sense of coherence; Siblings.

    Keywords:moderated mediation; model; prediction; acceptance; sibling disorder

    在家庭系统中,兄弟姐妹子系统具有特殊的重要性,特别是当家庭成员中有残疾人士时。正常发展的兄弟姐妹通常会在成年初期阶段越来越多地承担照顾有自闭症或唐氏综合症的兄弟姐妹的责任。影响兄弟姐妹关系的一个关键因素是接受有残疾的兄弟姐妹的能力。基于促进健康和有效应对问题的优势性方法(salutogenic approach),本研究探索了一个调节中介模型,以考察意义感与对患有自闭症或唐氏综合症的兄弟姐妹的情感(积极负面、消极负面及积极情感)之间的关系,并探讨这些因素如何影响兄弟姐妹接受度。样本包括520名成年初期阶段的兄弟姐妹(年龄在18-27岁之间),他们完成了四份自我报告问卷。残疾类型显著调节了意义感与通过主动负面和积极情感中介的兄弟姐妹接受度之间的间接效应,但未对消极负面情感产生影响。具体而言,对于有自闭症兄弟姐妹的兄弟姐妹来说,通过主动负面情感的中介效应比那些有唐氏综合症兄弟姐妹的更强(b = 0.105),而对于自闭症兄弟姐妹来说,积极情感的中介效应显著,而唐氏综合症则不然(b = 0.137)。结果强调了意义感在通过情绪促进兄弟姐妹接受度方面的作用,并突出了社区项目的重要性,这些项目可以帮助兄弟姐妹处理他们对患有自闭症或唐氏综合症兄弟姐妹的感受,以促进接受。

    关键词:残疾;成年初期阶段;情感;优势性方法;意义感;兄弟姐妹。

    关键词:调解效应; 模型; 预测; 接受度; 兄弟姐妹障碍

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    期刊名:Research in developmental disabilities

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    ISSN:0891-4222

    e-ISSN:1873-3379

    IF/分区:2.9/Q1

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