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Cancer nursing. 2024 Nov 5. doi: 10.1097/NCC.0000000000001424 Q12.42024

Current Practices for Delivering New Diagnosis Education at Children's Oncology Group Institutions: A Report From the Children's Oncology Group

儿童肿瘤集团机构当前的新诊断教育输送实践:来自儿童肿瘤集团的报告 翻译改进

Narissara Visungrae  1, Paula D Campos González, K Elizabeth Skipper, Peng Li, David E Vance, Adelynn J Salem, Teresa Herriage, Sue Zupanec, Wendy Landier

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  • 1 Author Affiliations: School of Nursing (Ms Visungrae, Mrs Skipper, and Drs Li, Vance, and Landier) and Institute for Cancer Outcomes and Survivorship (Mss Visungrae, Campos González, and Salem; Mrs Skipper; and Dr Landier) and Division of Pediatric Hematology/Oncology, Department of Pediatrics (Dr Landier), School of Medicine, University of Alabama at Birmingham; Children's Minnesota, Minneapolis (Dr Herriage); and The Hospital for Sick Children, Toronto, Ontario, Canada (Ms Zupanec).
  • DOI: 10.1097/NCC.0000000000001424 PMID: 39495006

    摘要 中英对照阅读

    Background: The Children's Oncology Group (COG) Nursing Discipline developed expert consensus recommendations and resources to guide the delivery of new diagnosis education across its member institutions. Current new diagnosis education practices across COG member institutions are unknown.

    Objective: To understand current new diagnosis education practices across COG member institutions.

    Methods: We conducted a cross-sectional survey of COG nurses between July and October 2023 to elicit current practices to deliver new diagnosis education to families across COG institutions. Data were collected and managed using REDCap electronic data capture tools. Individual responses from single institutions were averaged as a single institution-level response.

    Results: Respondents included 146/227 (64.3%) COG institutions across 5 countries. Advanced practice nurses and nurse educators have primary responsibility for new diagnosis education at 28.1% and 26.7% of institutions, respectively. Less than half (42.4%) of institutions have a clearly defined process for delivering new diagnosis patient/family education. Almost all (88.2%) institutions use the COG Family Handbook; 64.7% use the COG New Diagnosis Guide, and 41.9% use the COG KidsCare app to support the delivery of new diagnosis education. More than half (61.5%) of institutions use checklists to facilitate the delivery of new diagnosis education, with 81.6% of large institutions versus 44.1% of small institutions reporting the use of checklists ( P = .004).

    Conclusions: There is variability in current new diagnosis education practices across COG institutions.

    Implications for practice: These findings highlight opportunities for implementing standardized approaches aligned with expert consensus recommendations for the delivery of new diagnosis education.

    Keywords:new diagnosis education; report

    背景:

    儿童肿瘤组(COG)护理学科制定了一些建议和资源,以指导其成员机构提供新的诊断教育。然而,目前COG成员机构的新诊断教育实践尚不清楚。

    目标:

    了解COG成员机构当前的新诊断教育实践。

    方法:

    我们在2023年7月至10月期间对COG护士进行了一项横断面调查,以获取其向家庭提供新诊断教育的当前做法。我们使用REDCap电子数据采集工具收集和管理数据。每个机构的单独回复被平均作为单个机构级别的回复。

    结果:

    受访者包括来自5个国家的227个COG机构中的146个(占64.3%)。高级实践护士和护理教育者分别在28.1%和26.7%的机构中主要负责新诊断教育。不到一半(42.4%)的机构有明确界定的新诊断患者/家庭教育流程。几乎所有的机构(88.2%)使用COG家属手册;64.7%使用COG新诊断指南,而41.9%使用COG KidsCare应用程序来支持新诊断教育的传递。超过一半(61.5%)的机构使用清单来促进新诊断教育的交付,在大型和小型机构中分别有81.6%和44.1%报告了使用清单的情况(P = 0.004)。

    结论:

    COG机构之间目前的新诊断教育实践存在差异。

    实践意义:

    这些发现突出了实施与专家共识建议相一致的标准化方法的机会,以提供新诊断教育。

    关键词:新诊断教育; 儿童肿瘤组机构; 报告

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    期刊名:Cancer nursing

    缩写:CANCER NURS

    ISSN:0162-220X

    e-ISSN:1538-9804

    IF/分区:2.4/Q1

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    Current Practices for Delivering New Diagnosis Education at Children's Oncology Group Institutions: A Report From the Children's Oncology Group