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Pediatric blood & cancer. 2022 Feb;69(2):e29418. doi: 10.1002/pbc.29418 Q22.32025

Psychosocial care providers' perspectives: Barriers to implementing services for siblings of children with cancer

心理社会护理提供者的观点:为癌症患儿的兄弟姐妹实施服务的障碍 翻译改进

Phoebe Brosnan  1, Kathryn A Davis  1, Marcella Mazzenga  1, Anjali R Oberoi  2, Christina M Sharkey  3, David Buchbinder  4, Melissa A Alderfer  5, Kristin A Long  1

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作者单位

  • 1 Department of Psychological & Brain Sciences, Boston University, Boston, Massachusetts, USA.
  • 2 Tufts University School of Medicine, Boston, Massachusetts, USA.
  • 3 Department of Neurology, Children's National Hospital, Washington, District of Columbia, USA.
  • 4 Division of Hematology, CHOC Children's Hospital, Orange, California, USA.
  • 5 Center for Healthcare Delivery Science, Nemours Children's Health, Wilmington, DE & Department of Pediatrics, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.
  • DOI: 10.1002/pbc.29418 PMID: 34786821

    摘要 Ai翻译

    Background: Siblings of children with cancer are at increased risk for poor long-term psychosocial outcomes. The standard of psychosocial care in pediatric oncology calling for sibling support is not routinely implemented, often leaving siblings with unmet psychosocial needs. Barriers to implementing the sibling standard may exist at multiple levels. This study addresses research gaps regarding multilevel barriers to supporting siblings at the health care system, oncology center, and family levels.

    Procedure: Qualitative interviews were conducted with psychosocial care providers (N = 27; 18 psychologists, five social workers, three psychiatrists, and one child life specialist) employed at oncology centers within hospitals across the United States, varying in extent of sibling programming and center size. Interviews included questions about providers' roles, oncology center characteristics, existing psychosocial sibling services, barriers to providing systematic sibling assessment, and ideas about how to overcome barriers. Data were analyzed using applied thematic analysis.

    Results: Qualitative analysis revealed (a) barriers to providing sibling services occur at multiple levels (health care system, oncology center, family); (b) barriers at multiple levels frequently interact with one another; and (c) interacting barriers maintain a cycle: barriers to providing services contribute to limited provision of services, low service provision leads to limited utilization of existing services and underprioritization of siblings, and together this leads to siblings being off the radar, which further limits sibling service provision.

    Conclusion: Addressing health care system and oncology center barriers to implementing sibling assessment and support may be important potential targets for interventions to help ensure that siblings receive needed psychosocial assessment and support.

    Keywords: barriers; family; psychosocial; sibling.

    Keywords:barriers to implementation

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    期刊名:Pediatric blood & cancer

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    ISSN:1545-5009

    e-ISSN:1545-5017

    IF/分区:2.3/Q2

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