Navigating life with heart failure: Patient and caregiver perspectives of the culturally adapted Educate, Nurture, Advise, Before Life Ends health coaching programme [0.03%]
心力衰竭患者及护理者的视角：文化适应的Educate、Nurture、Advise和Before Life Ends健康教练计划的影响
Yeo Su-Min,Alston Ng,Shirlyn Hui Shan Neo
Yeo Su-Min
Background: Heart failure (HF) imposes substantial physical, psychological, and social burdens on patients and caregivers. While the Educate, Nurture, Advise, Before Life Ends (ENABLE) programme has demonstrated potential...
Impact of the COVID-19 pandemic on palliative care services in the Cape Metro District of South Africa [0.03%]
南非开普敦都会地区COVID-19大流行对姑息治疗服务的影响
Juanita O Arendse,Virginia Zweigenthal,Liz Gwyther
Juanita O Arendse
Background: The COVID-19 pandemic exacerbated the need for palliative care (PC) and exposed gaps in PC provision in South Africa's already-strained healthcare system. PC is a neglected yet core component of South Africa's...
Clinical profile and challenges of midazolam-based palliative sedation for terminal cancer patients: A retrospective observational study from a tertiary medical center in mainland China [0.03%]
咪达唑仑为基础的终末期癌症患者姑息镇静临床特征及挑战性病例：中国大陆三甲医院回顾性观察研究
Junhua Guo,Jiang Lu,Yazhen Zhong et al.
Junhua Guo et al.
Background: Palliative sedation is a key component of palliative care for end-stage cancer patients with refractory symptoms. In mainland China, midazolam-based titrated palliative sedation is rarely used clinically, with...
Taboo, safe spaces, and death sociability: A comparative ethnography of two compassionate communities [0.03%]
禁忌、安全空间与死亡的社会性——两种共情社区的比较民族志研究
Émilie Lessard,Isabelle Marcoux,Serge Daneault et al.
Émilie Lessard et al.
Background: Compassionate communities are a key public health palliative care strategy for addressing the social determinants of death. However, their evaluations often prioritize health indicators, overlooking the intend...
The patient reported transformation of identity and voice in life-limiting illness [0.03%]
晚期病人出现身份和声音转换的报告
Nqobile Sikhosana,Ritin Fernandez,Lorna Moxham
Nqobile Sikhosana
Background: Individuals facing life-limiting illnesses undergo a profound transformation that encompasses significant physiological changes, in the level of medical care received, and a shift in overall goals of care. Thi...
Burden and quality of life among caregivers of children diagnosed with cancer at Kenyatta National Hospital, Kenya: A cross-sectional study [0.03%]
肯尼亚内罗毕肯雅塔国立医院儿童癌症患者的看护者的负担和生活质量：一项横断面研究
Doris W Machaki,Albanus Mutisya,Jostine Mutinda et al.
Doris W Machaki et al.
Background: With projections indicating an increase in childhood cancer diagnoses by 2050, family members in Kenya frequently assume extensive caregiving responsibilities. These duties are demanding and may adversely impa...
Jennifer Rogerson,Daniella Holland-Hart,Michelle Edwards
Jennifer Rogerson
Death literacy is a burgeoning field in palliative care research and the social sciences, exploring people's knowledge, skills, experiential learning and social action as these pertain to death and dying. Death literacy is not described or ...
Temporal trends and predictors of inpatient palliative care in metastatic upper urinary tract carcinoma: An observational study [0.03%]
转移性上尿路癌住院姑息治疗的时间趋势和预测因素：一项观察性研究
Carolin Siech,Lukas Scheipner,Andrea Baudo et al.
Carolin Siech et al.
Background: Rates and patterns of inpatient palliative care (IPC) use in metastatic upper urinary tract carcinoma (mUTC) are largely unknown. Objectives: ...
From suffering to support: Applying the essence of spiritual care to compassion education for children and young people [0.03%]
从苦难到支持：将精神关怀的精髓应用于儿童和年轻人的同理心教育
Keiko Chida,Taketoshi Ozawa,Hiroki Chiba
Keiko Chida
Background: In Japan, challenges such as bullying, school absenteeism, and rising rates of self-harm and suicide among children and young people have become pressing social concerns, reflecting patterns of emotional distr...
Reflections on wishes and needs of adults living with the life-threatening disease Duchenne muscular dystrophy [0.03%]
杜氏肌肉营养不良症患者的心愿与需求反思
Pia Zinck Drivsholm,Charlotte Handberg
Pia Zinck Drivsholm
Aims and objectives: To investigate reflections on wishes and needs of adults living with the life-threatening disease Duchenne muscular dystrophy (DMD) to target future rehabilitation. ...