A M Rentz,A M Skalicky,K Burslem et al.
A M Rentz et al.
Background: The primary objective of this study was to evaluate the content validity of the Psoriasis Symptom Scale (PSS), with a specific focus on understanding of the content of the PRO measure by conducting one-on-one ...
A systematic evaluation of compliance and reporting of patient-reported outcome endpoints in ovarian cancer randomised controlled trials: implications for generalisability and clinical practice [0.03%]
系统评估卵巢癌随机对照试验中患者报告结果指标的依从性和报告情况：对普遍性及临床实践的影响
Rebecca Mercieca-Bebber,Michael Friedlander,Melanie Calvert et al.
Rebecca Mercieca-Bebber et al.
Background: This study aimed to evaluate the patient-reported outcome (PRO) content of ovarian cancer randomised-controlled trial (RCT) publications, describe PRO compliance, and explore potential relationships among thes...
Patient-Reported Outcome (PRO) Consortium translation process: consensus development of updated best practices [0.03%]
基于患者报告结果（PRO）联盟的翻译流程：更新最佳实践共识开发
Sonya Eremenco,Sheryl Pease,Sarah Mann et al.
Sonya Eremenco et al.
This paper describes the rationale and goals of the Patient-Reported Outcome (PRO) Consortium's instrument translation process. The PRO Consortium has developed a number of novel PRO measures which are in the process of qualification by the...
Exploring the quality of life issues in people with retinal diseases: a qualitative study [0.03%]
视网膜疾病患者生活质量影响因素的质性研究
Mallika Prem Senthil,Jyoti Khadka,Jagjit Singh Gilhotra et al.
Mallika Prem Senthil et al.
Background: The lack of an appropriate retina-specific patient-reported outcome instrument restricts the understanding of the full impact of hereditary retinal diseases and other less common but potentially blinding acqui...
Japanese translation and linguistic validation of the US National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) [0.03%]
美国国家癌症研究所患者报告结果的常见术语不良事件标准(PRO-CTCAE)的日本翻译及语言验证研究
Tempei Miyaji,Yukiko Iioka,Yujiro Kuroda et al.
Tempei Miyaji et al.
Background: The US National Cancer Institute (NCI) has developed the Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) to capture patients' self-reported symptomatic adver...
Patient experience in systemic lupus erythematosus: development of novel patient-reported symptom and patient-reported impact measures [0.03%]
系统性红斑狼疮患者的体验：新型患者报告症状及患者报告影响评估量表的制定
S D Mathias,P Berry,J De Vries et al.
S D Mathias et al.
Background: Comprehensive assessment of systemic lupus erythematosus (SLE) and its treatment requires patient-reported outcome (PRO) measures to capture impacts and fluctuating symptoms. The objective of this study was to...
Value of transfusion independence in severe aplastic anemia from patients' perspectives - a discrete choice experiment [0.03%]
从患者的角度评估重度再生障碍性贫血输血独立性的价值——一种选择试验的方法
A Simon Pickard,Lynn Huynh,Jasmina I Ivanova et al.
A Simon Pickard et al.
Background: Aplastic anemia is a rare, serious blood disorder due to bone marrow failure to produce blood cells. Transfusions are used to reduce risk of bleeding, infection and relieve anemia symptoms. In severe patients,...
Content validity and ePRO usability of the BPI-sf and "worst pain" item with pleural and peritoneal mesothelioma [0.03%]
BPI-SF和“最严重疼痛”条目的内容效度及电子患者报告结局(pleural and peritoneal mesothelioma)的使用性研究
Heather L Gelhorn,Sonya Eremenco,Anne M Skalicky et al.
Heather L Gelhorn et al.
Background: The Brief Pain Inventory-short form (BPI-sf) is widely used in self-reported pain assessment, incorporates pain numeric rating scales (NRS) and is commonly utilized in electronic format in clinical trials, how...
Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis [0.03%]
通过加入患者报告的结局以建立一个多中心登记处来量化青少年强直性脊柱炎的生活质量及其疾病和治疗经历
Elissa R Weitzman,Lauren E Wisk,Parissa K Salimian et al.
Elissa R Weitzman et al.
Background: Children with Juvenile Idiopathic Arthritis (JIA) often have poor health-related quality of life (HRQOL) despite advances in treatment. Patient-centered research may shed light on how patient experiences of tr...
Development of a modular patient-reported outcome and experience measure on patient needs and benefits in CLL (PBI-CLL) [0.03%]
慢性淋巴细胞白血病患者需求和获益模块化报告措施(PBI-CLL)的开发
Background: Chronic lymphocytic leukaemia (CLL) is the most common form of leukaemia in adults in western countries. Asymptomatic patients are under clinical observation; when indication for treatment according to guideli...