'How low can you go?' Developers' perspectives on involving young children in the development of patient reported outcome measures [0.03%]
“你能走多低？”开发者如何看待在患儿报告成果评估法开发过程中纳入幼儿的意见？
Victoria Gale,Philip A Powell,Jill Carlton
Victoria Gale
Background: Recommendations suggest that children need to be ≥ 8 years-old to participate in concept elicitation (CE) and cognitive interviewing (CI) when developing patient reported outcome measures (PROMs). However, th...
Case-mix Adjustment of Patient Reported Experience Measures (PREMs): a rapid review to inform benchmarking practices across inpatient health centers in Switzerland [0.03%]
基于患者报告体验指标（PREM）的疾病组合调整：一项关于瑞士住院医疗中心基准制定实践的快速回顾研究
Katrina Obas,Chiara Storari,Francesca Giuliani
Katrina Obas
Aim: The rapid review aimed to analyse current practices and recommendations regarding case-mix adjustment for benchmarking Patient Reported Experience Measures (PREMs) across inpatient health centres. Findings will infor...
Principles of good practice for concept definition in the context of translation and linguistic validation of clinical outcome assessments (COAs) [0.03%]
临床结局评估（COA）翻译和语言验证的概念定义良好实践原则
Benjamin Arnold,Dana Weiss,Emily Parks-Vernizzi et al.
Benjamin Arnold et al.
Background: Translation teams conducting translation and cultural adaptation find it paramount to properly describe concepts of items within clinical outcome assessments (COAs). To minimize potential threats to linguistic...
Health status, respiratory symptom and dyspnea trajectories in subjects with chronic obstructive pulmonary disease: a seven-year observation in clinical practice [0.03%]
慢性阻塞性肺疾病的健康状态、呼吸症状和气短轨迹：临床实践7年观察研究
Koichi Nishimura,Masaaki Kusunose,Ayumi Shibayama et al.
Koichi Nishimura et al.
Background: Chronic obstructive pulmonary disease (COPD) is characterized by progressive airflow limitation, often associated with declining health status. It is widely believed that the burden of the disease increases ov...
Observational Study
Journal of patient-reported outcomes. 2025 Jul 11;9(1):88. DOI:10.1186/s41687-025-00923-z 2025
Psychometric properties of patient-reported outcome measures in chronic pain conditions with central sensitization- a systematic review and meta-analysis [0.03%]
中枢敏化慢性疼痛条件下患者报告结果测量工具的心理测量属性——系统回顾和meta分析
Mst Farjana Akhter,Pavlos Bobos,Edith G Otalike et al.
Mst Farjana Akhter et al.
Purpose: To identify available patient-reported outcome measures (PROMs) used to evaluate central sensitization (CS) manifestations in chronic pain conditions and evaluate the quality of psychometric properties of those i...
Development and validation of MyCommunication-Youth: A self-report measure for communicative participation in children, adolescents and young adults [0.03%]
青少年MyCommunication的开发和验证：一种儿童、青少年和年轻人的沟通参与自评量表
Eline Alons,Lizet van Ewijk,Margreet Roelien Luinge et al.
Eline Alons et al.
Background: Communicative participation is the most important outcome of speech and language therapy, but there are no measurement instruments for children, adolescents, and young adults. This paper describes the developm...
Development of an item bank and outcome importance survey for the Australian and New Zealand Bariatric Surgery Registry [0.03%]
澳大利亚和新西兰胃肠手术登记处项目的成果评价及调查表的开发工作
Alyssa J Budin,Priya Sumithran,Andrew D MacCormick et al.
Alyssa J Budin et al.
Purpose: The Australian and New Zealand Bariatric Surgery Registry is developing a bariatric-specific patient-reported outcome measure (PROM) to capture patient outcomes. This study aimed to establish an item bank and que...
Exploring the patient experience of chronic hepatitis D (CHD) and assessment of content validity of the Hepatitis Quality of Life Questionnaire and (HQLQv2) and the Fatigue Severity Scale (FSS) [0.03%]
慢性乙肝D患者体验及乙型肝炎生活质量问卷和疲劳严重程度量表内容效度评估研究
Pietro Lampertico,Aishwarya Chohan,Hannah Elwick et al.
Pietro Lampertico et al.
Background: Chronic hepatitis D (CHD) is the most severe form of viral hepatitis, which results in accelerated progression to cirrhosis and poor prognosis compared with other hepatitis infections, impacting patients' heal...
Impact of influenza-like illnesses on health state utility value among Japanese children and adults [0.03%]
日本儿童及成人患流感样疾病对健康效用值的影响
Taito Kitano,Shinya Tsuzuki
Taito Kitano
Purpose: For future health technology assessment, an assessment of the utility value of influenza-like illnesses (ILIs) is crucial. Therefore, the objective of this study was to evaluate the impact of ILIs on utility valu...
Psychometric findings for LIMB-Q kids based on an international study of 800 children and adolescents with lower limb differences [0.03%]
基于800名肢体残障儿童和青少年的国际研究获得的LIMB-Q Kids量表 psychometrics指标结果分析
Harpreet Chhina,Charlene Rae,David Podeszwa et al.
Harpreet Chhina et al.
Background: LIMB-Q Kids is a new patient-reported outcome measure (PROM) for children and adolescents with Lower limb differences (LLDs). This international field test study aimed to evaluate the psychometric properties o...
Multicenter Study
Journal of patient-reported outcomes. 2025 Jul 5;9(1):82. DOI:10.1186/s41687-025-00916-y 2025