Psychometric evaluation of the EQ-5D-Y-3L in Ethiopian pediatric inpatients: comparing self and proxy reports [0.03%]
埃塞俄比亚住院儿科患者的EQ-5D-Y-3L心理测量评估：比较自我报告和代理报告
Begashaw Melaku Gebresillassie,Yared Belete Belay,Adeladlew Kassie Netere et al.
Begashaw Melaku Gebresillassie et al.
Background: Limited evidence exists regarding the measurement properties of the EQ-5D-Y-3L across different modes of administration. This study aimed to examine changes in parent/caregiver-child/adolescent dyad agreement ...
Development of a questionnaire investigating the physical and psychological well-being and need for rehabilitative strategies in patients with pulmonary embolism [0.03%]
开发调查表调查肺栓塞患者的身心健康状况及康复需求
Caroline Sindet-Pedersen,Jenny Bjerre,Nina Nouhravesh et al.
Caroline Sindet-Pedersen et al.
Purpose: Quantitative questionnaires can provide a deeper understanding of the health-related physical and psychological well-being in patients who have experienced a pulmonary embolism (PE). This paper describes the deve...
Assessing participants' experiences with the COVID-19 symptom diary in a clinical trial [0.03%]
评估临床试验中参与者使用Covid-19症状日记的体验
T Michelle Brown,Chisom Kanu,Magdalena Harrington
T Michelle Brown
During a phase 2/3 study of twice-daily nirmatrelvir 300 mg coadministered with ritonavir 100 mg versus placebo for 5 days (NCT05011513), participants reported presence and severity of COVID-19 symptoms using a COVID-19 symptom diary in acc...
Measurement properties of the PROMIS-29 profile v2.1 in a Norwegian rehabilitation context [0.03%]
PROMIS-29 v2.1在挪威康复环境中的测量属性
Stein Arne Rimehaug,Rikke Helene Moe,Hanne Dagfinrud et al.
Stein Arne Rimehaug et al.
Introduction: Psychometric properties of the Patient-Reported Outcomes Measurement Information System® Profile 29 (PROMIS-29) Norwegian version has previously been examined in a general population. This multicenter study...
Multicenter Study
Journal of patient-reported outcomes. 2025 Jul 31;9(1):98. DOI:10.1186/s41687-025-00929-7 2025
Quantitative and qualitative analysis of quality of life in people diagnosed with genetic haemochromatosis in the United Kingdom [0.03%]
英国遗传性血色素沉着病患者的定量和定性生活质量分析
Leah Craven-Smith,Neil McClements,Diogo Gomes et al.
Leah Craven-Smith et al.
Background: Genetic haemochromatosis (GH) is a long-term genetic condition which results in increased iron absorption into the blood and accumulation of iron into certain organs overtime. Increased absorption and accumula...
Content validity and meaningful change for the FACIT-Fatigue scale in warm autoimmune hemolytic anemia: results from qualitative interview studies with patients [0.03%]
温暖性自身免疫溶血性贫血患者FACIT-疲劳量表内容效度及临床意义变化：来自定性访谈研究的结果
Sheryl Pease,Rikki Mangrum,Karolina Schantz et al.
Sheryl Pease et al.
Purpose: Warm autoimmune hemolytic anemia (wAIHA) is a rare disorder characterized by premature destruction of red blood cells (hemolysis) and fatigue that affects patients' health-related quality of life. This study aime...
Observational Study
Journal of patient-reported outcomes. 2025 Jul 29;9(1):97. DOI:10.1186/s41687-025-00930-0 2025
Development of the QoLISSY 0-4 questionnaire: a health-related quality of life tool for young children with short stature [0.03%]
儿童生长激素缺乏症健康相关生活质量量表(QoLISSY 0-4)的编制
Adekunle Adedeji,Stefanie Witt,Julia Quitmann
Adekunle Adedeji
Short stature in children aged 0-4 years presents unique physical, social, and emotional challenges that significantly impact health-related quality of life (HRQoL). The QoLISSY 0-4 questionnaire was developed as a Patient Reported Outcome ...
Can machine translation match human expertise? Quantifying the performance of large language models in the translation of patient-reported outcome measures (PROMs) [0.03%]
机器翻译能否匹配人类专业知识？量化大型语言模型在患者报告结果测量(PROMs)翻译中的表现
Sheng-Chieh Lu,Cai Xu,Manraj Kaur et al.
Sheng-Chieh Lu et al.
Background: The rise in artificial intelligence tools, especially those competent at language interpretation and translation, enables opportunities to enhance patient-centered care. One might be the ability to rapidly and...
Rethinking surgical success in non-cancer operations-why patient experience must lead [0.03%]
重构非癌症手术成功的定义——为什么患者体验必须是首要因素
Jacob Rosenberg,Anders Gram-Hanssen,Hugin Reistrup et al.
Jacob Rosenberg et al.
Background: Traditionally, surgical success in non-cancer operations, such as elective hernia repair, has been defined by clinical outcomes, including recurrence and complication rates. However, these measures do not capt...
Quality of patient-reported outcome measures for acute bronchitis: a systematic review of instruments and measurement properties [0.03%]
急性支气管炎患者报告结果测量工具质量系统评价
Theresa Donhauser,Katharina Piontek,Ann-Kristin Baalmann et al.
Theresa Donhauser et al.
Background: Patient-reported outcome measures (PROMs) are standardized questionnaires for the assessment of health outcomes directly from the patient. A systematic evaluation of the quality of PROMs for acute bronchitis (...