Requirements for patient-reported outcomes and data analytics in health technology assessment in England, France and Germany, and the need for methods harmonization across European markets: a qualitative interview study [0.03%]
英国、法国和德国的卫生技术评估中患者报告结果和数据分析的需求及欧洲市场研究方法协调的需求：质性访谈研究报告
Laurie DiModica,On Yee Wong,Sarah Knight et al.
Laurie DiModica et al.
The feasibility and validity of the EQ-5D-Y and CHU9D in a challenging context: adolescent mental health in India [0.03%]
在印度青少年精神健康这一特殊背景下评估EQ-5D-Y和CHU9D的可行性和有效性
Samuel J Perry,Mutharaju Arelingaiah,Sphoorthi Prabhu et al.
Samuel J Perry et al.
Perceptions of the Values and Outcomes to Improve Cancer Experiences (VOICE) tool: a digital values-clarification instrument and tailored summary report for older adults with advanced cancer [0.03%]
关于改善癌症体验（VOICE）工具的价值观念及预后感知：老年人群晚期癌症的数字价值观甄别工具及其个性化总结报告
Amy C Cole,Angela M Stover,Lisa Vizer et al.
Amy C Cole et al.
Caregiver-perceived behavioral challenges in fragile X syndrome and implications for measuring treatment benefit in clinical trials [0.03%]
脆性X综合征照护者感知的行为挑战及对临床试验疗效评估的影响
Elizabeth Merikle,Nancy Tich,Terri Sebree et al.
Elizabeth Merikle et al.
Canadian French translation of the BREAST-Q Breast Conserving Therapy module [0.03%]
加拿大法语版的乳腺癌保乳手术模块问卷(BREAST-Q)
Bahar Rafinejad-Farahani,Luca C Bernardini,Jean-Marc Bourque et al.
Bahar Rafinejad-Farahani et al.
Content validation of the Myelofibrosis Symptom Assessment Form version 4.0 (MFSAF v4.0) in Janus kinase inhibitor-experienced patients with myelofibrosis [0.03%]
jak抑制剂治疗后原发性骨髓纤维化患者mf saf-v4.0症状评估表的验证研究
Katelyn Cutts,Anna Cardellino,Shiyuan Zhang et al.
Katelyn Cutts et al.
Patients with myelofibrosis (MF) experience debilitating symptoms that negatively impact health-related quality of life and functioning. The Myelofibrosis Symptom Assessment Form version 4.0 (MFSAF v4.0) is a 7-item questionnaire assessing ...
A framework to amplify the voices of underrepresented children and young people in rare disease research [0.03%]
一个放大罕见病研究中代表性不足的儿童和青年声音的框架
L Thomas,J Preston,H Hardwick et al.
L Thomas et al.
PROMs: Patient related or patient centred? A bridge between Patient-Reported Outcome Measures (PROMs) and clinical ethics in the context of a cohort of gynaeco-oncological patients analysed by qualitative semi- structured interviews [0.03%]
以妇科肿瘤患者病人为中心的病人报告结果测量(PROMS):临床伦理学角度下的定量半结构化访谈分析
Susanne Theis,Hamideh Fruehwein,Annette Hasenburg et al.
Susanne Theis et al.
Background: Patient-reported outcome measures (PROMs) are widely used in oncologic care, yet it remains unclear to what extent they capture the depth and contextual meaning of patient experience in gynecologic oncology. ...
Development of the Patient Satisfaction with Medication for Diabetes (PSMD) questionnaire [0.03%]
糖尿病患者用药满意度量表(PSMD)的编制
Kristina S Boye,Katie D Stewart,Louis S Matza et al.
Kristina S Boye et al.
A qualitative study of cancer clinical trial network consumers' acceptability of the modular approach to patient-reported outcome measurement: how much of it is "common sense"? [0.03%]
模块化方法进行癌症临床试验患者报告结果测量的可接受性定性研究：有多少属于“常识”？
Carrie-Anne Ng,Mariana Sousa,Tiffany Patterson et al.
Carrie-Anne Ng et al.
Background: There is growing interest in customising patient-reported outcome measures (PROMs). This involves selecting specific domains (i.e., subscales) that focus on key health-related quality of life (HRQoL) issues mo...